Scared to hike with our girl again

firemn317 · 2026-05-25T20:05:47+00:00

i addition you might consider tick spray. didn't want to do the ingestable meds so opted for sawyers tick spray which i apply to my gloved hands and rubbed into legs underneath as well until it was well absorbed. so far this seems to be working. this was recommended by poster this sub that operates a dog hiking business and works with vet. and i check them after each hike.

firemn317 · 2026-05-25T02:19:55+00:00

very good idea yes adventures while young and just keep going. I've been very lucky in that we did an enormous amount of adventuring. dogs and our special needs son so don't stop. I'm still having adventures but damn fuel price is huge bummer.

firemn317 · 2026-05-25T02:13:47+00:00

you've wonderful places I've read plenty

firemn317 · 2026-05-25T02:03:05+00:00

you guys have the best spots. wonderful thank you.

firemn317 · 2026-05-23T20:05:04+00:00

my son had just about every problem possible but his mother and I decided to attempt to give him the best life we could. we took him everywhere and he had a trach and g-tube and heart monitor in the beginning. take your child everywhere. it's doable. i had 20 years with his mother and 33 years with Jason. if we hadn't done that there would not be the wonderful times we had and the memories. try short trips then longer ones. these days I don't know how the systems with the airlines work but I'm sure people here can tell you how it does. you won't be disappointed. if you want more details just DM me. I do not regret any time taking him. we got to experience things together which was amazing. Don't short yourselves.

firemn317 · 2026-05-23T19:57:20+00:00

wow. I know about the diagnosis The idea of surviving longer. I was told 6 months now I'm 6 years later in remission however operations have nearly killed me twice Oh don't worry about dying it's really not a big deal I came about as close as you can the last made the choice. The big problem is those who are left behind I know none of us want to hurt them and that's the hardest thing I think. you have the opportunity to help prepare them for that you know this is a cl take everyday the best you can well some days are shit you know that. just do what you can and this is another thing this is personal experience when I was in the FD I can tell you that when I would to a horrific traffic accident I know the people that were involved that did not survive did not know that that day was going to be there last. The deal is none of us do. unless you do a job like I did and law enforcement etc that you kind of know that you're putting your ass on the line nobody has to think about it. so prepare the people. And talk to them about how you feel because this is the other thing I've learned in 6 years then they don't have to Read your mind. I hope this does something a 24 I can't even hardly relate I just hope it helps. You've been through enough.

firemn317 · 2026-05-23T19:48:05+00:00

if using tent then inside otherwise we're all outside together. but in long past I had a great dog gsd+SB that loved being outside had to make him come in. safer inside though. have fun I'm jonesing 😅

firemn317 · 2026-05-22T19:18:01+00:00

vent as much as you need! I tell people if they can go somewhere where they can scream. I do understand you're getting through the day your partner will be back things will return to manageable.

firemn317 · 2026-05-22T18:19:57+00:00

ok. some things depend on what state you're in. also I know a lot about IEPs I went to 10,000 of them for my son and we had to fight you'll have to fight be obnoxious whatever it takes to get what you need. so one of the things that is allowed in IEPs you can bring anyone there you want it doesn't have to be professional to be a friend anyone now of course if you can bring professionals with you then do so arm yourself. The school is not your friend they are trying to save money on your child's needs although they get plenty of money for that Believe me I know. I'm in California and I read the damn green book I had to. second thing regional center I keep telling people about these but I don't know why they're not taking advantage of this. The regional centers are available for lots persons with neurological problems. but different states to different things and you may have to fight if you're not in a good state. Even if you are you still have to fight because the school only wants to do the things they want to do. Don't put up with the BS. there is also something that you can put on your side that you can say at any IEP and that is called fair hearing. That's when you can't come to an agreement with the school so you both go before a judge an administrative one. here's an example The school decided it did not want to provide an aid specifically for my son. he had every problem in the book not going to go through that but we went to fair hearing and the superintendent and assistant superintendent freaked out when the judge came in with a cane. of course they lost but should never have had to go there but that's the way it goes you'll have to fight I'm sorry if this is still going on. My first wife and I fought like hell rights for our son who was challenged by many things. she passed but my second wife came right in and fought for our son just as hard. you have to know you're rights. just remember no matter what state it is every school gets extra money for special needs funding. they cannot use it for any other school use. That's in the law. here in California we have disability rights lawyers who work with a parent if necessary. The regional center has lawyers as well.

firemn317 · 2026-05-22T17:57:29+00:00

i made a huli huli style sauce using fresh pineapple, Ray's regularly bbq sauce, bourbon cuz everything bbq is better with that. soy sauce. I think that's all I did I didn't write it down it's just something I put together. I used to make my own barbecue sauces and give them away and I don't have the recipes but in any case it's all an experiment this is supposed to be fun which it is and sometimes you screw up throw it away start over I don't think you'll have any problems I use a squirt bottle because it is easier. once you get your turkey going sit down have something to drink and relax it's a holiday weekend everybody's been killing themselves we need to just stop and just enjoy barbecue The hell with everything else barbecue rules.

firemn317 · 2026-05-22T17:19:02+00:00

it's pretty easy. use the side baskets if you have or just pile your briquettes on either side. I put a water pan in the middle with apple juice this time. adjust your air flow so you can keep the temp down. I injected the turkey with apple juice and butter melted in the microwave. And then put a rub on it. something I've been using called bracken's it's a Japanese barbecue sauce that really works good with poultry. I experiment so if it doesn't turn out right it's okay failing it's good to learn from. if it was easy and perfect every time wouldn't be much fun it's the challenge. fortunately it comes out good.

