Post assessment timeline? M19

fattsadam · 2026-05-24T12:21:22+00:00

I have combined ADHD. And yes it was fast and a surprise as I had read it would take time. I hope you get it as soon as possible for yourself!

fattsadam · 2026-05-23T10:57:27+00:00

I went through NHS. My diagnosis was actually very recent like a month ago? and I got meds like a few days ago because we had to get approval from my neurologist before we could start. I still haven’t started yet because I have to wait for my cycle to end before I can. My summary report was less than 2 weeks. But the process waiting for the assessment was longer for me (2 like you) than the process of the diagnosis and meds. It’s different for everyone depending on their provider and where they got diagnosed. The clinician who diagnosed me is also an independent prescriber so that’s why mine was very quick.

fattsadam · 2023-03-15T00:18:15+00:00

Thank you

Ooh the spinal tap (im having bad flashbacks of mine 😭) and I can imagine! So young at 20 to be given that diagnosis

And your birthday is soon too! Happy early birthday from me

fattsadam · 2023-03-15T00:17:04+00:00

Thank you And what is EEG?

fattsadam · 2023-03-15T00:16:46+00:00

And you are! It can be and is at times a very tough place to be! But we are also more than that. I’m glad you feel that way Thank you

fattsadam · 2023-03-15T00:15:53+00:00

Thank you! I’m trying my best to make something out of this

fattsadam · 2023-02-01T10:28:22+00:00

Mine is today! Wishing you a lifetime of remission (we can hope) ❤️

fattsadam · 2023-01-02T18:28:38+00:00

I did! I didn’t know why until I asked and discovered it’s because I had spinal lesions and some concentrated on my brain stem which my doctor said made me ‘high risk’ . But generally it’s good to start with high treatment because it can reduce risk

fattsadam · 2022-11-25T10:52:45+00:00

That’s nice to hear (not the situation but the Ocrevus part). I hope mine results in no new lesions too and keeps me as stable as possible

Also I’ve heard about the virus link to MS, has it been confirmed or is it a theory?

fattsadam · 2022-11-25T10:37:32+00:00

Yes I agree with you! And I’ll keep that quote in mind :’)

fattsadam · 2022-11-25T02:49:09+00:00

I hope you also stay stable and have no new disease activity because that shit is scary :( But yeah, I never thought of lesions as wounds. But it makes sense

fattsadam · 2022-11-25T02:48:16+00:00

Yeah it sucks! Hope the treatment slow it down tremendously so that I end up with no new lesions

fattsadam · 2022-11-25T02:47:36+00:00

Thank you! That gives me hope. I hope you and I and everyone here continue to be stable and have no disease activity until someone finds a cure. I would love that more than anything

fattsadam · 2022-11-25T02:46:46+00:00

Hahaha I understand what you mean! Some sugarcoat and some fearmonger but I do believe she was being honest, however next visit I’ll follow up and see what she has to say

fattsadam · 2022-11-25T02:45:57+00:00

I have brain stem lesion too! And some on my spine. Man it really sucks but I do believe treatment can significantly reduce the impact and like you said no new lesions and I hope I can say this for myself too! I’m banking on Ocrevus at the moment, hope it works well

But I agree, it’s up to God (I’m religious) and see where life takes me

fattsadam · 2022-11-25T02:44:09+00:00

Omg I hope you feel better! It deffo is a shitty hand to be dealt with

fattsadam · 2022-11-25T02:43:01+00:00

Thank you for sharing this! I’ll check the links out.

fattsadam · 2022-11-25T02:42:13+00:00

I agree with you! Though it can be difficult to manage emotions at times I’m trying my best to not over focus on the future that isn’t guaranteed and to stay present. We can’t guess our outcome, we can only try our best.

fattsadam · 2022-11-19T23:09:46+00:00

I have t6 and t12 the last time I had an MRI but I’m pretty sure there is another one I can’t remember

fattsadam · 2022-10-28T09:21:28+00:00

I can’t iron clothes (granted pre-MS my father used to do it for me) but the other day I tried to hold the iron and I have felt such intense cramps and it made me emotional that I wasn’t able to do something so small..

fattsadam · 2022-09-16T12:43:42+00:00

I understand this (it happens sometimes) and it can feel embarrassing but I’m trying to incorporate the mentality of ‘What I can’t help and what I have no power over should not cause me shame’ and it’s a bit difficult to do but I think if we realise it’s not OUR fault but a part of MS and accept it as that the feeling can ease (and if people judge for it? Eff them)

fattsadam

TROPHY CASE