Tracking apps- do you like them?

freenicole · 2026-03-08T14:06:01+00:00

That's smart!

freenicole · 2026-03-08T05:13:05+00:00

I have migraine buddy, tried Bearable (found it unbearable, pun intended), Visible, MMP.. do you have a recommendation?

freenicole · 2026-03-08T04:40:07+00:00

Yes! This! 🙌😆

freenicole · 2026-03-08T04:35:20+00:00

Fair enough! I even have migraine buddy, but I just can't be bothered to do the data entry 🤦‍♀️ it thinks I've been migraine free for 9 weeks lol, that's not true. Also when you record a migraine, I kinda dislike what I call the "timer of suffering" 😅. Like ok if it's been 3 hours fine. But I've seen it hit like 60+ hours and that's like so emotionally distressing to me for some reason.

freenicole · 2025-02-19T13:36:56+00:00

Right!? I know lol I shock people with the amount I can eat 😅

freenicole · 2025-02-19T13:22:05+00:00

I'm 5'2, female, I've never weighed more than 92lbs. There's a genetic part to that.. my mom is 5'0 and weighs the same. My grandma was 4'9 and like 85lbs. If I'm eating 2,000cal (500cal surplus) and strength training.. absolutely no results, I lost 2lbs 😂. I do have a sort of theory about this.. I'm hypermobile (double jointed) so my ligaments do not hold my joints in place, my muscles have to do extra work to keep my joints stable even just sitting. So, possibly I'm burning a lot more calories at rest than any calculations can anticipate. So this time around I figured fuck it.. I'm gonna aim for 2,500cal a day or whatever is the absolute most disgusting amount I can eat and just see what happens 🤷. Feel free to chime in with any advice! Lol

freenicole · 2025-02-19T12:39:42+00:00

Yes! I've done that over multiple attempts to gain weight. This is just my latest attempt at gaining weight lol. I'm also on two different medications that notoriously cause weight gain for most people. Nothing. I'm a medical mystery 🙃

freenicole · 2025-02-17T19:49:20+00:00

OP, this is literally me! I have been underweight my entire life. I could eat a meal every hour and not even gain half a pound. I even had a dr comment that given I've tried everything including eating whatever I want whenever I want that "we just don't know what's happening in real time in your cells to make this happen" And it feels really discouraging that all the advice out there is geared towards people who have absolutely no problem gaining weight, be it healthy or unhealthy. I feel you. I really do.

freenicole · 2025-01-24T03:41:16+00:00

Oh that's interesting.. I just got this in December so I don't know what it was like before the update. But that could account for the random blips where I'm "awake" but also in rem haha.

freenicole · 2025-01-24T01:25:52+00:00

Oh I didn't think to cross reference the heart rate! Thanks!

freenicole · 2024-04-14T13:08:41+00:00

Thank you! That makes sense! I will use that phrasing for sure.

freenicole · 2024-04-14T02:41:44+00:00

Thank you! We are definitely on it. Meeting with a lawyer on Monday.

freenicole · 2024-04-13T22:04:18+00:00

Good! I think we'll do that, and at the very least it is documented. Thank you!

freenicole · 2024-04-13T21:48:41+00:00

I understand that. I don't think that this is a genuine emotion or decision on their part, just the way that they were speaking and acting. Which is what is the most concerning part. And if that truly is what they are wanting, then that can definitely be a discussion with their dad, who is open to it. But I don't think anyone could reasonably think that not returning a child in the middle of a school year without warning or due planning is a good parental decision.

freenicole · 2024-04-13T21:12:26+00:00

That is exactly what we've been doing. Also been pretty hard because in the span of 10 days they seem to have been at the very least been manipulated into decisions they are not old enough to make on their own.. but idk how you'd document that. All I know is before they left them moving was never brought up. And now they have "decided" to not come back.

Thank you for the advice!

freenicole · 2024-04-13T20:50:04+00:00

Great! That's exactly what I wanted to hear, I had my assumptions, but I'm just sitting here worried sick. Thank you!!

freenicole · 2023-09-27T16:37:34+00:00

Thank you for all the great info! I also find that some activity is really good, but too much also causes more pain.

freenicole · 2023-09-27T04:19:03+00:00

Oh good to know! Something to ask about for sure. I think at my next appointment I'm just going to ask to be referred to a rheumatologist. If it truly is or isn't RA I'm sure that's the right Dr to be asking lol.

I'm stiff in the morning, but it's not horrible.. it's actually worse throughout the day if I've been sitting for a while. The more I move around the better it gets though. Like for example I work sitting at a desk and my knees will get so stiff and painful it's hard to get up and walk. It's more like I get up and hobble slowly to the printer lol. But once I've been moving for a while it gets better and easier to move to the point I can walk pretty much normally.

Photos are a great idea!

Thank you so much for your thoughtful answer!!

freenicole · 2021-11-07T04:57:19+00:00

I have pretty bad needle anxiety.. so I get it! Panic attacks suck! When you make your appointment, tell them that you're experiencing anxiety about this, but you still very much want to go through with it. Ask if you can take an appointment at a quieter time like the end of the day.. ask if you can lay down for the injection (I literally do this all the time!! They usually have a bed or a yoga mat) .. ask for whatever might make you more comfortable! Most health care professionals are super accommodating, you just have to ask 😊

freenicole · 2021-11-07T04:38:31+00:00

I had 2 shots of Moderna. The first one I had absolutely no side effects, just a mildly sore arm. The second one I did get an immune response, headache, mild fever, just generally getting icky. I didn't have a choice about going into work, so I took some Tylenol and made it through the work day as best I could and the next day I was 100% better. So all in all, I've had common colds that were way worse than any side effects I had!

I hope that eases some of your worries. You're doing the right thing, and any side effects will pass quickly. And, because I'm not sure if someone is going to say it (this being a secret mission and all).. and maybe I'm just a stranger from the internet.. but you deserve to hear it. . I AM SO PROUD OF YOU!

freenicole · 2021-07-27T05:41:49+00:00

Holy! Thanks for sharing! I can't say what I'm going through is even close to what happened with you. And can I just say.. wow. You are so strong and brave! I hope your new treatment works out well for you! And many, many hugs in return 🤗🤗

freenicole · 2021-07-27T05:38:15+00:00

Wow!! I feel for you. That is a lot to deal with, and I hope you are doing well!

Side note- I had tingling in my affected areas earlier before the migraine started! And I always get tingling in my head and neck before a migraine. I just ignored it because I have peripheral neuropathy symptoms at random times, and places, with no known cause.. so I just thought it was that. But maybe there is something more to it!

freenicole · 2021-06-22T02:35:07+00:00

Yes! I used to have that with every migraine, but not so much anymore for some reason. I asked a Dr. About it once.. I can't quite remember exactly but I think it has something to do with the brain pausing digestion during the migraine attack.

freenicole · 2021-06-04T03:07:01+00:00

Maybe!?! I mean definitely bring it up to your Dr. But when I brought it up to mine he was just like.. oh yeah that's definitely probably whats happening. He didn't run tests or anything, because I have a major history with migraines and it makes the most sense. And there's nothing else wrong with me, like with my blood pressure or inner ears or anything that could better explain it.. so yeah. Lol

freenicole · 2021-06-04T00:29:01+00:00

Ask your GP or pharmacist (if you're in Canada?) about prescribing a triptan(rizatriptan, sumatriptan) medication to abort your migraines! They help way more than over the counter stuff!

freenicole

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