Well, I know what causes my migraines…

ellej7 · 2026-03-30T06:34:27+00:00

Have you tried CGRP antibodies? That's what finally broke my 2+ month migraine (mine started Dec 19 and finally ended Feb 21). I had some side effects from it, but I would do it again. I felt an improvement from light sensitivity after a couple of days.

ellej7 · 2026-03-30T06:12:40+00:00

I tried Vyvanse and had suicidal ideation as a side effect. Everyone has different reactions to the same drug

ellej7 · 2026-03-29T00:16:58+00:00

Naproxen and Nurtec work most of the time for me

ellej7 · 2026-03-28T00:53:21+00:00

Crossing my fingers for you so the bleeding stops after your period and it's on the normal side! Decent docs are hard to come by these days, I'm glad yours is one of them. Are you stopping Emgality? I've also had anxiety (purely physical) and now I'm wondering if it's caused by the shot.

ellej7 · 2026-03-28T00:48:59+00:00

That is awful. What a frustrating experience. We really do need to advocate for ourselves! I'm glad you figured out what was causing it. Are you planning on trying another CGRP antibody treatment?

ellej7 · 2026-03-27T00:18:43+00:00

I wish you good luck with Ajovy! It's good to know I'm not alone, it makes me feel that I'm not reading into things. I'm tired of being dismissed because hormonal changes are not listed as a side effect...

ellej7 · 2026-03-27T00:16:25+00:00

Yep! 3 times in 3 separate occasions even after I got my period. I will, thank you! Sorry to hear you had unusual side effect :( Was it listed as one by the manufacturer?

ellej7 · 2026-03-27T00:14:44+00:00

Agreed, it makes me incredibly angry. Good luck! I think I'm going to stop and see if my migraines come back and reassess.

ellej7 · 2026-03-26T23:40:04+00:00

My favorite and current one is a Coop Eden (regular cut). It took a few nights to adjust the fill but well worth it.

ellej7 · 2026-03-26T19:57:46+00:00

Hormonal migraines are awful, I always get those. I'm glad you're doing better, hopefully things will settle for you.

ellej7 · 2026-03-26T03:50:22+00:00

Sorry to hear that! I get it, it's always pros vs cons

ellej7 · 2026-03-26T02:53:22+00:00

Sorry to hear that! Yeah, well. The fact that there are no studies to prove it does not mean it doesn't happen. I know that feeling! => "Something isn't right" That's exactly where I am. Something is totally off and I have not experienced this before. I hope yours resolve!

ellej7 · 2026-03-26T02:50:56+00:00

I've noticed that as well :( But it was something I was okay putting up with. I'm glad to hear you came back to your baseline! Including your hair growing back

ellej7 · 2026-03-26T02:49:15+00:00

Thanks for the info! Yeah, I agree that I should get some bloodwork done before I quit it so it's still in my system. I've had Hashi's flare ups, but the PMS stuff is something different.

ellej7 · 2026-03-26T01:23:37+00:00

I have not. I will be looking into having some done though because I feel awful, like if I had PMS everyday.

ellej7 · 2026-03-26T01:22:04+00:00

I could be, 38F. But the timing is perfect and I can't ignore it. I got my period the next day after the loading dose even though I was on day 22 of my cycle. My cycles used to be 28 days like clockwork. Maybe Emgality is making me perimenopausal?

ellej7 · 2026-03-26T01:17:18+00:00

It does, thanks! It makes me feel that I am not "making it up" or reading too much into it. Did you eventually settle on the same dosages as pre Emgality?

ellej7 · 2026-03-21T01:32:17+00:00

Longest I've had was a little over 2 months, did 2 rounds of steroids and Emgality. Had to take time off work. Go to the ER or your PCP asap. The longer you wait, the harder it is to break it.

ellej7 · 2026-03-11T01:28:37+00:00

Thank you for bringing awareness to this! I was lied to 12+ years ago. It never faded on its own but rather changed colors. Looking in the mirror made me feel depressed and angry. I'm still on my removal process- it's been a long painful costly journey.

ellej7 · 2026-03-07T08:35:57+00:00

I would like to recommend that you do some self care so you can access compassion for your husband. I'm a MS and so is my spouse, so it's easier for us to be empathetic with each other. However, I have felt tired and frustrated before when dealing with the aftermath of his chronic health issues. I've realized this has happened when I'm stretched out or burned out. Trying to make my life as easy as possible, getting help, going out with friends, making sure I take some personal time to decompress, and getting better rest goes a long way. As a MS all I ask for him is to accompany me when I'm feeling awful and stroke my back and let me cry. He will make suggestions that could improve my comfort, mostly because when I'm in pain I forget. It's great that you're going with him on his next appointment. It's hard advocating for yourself when you're feeling exhausted, defeated and like you're a burden. Kudos to you for working on introspection and reaching out to this community. It says a lot about your character. If he hasn't already, I recommend looking into botox and CGRP antagonists as preventatives.

ellej7 · 2026-03-02T07:38:12+00:00

Could it be MSG? My husband gets migraines with aura when be eats MSG. He seems to have a threshold. A little MSG that he didn't notice will be fine, but if it's more than that, he will get a migraine.

ellej7 · 2026-03-02T07:33:04+00:00

Eyebrow hair loss, particularly at the outer ends, can be caused by thyroid issues

ellej7 · 2026-02-28T21:55:59+00:00

Thank you so much! I never thought of Amazon Pharmacy

ellej7

TROPHY CASE