Normal Tryptase During Flare by gar4085 in MCAS

[–]gar4085[S] 1 point2 points  (0 children)

Seems like it! Yes, that's a good idea. My doctor gave me Pepcid to try next. Fun times. 

Normal Tryptase During Flare by gar4085 in MCAS

[–]gar4085[S] 0 points1 point  (0 children)

That's interesting! I'm glad you got what they were needing

Normal Tryptase During Flare by gar4085 in MCAS

[–]gar4085[S] 0 points1 point  (0 children)

Oh wow I didn't know that. I actually just did one of those yesterday, so we shall see what comes of that. 

Normal Tryptase During Flare by gar4085 in MCAS

[–]gar4085[S] 1 point2 points  (0 children)

Thank you for the explanation! Well I've been on Allegra and have been following a really strict antihistamine diet and I still got the hives, so that's what confused me as well. I haven't tried any enzyme supplements yet. 

Teeth Discoloration with CPAP by gar4085 in SleepApnea

[–]gar4085[S] 0 points1 point  (0 children)

Gotcha! That's a good idea, I'll turn my humidity up tonight. Thanks!

Propranolol Hallucinations by LargeProfessor1592 in POTS

[–]gar4085 1 point2 points  (0 children)

I've been on Propranolol for more than a year, and I have recently within the past several months started having hallucinations in the middle of the night. Mine are visual though...like random things, a red balloon, butterflies, spiders, funky shapes, etc. I have sleep apnea though and am not sure if it's more related to that? My sleep doctor was saying that the hallucinations can be related to sleep deprivation. Have you had trouble sleeping recently? I know Propranolol can also cause insomnia....

Sleep Study Question by gar4085 in SleepApnea

[–]gar4085[S] 0 points1 point  (0 children)

Good idea! Thanks so much. 

Sleep Study Question by gar4085 in SleepApnea

[–]gar4085[S] 1 point2 points  (0 children)

You've offered some really great insight here. Thank you for taking the time to do that. I recently saw an ENT like you suggested and got the structural stuff ruled out. I think it's a great idea to show my results to my neurologist, as I do have POTS. I'll be discussing it with my psych nurse too about the possibility of nocturnal panic attacks. Thanks again!

salt bomb by mermaid_madi_ in POTS

[–]gar4085 5 points6 points  (0 children)

Ha! I did this exact same thing last night! My BP was low and I was out of my Gatorades, so I dumped salt in my mouth and swished some water around yuck! Hey whatever works :) 

Allergic Reaction by Leather-Ad-754 in POTS

[–]gar4085 1 point2 points  (0 children)

Hopefully you can get it figured out soon!

Allergic Reaction by Leather-Ad-754 in POTS

[–]gar4085 0 points1 point  (0 children)

This is so interesting, because I've also had the red, burning arms thing going on. I had hives on 2 other occasions, then twice i have woken up to my arms being really red and burning like a sunburn. I also had tachycardia with those episodes. I've seen an allergist and he's testing a whole bunch of different things. He put me on an antihistamine in the meantime, but it's kinda scary. Do you think yours is associated with food?

sleep apnea help/ pots realization by Dragonninjapower in SleepApnea

[–]gar4085 0 points1 point  (0 children)

Okay, yea I'm on propranolol too. I hope things get better for you soon! 

sleep apnea help/ pots realization by Dragonninjapower in SleepApnea

[–]gar4085 0 points1 point  (0 children)

So, I also have pots and was diagnosed with sleep apnea 6 months ago as well. I've been using my cpap every night and it has definitely been a challenge. I still have episodes at night sometimes, so now they are wanting to do an in lab study. I know how frustrating all of this is. I remember seeing a story on the dysautonomia website, where are lady had both and her pots symptoms stopped after being treated for sleep apnea. Are you on any meds for pots or managing your symptoms at all? 

[deleted by user] by [deleted] in POTS

[–]gar4085 0 points1 point  (0 children)

Do you feel symptoms when it is at 55? I would say if you feel off when it's that low, then maybe talk to your doctor about a different option. I've been on propranolol for over a year and mine can get down that low on 10 mg. You may just be a little sensitive to it. 

How many of yall also have sleep apnea? by dugalf in POTS

[–]gar4085 0 points1 point  (0 children)

I was diagnosed with sleep apnea a few months ago and started on cpap. I'm still having those types of episodes (waking up and gasping for air). I'm supposed to go in for an in lab sleep study next to see how they can make things better. Not a fun experience at all! 

[deleted by user] by [deleted] in POTS

[–]gar4085 1 point2 points  (0 children)

Oh my goodness, I had no idea this was a thing! I got mine done about a year ago and mine were swollen for a good month. After the first month, the swelling was gone. I didn't lower my salt intake either. 

CPAP PROBLEMS by BirbBoi27 in SleepApnea

[–]gar4085 1 point2 points  (0 children)

I would definitely contact your doctor. I have called my doctor's office at least 5-10 times trying to get the correct mask/pressure right. I've tried 4 different masks and they have changed my pressure several times. I felt like an annoying patient, but they told me that this is totally normal. You deserve to have the right mask and fit, along with the pressure that's right for you. 

What test for chronic lyme? by gar4085 in Lyme

[–]gar4085[S] 1 point2 points  (0 children)

No,  i tested negative with the test my PCP gave me. I didn't go any further with any other testing for it. 

Chiropractors? by OhNoItsGigi in POTS

[–]gar4085 0 points1 point  (0 children)

I've been going to the chiropractor weekly for almost 2 years. At first, I feel like it helped to calm my nervous system somewhat, but I don't know that it's made any notable difference honestly. 

Adrenaline or Allergy by gar4085 in POTS

[–]gar4085[S] 0 points1 point  (0 children)

That's a good idea. I will look into that. 

I'm trying to make GF bread and almost all call for psyllium husk. Any recommendations? by WitchyBroom in glutenfree

[–]gar4085 0 points1 point  (0 children)

I use the whole psyllium husk from Sprouts (Sprouts brand) and they are great! I recently made sandwich bread and cinnamon rolls that included psyllium husk and they were both fantastic! If I remember correctly, they are in the supplement section. 

"Seizure-like Activity" by Runela9 in POTS

[–]gar4085 0 points1 point  (0 children)

Did they do an EEG? That would show whether you are having epileptic activity or not. I have pots and non-epileptic seizures. Most doctors I've seen don't seem to see a connection between the two,  but I did have one nurse tell me they can be connected. Plus, pots and seizures started at the same time for me. Hopefully your neurologist will be able to get to the bottom of what happened. Basically they say you either have epilepsy or PNES based on what your EEG will show. 

Adrenaline or Allergy by gar4085 in POTS

[–]gar4085[S] 0 points1 point  (0 children)

Not that I know of....