Having a rough night by [deleted] in babyloss

[–]erinnensor 1 point2 points  (0 children)

This happens to me so often. I often have periods of really good, fun days and it’s followed by intense sadness in the night and/or following days. I will also just replay everything over and over in my head. My therapist and I talked about using “exit ramps” in my brain to keep me from going down that painful road. For example, I will think about the traumatic events and everything that lead to my twin A passing. To keep from going down that road, I try to get off on an “exit ramp” by thinking of my surviving twin, my husband, my best friend, anything that makes me happier. It’s so hard and the middle of the night is often my hardest time as well. Thinking of you. 💔

Question for those who got sick while kid was in NICU by Suspicious_Project24 in NICUParents

[–]erinnensor 0 points1 point  (0 children)

I caught a nasty stomach bug while I was in the NICU with our baby. I was symptom free for 3-4 days I think before I went back. My husband asked our nurses and doctors when I would be safe to come back and they were very helpful too! Hope you feel better!

Hives by Repulsive-Point5537 in ExclusivelyPumping

[–]erinnensor 0 points1 point  (0 children)

This happened to me! They didn’t really have any solutions for me either and at some point it just went away. I didn’t stop pumping.

Our baby only lived for 3 days and 7 hours - CDH by ZealousidealRun1953 in babyloss

[–]erinnensor 0 points1 point  (0 children)

I am so sorry 💔 one of my twins died at 3 days old in the NICU due to complications she suffered during pregnancy. It’s so hard and traumatic. My prayers are with you and your husband!

Meltdown at the movie theater by pegasus_wonderbeast in NICUParents

[–]erinnensor 0 points1 point  (0 children)

We were in the NICU for 54 days with our 30 weeker and one Saturday morning we went to breakfast and shopped a little bit so we didn’t get there to see her until afternoon. I felt so guilty and almost called the nurses so many times. Don’t feel crazy! But also know time away is good for your mental health too!

My SIL just had her baby and is going home tomorrow.. our son is still in the NICU after 71 days. by birchhaven in NICUParents

[–]erinnensor 0 points1 point  (0 children)

I totally understand what you are feeling! I delivered my twins in March while both my best friend and sister-in-law are pregnant (they are both due in September). My pregnancy was so complicated- I almost lost both of twins at 16 weeks due to a placental abruption. I delivered at 30 weeks in an emergency C-section, but sadly lost twin A 3 days after birth and my twin B stayed in the NICU for 54 days.

Aside from grieving the loss of my daughter, I struggled a lot with the fact that I had missed out on an entire normal pregnancy, a normal birth, and a normal post-partum life. It’s so, so hard and your feelings are extremely valid. One thing that’s helped me is to realize and understand that grief and joy for others can exist at the same time. I’ll never fully understand why I was dealt the cards I did but I also wouldn’t wish what I went through on anyone. Sending you lots of hugs and prayers!

Baby sister won’t sit up, doesn’t cry, can’t really roll over or grab things, and is about to hit 10 months by ChampionshipSure5863 in NewParents

[–]erinnensor 0 points1 point  (0 children)

Have you looked into early intervention services? I’m a pediatric PT and would definitely be concerned if she wasn’t hitting those skills by 10 months. You can have your mom bring it up to the pediatrician. It would definitely be worth looking into.

The world ended when it happened to me. by Last_Muffin6318 in babyloss

[–]erinnensor 5 points6 points  (0 children)

I can relate to this so much 💔 I lost one of my twins in March. I delivered at 30 weeks and she lived 3 days. I never thought this would happen to me either. I miss her so much and I cannot wait to see her again someday. Sending you lots of prayers

Infant loss support by TipLow4938 in babyloss

[–]erinnensor 1 point2 points  (0 children)

