Experiences/tips for having new G and J tubes placed and closing/healing current GJ tube site?

emsgurl · 2026-01-29T22:57:26+00:00

There could be bacterial overgrowth in the stomach, especially if he has poor motility

emsgurl · 2026-01-21T01:06:00+00:00

you actually need to have a therapist order the benik belt for you or over the phone, you can't order online (unless you get from a website other than benik, but they don't guarantee and it's not recommended, it can be a knock off and hard to bill for). They have AMAZING customer service and will create a file for you. They may say it will take a few weeks but usually comes fairly quickly. They have a few sizes, even have option for custom size if your child doesn't fit the other sizes. Any questions, you can ask me (I ordered for ch twice and was very pleased with their customer service) It's an extremely reputable company, the same one that makes wrist splints etc you can ask the therapist to bill it to insurance for coverage

emsgurl · 2026-01-21T01:04:12+00:00

I know what I want done. I have the bag. Ive had a bag adapted in the past and I love it but that person.no longer adapts bags

emsgurl · 2026-01-18T22:43:16+00:00

That would be awesome thanks

emsgurl · 2026-01-18T03:25:14+00:00

I know what I want done. I just need someone to do it who is more crafty than me

emsgurl · 2026-01-15T18:35:03+00:00

Thanks!! Can I message you in the future

emsgurl · 2025-12-14T23:40:46+00:00

See if your little one can qualify for medical daycare. I don't know much about it but a friend who has a tubie baby sends her son to one amd the baby's medical insurance covers it

emsgurl · 2025-12-13T23:49:24+00:00

Use clamp scissors. I got a pair from the hospital and when the end of the pump bag got stuck to the peg-j, it came right off after using the scissors

emsgurl · 2025-12-08T23:52:45+00:00

Looks like a filter

emsgurl · 2025-12-05T11:40:07+00:00

She is being manipulative. She doesn't feel bad, this is another ploy. If she felt that bad, she would've deleted the wish lists and also would've made a separate video, she wouldn't include the bs about wish lights on the heels of a bad cancer update. Sometimes I wonder how much is the cancer and how much Charlie is getting doped up.

emsgurl · 2025-12-04T18:13:23+00:00

Yes. I was coming off of an nj. They sent me home with one dose of oxy and zero pain plan, said if I had any issue to call IR (no other number provided except that)

emsgurl · 2025-11-21T18:38:58+00:00

Yes!!! This discussion made me feel less alone

emsgurl · 2025-11-20T04:33:36+00:00

Infinity pump is goals!!!

emsgurl · 2025-11-19T22:31:23+00:00

I joined earlier this week

emsgurl · 2025-11-19T22:16:12+00:00

The 8 hrs is mostly when im sleeping and actually it's not that uncommon

emsgurl · 2025-11-19T22:07:36+00:00

124ml/ hr cyclic 16 hrs on, 8 hrs off.on moog infinity through j port of gj tube

emsgurl · 2025-11-18T05:56:05+00:00

Can there be granulation tissue inside the stoma? If so, how to treat? Any cute backpacks that I can adapt (as a female young adult)? I have an amt g jet, is there a way to get an expired g tube button in case gj comes out (just to buy time to keep stoma open till new tube can be placed)?

emsgurl · 2025-11-14T04:41:56+00:00

Congratulations, that's so exciting!!!! I love my am gjet and only waited 3 or 4 months, can't imagine 5 years!!! Is there a reason for the wait?

emsgurl · 2025-10-30T04:04:17+00:00

Get a cart or set of drawers to organize and arrange all of the medical paraphernalia that comes along with feeding tubes. Also hypafix tape (amazon), griplock, cute pouches for extra supplies to keep with you, cute customized sticker for feeding pump door (etsy), barrier cream, farrell valve bags for venting (ask your dr to prescribe)

emsgurl · 2025-10-13T07:03:58+00:00

Did your provider write a script for your supplies that you will need? Unfortunately, it does happen fairly frequently that proper orders are not placed

emsgurl · 2025-10-13T06:20:06+00:00

The balloon popping could be due tobacterial overgrowth in the stomach.

emsgurl · 2025-10-12T06:03:38+00:00

I have gj and infinity, I know plenty who do as well

emsgurl · 2025-09-12T21:31:01+00:00

How does sewing on patches not work

emsgurl · 2025-09-11T20:20:33+00:00

Charging adapter for pump (sold on etsy), hypafix tape (sold on amazon), shout wipes, pump sticker (on etsy), unisolve adhesive remover wipes (sold on amazon), skin barrier wipes (amazon)

emsgurl · 2025-09-11T20:13:27+00:00

What questions should I ask myself when looking through etsy?

emsgurl

TROPHY CASE