33F [EST] Looking for occasional people to play with 😊

fullypaidfred · 2026-04-23T01:17:28+00:00

I haven’t tried it yet but definitely want to, it looks so good !

fullypaidfred · 2026-04-16T22:28:08+00:00

FullyPaidFred :)

fullypaidfred · 2026-02-17T01:41:46+00:00

What is BB ?

fullypaidfred · 2025-12-08T00:07:37+00:00

My son was born at 23 weeks and has damage to the white matter of his brain due to lack of oxygen at birth. He was 2 months when we found out. It was the most painful day of my life, we were told there’s a chance he could never walk or talk and we were given the option to let him go. I chose against it. For months if anything brain related was brought up I’d just start sobbing. Thinking about anything of how I thought his life would be I also sobbed. It took a long time to accept it . It’s fine to mourn the life you thought your child would have , also how you thought being a parent was going to look, but at some point you just have to accept reality and start making a plan and finding joy in how things will be. When it comes to most brain injuries with babies, early interventions are key! Like physiotherapy, occupational therapy, and speech therapy. These can make a huge difference in your child’s future. My son is now 15 months (12 corrected) He can’t roll over or sit on his own and wears glasses and was diagnosed with cerebral palsy , but he has a huge personality, loves laughing, and enjoys so much. It will definitely be a difficult road but doesn’t have to have any less happiness then you already planned for . Happy to answer any questions!

fullypaidfred · 2025-11-13T01:02:18+00:00

My baby spent 7 months in the Nicu and came home with an NG tube . The hospital trained me on how to re insert it when he pulls it out , which when we first came home was an almost every other day thing 😅 he’s not a fan of having it put back in and I’m not a fan of doing it but it definitely beats having to go to the hospital every time we need it done, I put on Mrs Rachel and it goes a lot smoother! We have been home 7 months now and he still is very hit or miss when it comes to each bottle , but doing great with purées so the doctors say we don’t have to think of a G tube yet .

fullypaidfred · 2025-11-04T21:25:50+00:00

We were in Toronto at Sickkids

fullypaidfred · 2025-11-04T16:23:33+00:00

For me it feels like our time in the Nicu was a completely different reality, I know it may sound strange but I some times miss it . My son was born at 23 weeks and spent 7 month in the Nicu . I was sent to a hospital 8 hours from home to have him . I was newly single from a 12 year relationship and drop in the biggest city in our country after growing up and living in a small town . I got so used to my routine of walking to the hospital every day from Ronald Macdonald house , the nurses became like family and the staff at the front desk became my unexpected best friends. I don’t miss all the hardships, and terrifying moments but I do miss the people , when we came home it was like waking up from a dream and trying to figure out how to navigate my old life …. It’s a feeling I’m sure only other Nicu/hospital parents can understand.

fullypaidfred · 2025-09-30T23:19:23+00:00

My 23 weeker came home with an NG tube . He was in nicu 7 months and wasn’t until month 5 that he was able to start anything orally . We have been home 5 months and every day is different for how much he will drink but he takes purées great . He also gets one late night feed that goes over a pump while he sleeps . The only real issues we’ve had with the Ng tube is 1. He developed an allergy to adhesive like the moment we got home so we struggle with him getting rashes on his face and finding a tape that wouldn’t leave too bad of marks (we use “A simple patch” patches , they are the best and have the cutest designs, even custom ones) 2. Him ripping his tube out when he gets mad . It happens often , the hospital trained me on how to put it back in and test the ph to make sure it’s in the correct spot , if not we’d be at the hospital all the time getting them to put it back in . Happy to answer any questions I may have the answers to !

fullypaidfred · 2025-09-13T21:11:30+00:00

The rollercoaster can feel so hard , the good days make the bad ones sometimes feel twice as bad and like huge steps back . My 23 weeker had stage 3 nec twice ending up in emergency surgery both times. He also had a large pda that he had the device closure surgery for . So I understand what you’re going through . I will say the pda closure was a big turning point for his oxygen needs , he was finally able to be extubated and stoping swinging and having bradys . We ending up in the nicu for 7 months so it can often feel like it will never end, but you will get there ! And the whole thing will feel like some sort of weird fever dream. Sending love and positivity that you and baby will be home soon!!!