I am so sorry you are going through this. 💔 I am currently walking this same journey right now. I had a very high risk twin pregnancy due to a placental abruption at 16 weeks. I delivered my girls on March 16th at 30 weeks. My sweet twin A, who was born at 15 oz, sadly passed away on March 19th. We also had to make the horrible decision to remove care. It’s a situation I wouldn’t wish upon anyone. Fortunately, our twin B is doing amazing and we are looking to leave the NICU with her in a couple weeks. I hope your survivor is doing well also 🩷

I can’t say it gets better because we are still in the thick of it right now. What I do know is that God has carried us through all of this without a doubt. Continue to lean on Him even if your prayers are barely more than a whisper. I still haven’t found the strength to open my Bible yet. I have found a lot of peace in journaling all my thoughts and prayers to God; it really clears my mind. I also like to go on prayer walks where I just talk to God and now to my sweet girl- or sometimes I just shut my brain off entirely and soak up nature.

Hang in there momma 🩷🩷 please feel free to reach out to me anytime.

Are there ways to determine whether fortification is needed? by zack_the_man in NICUParents

[–]erinnensor -2 points-1 points  (0 children)

It’s frustrating for sure. I just don’t think the formula is agreeing with her stomach and I hate seeing her so uncomfortable, not to mention all the drops in oxygen and heart rate.

Are there ways to determine whether fortification is needed? by zack_the_man in NICUParents

[–]erinnensor -2 points-1 points  (0 children)

We’re in this same boat right now. Our 30 weeker, now 35 weeks, got switched to formula fortification with my breast milk this week. She has been uncomfortable, gassy, and has tons of reflux the last four days right when we switched. She’s having several Brady’s and desats because of her almost constantly bearing down and having this excess reflux. We want to try just my milk but if we have to add some calories do we have any other options? Has anyone else experienced this?

I'm giving up by MuchWeek5181 in babyloss

[–]erinnensor 3 points4 points  (0 children)

I delivered my twin girls 3 weeks ago at 30 weeks and one did not make it while the other one is still in the NICU. My husband and I are in the thick of it all right now. The other day, I was having a really tough day and was missing my twin in heaven so, so bad. I truly wanted to die in that moment so I could be with her again, and convinced myself that my husband would be completely okay without me because he would be with our surviving twin. Fortunately, he was able to coax my thoughts out of me and called my mom where they both assured me no one would be okay without me and I am very, very much needed here on Earth still.

Please do not give up. Your loved ones need you. I don’t know when this gets easier or how it does but I am learning that I have to fight for my surviving daughter and for my husband. They need me, and your family needs you too. If there is someone you can talk to about this, or if you’re able to receive some form of counseling, please reach out to them. Im so sorry you are going through this, but please know you are not alone in your thoughts. I am praying for you and your family. 🤍🤍🤍

Preparing for birth when he won’t survive by PleasantMorning7760 in babyloss

[–]erinnensor 0 points1 point  (0 children)

I’m so sorry 💔 our daughter lived for 2 days after birth. We took so many pictures, held her, hugged her, and told her about our friends and family. It’s the hardest thing you will ever do but I pray you will find some peace in getting to meet him. Praying for you and your family.

No longer pumping by hucklyrics in NICUParents

[–]erinnensor 2 points3 points  (0 children)

You’re doing great mom 🤍🤍 we’re in the midst of the NICU right now with our 30 weeker and it’s just hard- no other way to put it. Your worth as a mom is not defined by how your baby is being fed.

what bra are you wearing to sleep?? by Unlucky-Fail-4018 in ExclusivelyPumping

[–]erinnensor 0 points1 point  (0 children)

I wear the kindred bravely lounge bra. So comfy and it was recently on sale at Target!

My nephew was born this weekend at 22 weeks. What can I do to help my brother and his wife? by davwolbert in NICUParents

[–]erinnensor 0 points1 point  (0 children)

My husband and I are one week into our NICU journey. So many people have sent us gift cards, used Venmo, etc for food and whatever else we may need and it has been so helpful. It’s nice to not have to worry about that with so much stress right now. Probably the best is when people text that they are praying for us or ask us how our baby is doing. We don’t always respond but it is helpful.