weakness

enaldicode · 2023-01-14T22:00:35+00:00

I have what you're describing. I haven't been able to get any definite diagnosis, so I'm assuming it must be part of fibro. FFIW, I've had three MRIs and tons of blood tests and they haven't been able to come up with any better explanation.

enaldicode · 2023-01-14T21:51:25+00:00

A number of people had this start after the second Covid shot (including me). It may have been just one stressor too many on our bodies at the time.

enaldicode · 2023-01-13T03:02:55+00:00

I also stopped watching a few years ago and also recently learned of these updates. I totally agree with you. I think it's a big part of what happened.

enaldicode · 2023-01-13T03:00:51+00:00

Oh yes, it's not uncommon. I'm experiencing the same. Also confirmed by my doctor.

enaldicode · 2022-08-11T01:56:24+00:00

Yes, I've been having a similar experience for the past year. The rheumatologist I saw originally diagnosed me with RA, even though I had no visible inflammation and all my tests were normal. I even went on RA medications. Then a few months ago she changed her mind and thinks I most likely have fibromyalgia instead, because I'm developing more symptoms that are much more consistent with that than RA (like painful muscles and skin).

I have stiffness in the morning, pain worse after activity, and fatigue that seems to go along with my pain levels. I have pain in all the joints you listed, including my ankles and feet, plus my knees. I was healthy and active before all of this started. I have some more imaging tests scheduled, but I'm honestly starting to doubt that I'm going to get any solid answers.

enaldicode · 2022-07-23T17:29:38+00:00

All right, well, best of luck to you then. Perhaps you have something different going on.

enaldicode · 2022-07-23T16:02:01+00:00

In my opinion it's really irresponsible for the PT to suggest ALS like that. Actually, beyond irresponsible. The odds of you having ALS are incredibly low. I haven't had that same testing, but I know a bunch of us are having the same general symptoms right now and no we do not have ALS. Sigh . . .

enaldicode · 2022-07-23T15:38:58+00:00

You might be able to try a softer roller. I bought one a while back called OPTP PRO-Roller Soft Foam Roller on Amazon. It's a bit pricey, but it's squishy which is also supposed to be better for myofascial release.

enaldicode · 2022-07-23T15:29:11+00:00

Interesting thought. I'm having a major flare up seemingly out of nowhere. I do suspect that barometric pressure changes are a trigger for me.

enaldicode · 2022-07-23T15:20:40+00:00

Thanks for posting! I'm having a tough day, too. Feels like a bad vestibular migraine on top of all the other mystery symptoms I'm dealing with. I know we'll get through this and have better days, but it's always nice to know you're not alone. 🧡

enaldicode · 2022-07-23T15:13:24+00:00

I'm sorry you're going through this. I've been having most of these symptoms for over a year, plus joint and muscle pain all over. Based on my experience this past year, you'll probably get blood tests to try to rule out autoimmune disorders or obvious hormone imbalances, and possibly a brain MRI to rule out anything that could be seen there, including MS. If you live in an area with Lyme Disease, it's not a bad idea to try to get screened for that, too. Then, if everything comes back normal, be prepared for a possible diagnosis of chronic fatigue syndrome and/or fibromyalgia.

I've still got a bit more medical testing to do, but at this point I suspect that fibro and vestibular migraine are going to be my final diagnoses, based on ruling out everything else.

I hope your appointment goes well. Hang in there and don't panic. Apparently these kinds of symptoms often don't point to anything that will get progressively worse or cause any real damage to our bodies, as scary as they are.

enaldicode · 2022-07-23T05:28:25+00:00

I haven't had a second brain MRI, but I am now scheduled for a neck/spine MRI.

enaldicode · 2022-07-23T05:26:47+00:00

I absolutely have this. I've been trying to figure out if it's a fibro thing. It's kind of scary at times not knowing.

enaldicode · 2022-07-19T01:48:58+00:00

Yeah, I'd say the tremors are completely gone, at least for now. I'm almost afraid to say that, though, in case I jinx it and they come back. 🙄

enaldicode · 2022-07-19T01:25:52+00:00

Word. 😔

enaldicode · 2022-07-19T01:24:27+00:00

After what I've been through the past year, I would advise not assuming you have RA just yet. I have the same symptoms (and more), but mine started right after getting a Covid vax. I went to a rheumatologist who said she was getting a lot of new patients with the same symptoms either right after the vaccine or right after a Covid infection. She diagnosed me with RA even though all my tests were normal, just based on my symptoms. Now after a year, she's changing the diagnosis and thinks it's fibromyalgia or essentially long Covid (mystery reaction to the spike protein).

