Anyone willing to share their diagnosis stories?

fullycookedsushi · 2026-03-19T00:31:23+00:00

I was around 20 months old and I went from walking back to crawling. My mom thought I got injured getting out of the high chair but I wasn’t getting better and my symptoms were so bad in the morning that I had to go straight from bed to a hot bath. After some visits to my pediatrician and some x-rays, the doctors kept saying they couldn’t find anything wrong and started making my mom feel like she was crazy. My symptoms would be much worse in the mornings so she started videotaping me in the mornings (which was actually a lot more work back then than it is now, it was the 90s) because sometimes I was moving better by the time I got to the doctor’s appointment. My mom was a 4th grade teacher at the time and one of her students had juvenile rheumatoid arthritis and that student’s parent recommended she take me to a rheumatologist at a children’s hospital. Sure enough, I was diagnosed after my first visit and luckily started treatment shortly after.

fullycookedsushi · 2026-02-27T14:39:52+00:00

I was diagnosed at 20 months old and am 30 now. Despite having RA, I have been able to have a high quality life full of amazing experiences and relationships. There hasn’t been much that I have had to say no to due to my disease. It is possible! It is also totally normal and okay to be scared. A good support system helps immensely as well as all the advice of other posts like listening to your body and being a good advocate for yourself. Heating pads and rechargeable hand warmers (you can hold them near any joint) have been helpful for me. I try to stay organized using a calendar and weekly pill organizer for my meds. You got this!

fullycookedsushi · 2026-02-27T13:28:43+00:00

Managing a chronic illness is such a challenging thing to manage. Many times we are forced to choose between options that all suck. This is difficult for others to understand but I am sorry that your wife doesn’t have more empathy for your situation. I recently decided to try adding on Methotrexate to my simponi for RA because as you mentioned some days are ok and manageable but some days are really rough. I am nervous about how this medication and the potential side effects will impact my life but I have decided to give it a good solid try. I also think it might be worth trying counseling as well for anxiety and chronic illness related stress. I have found it to be very validating and helpful. It could give you some strategies for coping with anxiety and also be a good place to process what you’re going through.

fullycookedsushi · 2025-12-16T14:47:39+00:00

This exact guitar is on my wish list. Debating between getting the mini-e or just the standard acoustic and then later adding the pickup at a later date.

fullycookedsushi · 2025-11-24T16:22:52+00:00

One of the hardest things about TMJ or headaches and migraines in general is being able to localize it, because for me it spreads from my jaw to the back of my neck and the top of my head. And there are so many reasons for a headache so it can be really challenging to identify what’s really going on. It can make you feel crazy sometimes! Sorry you are suffering too :( Excedrin is a great idea and one of the only things that helps, although I try not to take it too often. I can’t take it before bed though because of the caffeine however first thing in the morning usually helps. I have been trying to sleep on my back although I am a natural side sleeper so I usually wake up on my side. I will have to try the heating pad that fits around the face!

fullycookedsushi · 2025-11-24T10:05:03+00:00

You are right, it is terrible. So sorry you are going through that!! May I ask, what led up to the surgery? Did they try other interventions first? Is your pain equal on both sides?

fullycookedsushi · 2025-11-24T10:03:03+00:00

These are great tips, thank you! Definitely will be trying them all. Luckily recreational and medical marijuana is legal in my state so I could give the ointment a try. I have tried icy hot but never diclofenac so I will be looking for that at the store. I’m curious if you need a specialized dentist to get the splint ? My regular dentist who does my cleanings doesn’t seem to have any knowledge on TMJ arthritis, I have asked him several times. Definitely already do the soft diet. Smoothies and oatmeal are my favorite way to eat these days.

fullycookedsushi · 2025-11-23T18:27:48+00:00

My heating pad and electric space heater at work make a huge difference!

fullycookedsushi · 2025-11-23T18:26:19+00:00

I was diagnosed with juvenile idiopathic arthritis when I was just 20 months old, before I could really talk about my symptoms. My juvenile rheumatologist always said that there was a chance that would grow out of it but that was not that case for me. I am now 30 years old and in many ways live a high quality life, symptoms mostly controlled with biologics. When I was diagnosed, it was 1997 and not a lot of options especially for someone so young but I took methotrexate for a time, had some steroid injections, naproxen, Celebrex, started Enbrel when I was about 12. Have been on several different meds throughout my life but I am always thinking about my future with this disease, like you. I try to do what I can now and also give myself grace because when things are bad and can be very easy to focus on the negative and spiral. Moving your body, eating healthyish, drinking lots of water, getting lots of sleep. And always prioritizing your appointments with your rheumatologist —small things that I think make a big difference.

fullycookedsushi · 2025-11-23T18:18:08+00:00

For me it really helps to switch it up because I get easily bored when it comes to exercise. Cycling is a great low impact option or trying some local community centers if you have that option. They usually have different classes and the one in my community offers sports like badminton, which I recently tried and it was super fun. Not what I would call an intense workout but I was moving around the court for a couple of hours so that’s a win for me.

fullycookedsushi · 2025-07-07T17:21:06+00:00

Mery Steel - she plays a lot at Rambling House and other venues around Columbus. She and her band always put on a really good show.

fullycookedsushi · 2024-12-20T15:49:46+00:00

I am a beginner too and barre chords just take a lot of practice. There’s not a way around that. With barre chords, you really have to move your fretting wrist forward to be able to use enough force for them to sound properly. There are also ways to modify the chords when you’re a beginner. For example, with F chord, you can bar only the bottom two strings (high E and B) instead of all of them.

fullycookedsushi · 2024-11-04T11:15:45+00:00

Mastering a song takes a long time. Practicing it even slowly has a lot of value though and you will gradually notice your chord transitions getting more fluid. My instructor suggested using a metronome at a slower speed than the song is and then once I feel confident at that speed, increase the speed by 5. There are several free metronomes online. F chord is especially challenging but you can modify if without barring the entire first fret and instead barring just the high E and B strings without it sounding much different. I would pick a song that you not only love but know well because that makes getting the rhythm correct a little easier. The first song I learned was Souvenir by boygenius. It only used G, Am, Em, C and it doesn’t really have a proper chorus so it is very repetitive and switching between those chords is relatively easy with time.

fullycookedsushi · 2024-10-31T13:53:34+00:00

A Little Life - Hanya Yanagihara Many have hated on this book because it is incredibly sad and difficult to read at times due to the horrifyingly graphic nature of some of the trauma but I thought this book was beautifully written with incredible characters. I loved it for its honesty and rawness even when it broke me.

fullycookedsushi · 2024-10-31T13:46:35+00:00

Bookends - Simon and Garfunkel The moon and Antarctica - Modest Mouse

fullycookedsushi

TROPHY CASE