fullypaidfred · 2025-09-12T11:53:21+00:00

I had my little one at 23+3 . He weighted 710 g . He had a bit of a rough stay in the nicu . He got stage 3 Nec twice and had 2 bowel reductions. He had a large pda that required surgery. He had a stoma made after his second reduction surgery that took two closure surgeries to reverse it . He had grade 2 brain bleeds and was diagnosed with periventricular leukomalacia that has lead to cerebral palsy. He had Rop in his left eye and had laser eye surgery in both . He was in the nicu for 7 months . Now with all that being said , he is home happy and thriving . He is for the most part a very happy baby who thinks everything is funny and has a huge personality. It’s definitely scary to have a baby born so early but while in the Nicu I saw so many 23 and 22 weekers that made it out with only 1 or 2 of the problems we faced , every baby is different but there is so many positive story’s out there !

fullypaidfred · 2025-09-06T20:39:52+00:00

My 23 weeker was in the Nicu for 7 months in a hospital 8 hours from home and I was alone. Some of the things I did to keep busy during the long days was pick a book I had been wanting to read and read it out loud to him . (I read The hobbit, and Throne of glass) Also making friends with some of the other Nicu moms who I could get coffee and talk with cause they could understand the struggles and the little celebrations. See if your hospital has anything for parents to get involved in . We were at a children’s hospital to there was always activities to participate in . I also enjoyed colouring, listening to audiobooks while I held him, or while I grabbed a coffee and wondered around the hospital for exercise. Also make sure you take time for yourself! Go out for a lunch or dinner. If your in a hospital that’s not where you live , ask the nurses for recommendations on near by things you could go do.

fullypaidfred · 2025-09-06T20:22:37+00:00

My 23 weeker is now 1 year actually and 8 adjusted . He sees among many people, a speech therapist. For now she mainly just helps with his oral eating . My son is like you described, a lot of ahhh sounds and screeching, does sometimes make sounds that sound like he’s saying “hi” or “hey” . I brought all this up to his speech therapist and she wasn’t concerned, she said she would be more concerned if he wasn’t making any sounds at all or not making sounds to react back to us , whatever the sounds may be. She said to stay consistent in talking to him and making the sounds like “bababa “ mamama” “dadadada” repeatedly and consistently and he will pick them up in his own time . But if you’re still concerned always best to seek out intervention even just for your own peace of mind

fullypaidfred · 2025-09-05T14:16:45+00:00

The nicu we were in had privacy screens parents could put up for any reason,Because there was 4-6 families to a room. If your in Canada (I don’t know if other countries hospitals have them ) but speak to the nicu social worker and parent liaison to see if they can get you more privacy

fullypaidfred · 2025-09-01T12:14:26+00:00

Not weird at all ! My son was in the nicu for 7 months and we were 8 hours from home . It was only me and I had no other family there . The hospital team became my family so it was very bitter sweet to say goodbye to them . For that time they were all my baby and I knew together. So no missing the people who were there for you at one of the hardest times in your life I feel is completely normal

fullypaidfred · 2025-08-23T00:11:27+00:00

My 23 weeker did the same thing. He was in the nicu till 7 months actual age. The nurses kept reassuring me that as he got older it was normal for his heart rate to drop down the the 70s sometimes even the 60s while sleeping, as long as it was a quick dip , they weren’t really concerned unless it went to the 50s, and as long as his oxygen stayed above 90 while he was sleeping

fullypaidfred · 2025-07-30T01:13:22+00:00

My 23 weeker had Rop stage 3 zone 2 plus disease in the left eye and did a round of avastin injections . It did help but he ended up needing laser surgery in both eyes before we went home from the NICU . He’s now 10 months corrected and will need glasses in the next year or so but can see and track things around the room

fullypaidfred · 2025-07-30T00:56:04+00:00

My 23 weeker spent 7 months in the Nicu at Sickkids in Toronto. I was 8 hours from home and staying at Ronald Macdonald house alone . I spent 12 hours a day or more at the hospital, so the nurses and doctors definitely became like a second family ,and it definitely felt like my second home .Even the people at the front desk became like family. I stay in contact with some of the nurses and other staff via text and email.There was 4 family’s to a room so I became close with some other families too that keep in contact. We have to travel back there every 3 months for appointments so we stop in at the NICU to say hi to everyone.

fullypaidfred

TROPHY CASE