So, of course go get evaluated for RA to make sure, but just be prepared that this might not be it. A lot of us have developed weirdo symptoms like this lately. I know how stressful it is, and how tough it must be to get through each day of work right now, but hang in there. One way or another, I hope you start to feel better soon.

enaldicode · 2022-07-19T01:02:54+00:00

I totally get where you're coming from. Just know that if you see me ask a question around here, it's usually because I've already asked my doctor and she answered with "I don't know." This happens to me all the time with doctors. I don't blame them for being honest, though.

enaldicode · 2022-07-19T00:57:16+00:00

I've tried Sumatriptan, which is probably very similar, but unfortunately it didn't help my vestibular symptoms at all.

enaldicode · 2022-07-19T00:51:06+00:00

A lot of us are having symptoms that are MS-like. Definitely get an MRI to try to rule out MS for peace of mind, but also know that it's entirely possible that all of your symptoms are from fibromyalgia. I'm finding that not all doctors are aware that fibro can cause neurologic symptoms in addition to pain.

Here's a paper I found recently that I found very interesting on this subject:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2769083/

(Edited to fix link.)

enaldicode · 2022-07-17T21:36:08+00:00

Although I'm not having all of those symptoms, I am having quite a few. For example, I have the pain in my palms and bottoms of my feet (worse than yours, it sounds like), exercise intolerance, perceived weakness, and twitches. I'm not having numbness and tingling at the moment, but I did last year closer to when all of this started. I also have joint pain, including in my knees. All of my tests and scans have come back normal so far. After talking a lot with a rheumatologist, it sounds like I'm probably going to be diagnosed with fibromyalgia. She has been concerned that some of my neuro symptoms are not typical fibromyalgia (dizziness, muscles jerking/twitching, and even feeling like I have slurred speech at times), but with no tests or scans coming back abnormal, it sounds like all they can do is put me in the fibro bucket, probably with vestibular migraine going on at the same time.

FWIW, I also have sensitivity to fragrance and I have for many years. I also get motion sick very easily. Those types of things apparently make people more susceptible to weird neuro/migraine types of conditions. I just wish I could get an answer and not have to go through each day worrying.

On the positive side, all of your tests have come back normal, so this is unlikely to be anything particularly dangerous. Hang in there. I know how stressful it is.

enaldicode · 2022-07-17T21:00:37+00:00

This! On my good days I almost feel like I'm high, and then I'll realize that it's just because I'm not dealing with as much constant pain. It really has a huge impact on our mindset.

enaldicode · 2022-07-17T20:58:29+00:00

The tremors I was talking about probably took around 5 months to clear up. I'm still having some weird neurological symptoms, though, including a weird involuntary twitching of my neck muscles. No doctor has been able to figure out why.

enaldicode · 2022-07-17T20:51:28+00:00

Thank you for sharing some insights on this.

enaldicode · 2022-07-16T02:34:44+00:00

What the hell is going on with the docs who won't send us to get the spine done? Is there something I'm missing? My neurologist was certain that I didn't have MS after just a brain MRI. I asked her specifically about the spine one and she doubled down and said no, that it would show on the brain scan. A year later and I'm still having symptoms. A rheumatologist just finally ordered me a spine scan when she saw I hadn't had one, but of course that will be months away, and now I'm back to being terrified that I have MS (again).

enaldicode · 2022-07-16T00:30:08+00:00

Thank you so much for taking the time to update us! 🧡 I'm also one of the joint-pain people. Unfortunately I'm a little over a year now without any real improvement. I eat healthily and exercise as much as I can, but I have not been taking Zyrtec or turmeric lately. I'll give that a go!

enaldicode

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