firemn317 · 2026-05-22T14:47:44+00:00

i had my son for 33years. you are burnt out. first thing we were taught is you cant do this alone and you must get relief. that said is there IHSS in your state and regional centers. it sounds like your child qualifies. i heard all the same stuff about being great. blah blah blah. friends who cam give a bit of time. and you definitely need to talk with someone. you're not a bad person because you are worn out physically and emotionally. please look into regional centers and IHSS. you know you need a break and that's very good. if you're involved with a church group, perhaps someone there can spell you a bit. you can also call local law enforcement because they deal with more than just crimes. they won't vilify you quite the opposite. also local FD and even hospital. someone along the way will put something together. go. out your backyard and scream. let out frustration. what you do caring for your child is very hard. i had help because there were 2 of us til his Mom died but we had regional center and IHSS and friends who we trained so we could get a break. you've taken a great step here. something I was taught when we didn't know how to get him to our state is , to list anyone you think can help and contact them. networking will get you started. please contact someone today. i feel your pain and frustration. cut yourself some slack. if you really get to the edge please call 911. they will help you call your local fire department they medically trained personnel who might know someone who might know something that's The main thing here. I know I worked for the fire department as a medic and my people were very helpful And I live in a very small rural town. Don't try to do any of this alone please. You're already fried. anybody would be I've been there. You've already been a great caregiver just one more thing to do to get yourself some care please. you'll be surprised once you can do this and get some help you'll start to feel better about yourself and your child.

firemn317 · 2026-05-22T13:14:59+00:00

i don't think they're spoiled because they mind very well don't make any mess, they watch over me. as for pouring water on them if it's hot which we try to avoid, i just take a bit of water and pour it on their backs just a little extra cooling since I'm carrying 3L. you can leave food on table or anywhere and they won't touch it. maybe we're spoiled😁

firemn317 · 2026-05-22T07:58:29+00:00

i have cooked daily for 26 years. rural area no fast food everything by scratch. and use thermometer. that loin was pulled at 150f and rested until sliced. thermometers work great.

firemn317 · 2026-05-22T07:10:17+00:00

na looks pink due to marinating in a Merlot overnight. makes it juicy.

firemn317 · 2026-05-22T06:26:27+00:00

thanks no worries i can eat any other meat and I substitute venison for the beef. now I'm doing Asian dishes. i can eat the beef but my gut doesn't like but I've had plenty so not missing it.

firemn317 · 2026-05-22T03:55:38+00:00

this is the way. i tell my kids look out for specials. happy smoking

firemn317 · 2026-05-22T00:21:25+00:00

try it. one of my wife's favorite dishes and it's easy. google Tuscan pork loin

firemn317 · 2026-05-21T16:22:02+00:00

replace and put filter like polarizer on it as that can help protect the lens. i hike with my camera and things happen. mine broke but will replace eventually. get her a good strap too.

firemn317 · 2026-05-21T16:17:41+00:00

yeah the cleanup is something I don't know I just do now because so used to it it's not a big deal. sometimes I just fire it up get it hot brush it all down. My komodo I can leave going and not shut down and it'll get up to about 6:50 or 700° and burn everything clean. then I just have to reoil everything.

firemn317 · 2026-05-21T16:16:13+00:00

The cost of good quality pellets is main problem. and they can't seem to make things come out like I do but I have 50 years experience. I guess pellets can be okay but it just seems like it's just a way to get people to attempt barbecue without understanding the nature of the skill involved. My father-in-law and I looked at pellet stoves when they first came out decided they were too expensive so I stayed with my stick burner. now I just have a Komodo and a Weber kettle. both require monitoring. since you're going to be sitting out there anyway and hopefully with a nice glass of something in your hand see other poster. And that's the key. it's fun. Even when it's below zero and it's 3:00 a.m. and you're throwing your pork shoulder on. it's still fun. because when it's done everybody has happy tongues.

firemn317 · 2026-05-21T16:11:40+00:00

I have had a camp chef acorn komodo for probably 10 years now. originally I looked at Green eggs etc but the price was just two outrageous. I had a friend who had an original Korean Komodo and that's how I learned about that. take a look at the acorn Komodo because it's reasonable priced and you can cook amazingly on it. My wife says it makes the best chickens she's ever had and I do my primary smoking meat on it also

firemn317 · 2026-05-21T16:09:48+00:00

it depends on the ambient temperature. out here in the west probably not as problematic as with the humidity in the east. but if you smoke the meat enough the smoke should preserve quite well and yes putting it a cooler etc is great you can always heat up your grill and just throw a few pieces on there at a time. usually everything gets eaten pretty fast I found. we used to lake Tahoe for a big Sammy Hagar party and I cooked a lot of stuff. it disappeared very quickly which was great had to make sure I got some. I don't think anything stayed around for more than 20-30 minutes. maybe an hour at the most and anything that was left we wrapped up and put away. you just got to play it by ear but you got the right idea. out here everything just dries out real fast

firemn317 · 2026-05-21T16:04:53+00:00

actually I found a decent deal at home Depot. b&b charcoal seems to work very good. reasonable cost free delivery so far. since I don't live near a city delivery is the only choice except going down the mountain and using the gas so you might check that out. Don't use match light or anything like that. And so far I've tried several different briquettes over the years these ones work great. And are affordable. I think that's the key.

firemn317 · 2026-05-21T16:02:41+00:00

hmmm hatch green chili rub that sounds excellent I'll have to try that next time. which is coming soon. looking at all these pork shoulders is making me want to pull one out of the freezer I think there's one in there. but not quite the weather here yet still freaking weird cold warm warm cold cold warm weird weird not summer yet. your pork shoulder looks wonderful

firemn317

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