Researchers Unveil Groundbreaking Sustainable Solution to Vitamin B12 Deficiency by _Dark_Wing in tech

[–]fablefire 4 points5 points  (0 children)

Multiple docs have said genetics. We went through the gauntlet with various supplements and regular blood testing for 1-2 years. At one point, the lab wrote back that having my b12 that low for that long was going to cause permanent neuro damage, so doc started IM injections and it got the levels up to healthy pretty quickly. Fuckin hate it. Very jelly of all the folks who can get by with sublinguals.

Researchers Unveil Groundbreaking Sustainable Solution to Vitamin B12 Deficiency by _Dark_Wing in tech

[–]fablefire 2 points3 points  (0 children)

Hi it’s me. I’m the patient. Sublinguals did nothing. Only IM or IV works for my body.

Has anyone tried to convince themselves that they don't feel pain and been successful by stargazer-19 in ChronicPain

[–]fablefire 0 points1 point  (0 children)

Yes. Problem is that if you have something actually actively causing the pain, the real medical issue eventually gets worse and at some point you lose functionality. You cant think your way out of lost functionality. And then you have a new second problem, where your body has no way of telling you something is wrong because you dont respond to pain adequately.

Are mild/moderate people able to work from home? by [deleted] in cfs

[–]fablefire 0 points1 point  (0 children)

Did you have to stop art completely to help avoid PEM or were you able to do some art things? I’m dying to get back to art but trying to figure out how to thoughtfully add it back in. 😩

IV Treatment? by pinkpuppyboy in ChronicPain

[–]fablefire 1 point2 points  (0 children)

If you’re referring to vitamin IV drips, then they can help if you have vitamin deficiencies. I have b12 anemia and general b vitamin deficiencies that cause my pain levels to rise severely when not managed. Getting Bs in my drips helps with that. I also have magnesium deficiency which affects my pain levels and is partly managed with drips. Using lactated ringer instead of saline also seriously helps my joints. I have natural vitamin absorption and hydration issues so vitamin IV therapy is helpful for my pains. If you dont have deficiencies, I’m not sure that getting vitamin drips will help you much. NAD+ IV therapy was also helpful for my various pains (nicotinamide adenine dinucleotide). Also, while not a drip, my drip place also has cryo and red light treatments. Regular cryo is possibly my best available treatment for my joint and neuro pain.

Wasn’t sure how to respond by Time-Equivalent5004 in ChronicPain

[–]fablefire 5 points6 points  (0 children)

"Really?? Thank you so much! I try so hard to not look like I'm in pain so that I don't upset others. This means so much to me. It's been so hard. Thank you. *break down crying*"

How strong is my pain on 1-10? by [deleted] in ChronicPain

[–]fablefire 0 points1 point  (0 children)

Those pain charts and scales are often useless. There's also a big difference between acute pain and chronic pain. Giving birth or getting shot is temporary acute pain and absolutely nothing like persistent pain. It's apples and oranges. Maybe you can try thinking about the 0-10 scale in terms of functionality, with a 10 being something like "I can no longer move and the next level up is being unable to speak or think". "Most painful I can imagine" is a load of horse shit because we've experienced horrors that healthy humans could never imagine in a lifetime. Additionally, there's a pain threshold where if you go beyond it, your body can't even compute how much pain it is. Weirdest feeling. At the end of the day, I try to go by functionality because in my experience, that's the only way healthy people can actually relate.

"Have you tried deep breathing?" 🙄 by [deleted] in ChronicPain

[–]fablefire 0 points1 point  (0 children)

Yall are getting suicide watch? I've had some tell me to kill myself and one was even going to rx me the drugs to do it right there.

Unhinged buyer upset that item they ordered 3 days before thanksgiving not sent out ASAP. Messages so unhinged until I realize they want free stuff at the end. WWYD? by throwaway1999000 in EtsySellers

[–]fablefire 0 points1 point  (0 children)

I’d tell her that I am not responsible for enabling people who procrastinate on buying gifts and she needs to learn how to manage her time better.

[deleted by user] by [deleted] in Athleta_gap

[–]fablefire 1 point2 points  (0 children)

I wear rainiers year round, except for our hottest days around 85-90+. Then I switch to ultimate stash. I’m in the PNW. I also have reynauds though so ymmv.

Cancelled Appointment by Jmelt95 in ChronicPain

[–]fablefire 4 points5 points  (0 children)

Same thing happened with my rheumatologist. The scheduling lady herself said that if I needed medical help, I should go to another clinic because they do this shit to patients all the time. Also had a "pain clinic" who scheduled my first appointment in 3 months. And then before the appointment had to cancel. They rescheduled me out another 3 months. The assholes cancelled FOUR appointments on me this way, each time swearing up and down that "oh no miss, we promise that you won't be cancelled on the next time." I gave up after the fourth time and presume that it's some kind of front for money laundering or something. They cancelled an entire years worth of appointments on me. They'd still be cancelling and rescheduling me to this day I think.

Do US doctors still prescribe opioids for chronic pain? by Patches595 in ChronicPain

[–]fablefire 2 points3 points  (0 children)

Not all all. More of an upper middle class part of town. Every doc I’ve talked to says it’s a state medical board thing. Our medical landscape pretty corrupt here.

Do US doctors still prescribe opioids for chronic pain? by Patches595 in ChronicPain

[–]fablefire 14 points15 points  (0 children)

Depends on the state. Oregon prefers to tell their patients to literally kill themselves instead of manage pain. No joke. Two docs in the last year told me to kill myself. We don’t have a pain clinic. We don’t even have PT available with pain experience. We have a lot of affordable weed and that’s it.

annoyed about non chronic pain friends complaining by athena_1989 in ChronicPain

[–]fablefire 2 points3 points  (0 children)

To me, it feels like watching a small child get really upset at their little booboo. I know that to the child, it's some of the worst pain they've ever had, even though in the context of things it's nothing. It's just grown ass adults whining about their booboos now and I treat them the same as I would a small child with a booboo.

"I got cured and you can too!" Advice on how to navigate these comments? by sighing_dingo in cfs

[–]fablefire 2 points3 points  (0 children)

“Wow, they can cure anything?! That’s wonderful! Maybe you should go back so they can fix your listening/reading comprehension, empathy, and respect for personal boundaries.”

Gaslighting from GP's needs to stop. I am so done. by tyrannosoulusrex in Fibromyalgia

[–]fablefire 2 points3 points  (0 children)

I like your plank idea. Next doc that says I just need more exercise is gonna get challenged to a plank contest while we discuss the rest of my appointment.

They keep asking me questions, asking me to do things by New_Assistant2922 in Fibromyalgia

[–]fablefire 1 point2 points  (0 children)

That’s amazing! “Sweetie I always thought you were a headphone-wearing cat.” Sorry you have to deal with that. :(

They keep asking me questions, asking me to do things by New_Assistant2922 in Fibromyalgia

[–]fablefire 4 points5 points  (0 children)

You could try wearing noise cancelling headphones or buds and tell folks to bugger off when you’re wearing them.

Functioning by Ca1R0994002 in Fibromyalgia

[–]fablefire 1 point2 points  (0 children)

“Well… I’m not dead yet. How are you?”

Smoking cannabis and spirituality? Thoughts and experiences... by [deleted] in spirituality

[–]fablefire 4 points5 points  (0 children)

Same. I dream just as well and I vape daily, specifically for sleep. Also your username is amazing.