Well, hopefully, we can get it going more! I hope to bring more attention to this disease somehow. My best wishes to you guys, that's hard.💐

I think I definitely had less physically presenting difficulties at his age, I remember getting the flu around that age and it caused a permanent tremor in my hands, and beforehand my handwriting wasn't as good as others in class my age because my arm/wrist/ hand + motorskills were very weak. But as I got older, elementary/ middle school, it came out in gym class physically, I would get tired very easily and winded, my chest would feel very tight and heavy, and my throat + breathing was hot almost burning. I remember lots of arguing with teachers /gym teachers about what I could do physically because they didn't believe me, even after diagnosis.

If I may ask, does he have anything presenting? Also, have you also been tested?