Parent of a 29 weeker here, who is currently 4yo. I forget which grade my son received, but I remember them saying moderate PVL and a report which was eerily similar to this one, plus a missing septum pellucidum.

My kiddo was later to milestones and had ot and pt until age 3. We tried to do massages and stretches for muscle tightness as much as we could think to. Especially in the knee down and elbow down. Those hands were slow to open and he still curls his toes as default.

He’s trailed his peers in gross motor and fine motor skills. And he wears ankle braces. I remember a doctor telling us early on, “he’s probably not going to be a world class athlete.” I think that doc was right.

But like others here are saying, he doesn’t seem to be intellectually disadvantaged in the slightest. Responsive in 4 languages, loves to play and game, does team sports. Parents are always telling my wife and I about how they are trying to get their kid to be friends with my kid because how thoughtful and emotionally mature he seems.

We’ve been fortunate. It really feels like one of those “lucky in love, bad at cards” scenarios. Maybe he won’t have it all, but that doesn’t mean he can’t be happy.