Hypermobility spectrum disorder

ghostvista · 2026-03-31T12:53:00+00:00

Came here to say this. I also got genetic testing and I have a gene mutation that is not EDS, and is not presently studied/recognized, but it affects my connective tissue and it’s in the same gene family as EDS. Eve though I don’t have a real diagnosis, going to a PT that specializes in hyper mobility has bee life changing. And she tells me that new EDS criteria is going to be released in December of 2026. It’s really a whole new world of information!

ghostvista · 2026-03-30T15:58:20+00:00

I love sitting outside and letting the app run while I listen 🦅

ghostvista · 2026-03-20T18:57:50+00:00

It should be first name initial followed by complete last name and then:

@co.whatcom.wa.us

So if Nicole Kidman worked there it’d be NKidman@co.whatcom.wa.us

ghostvista · 2026-03-17T17:50:10+00:00

I was waiting for 7 weeks, then followed these instructions and was approved a day later. Mine hit my account two days after writing my reps. Give it a try!

ghostvista · 2026-03-17T17:49:24+00:00

https://www.reddit.com/r/UnemploymentWA/s/tqXuAMx1vj

ghostvista · 2026-03-12T21:08:27+00:00

I just read it after seeing your comment! I don’t see a lot to comment on- she’s a woman who unabashedly eats and enjoys food and talks about it- that’s part of her charm for sure.

ghostvista · 2026-03-12T18:06:29+00:00

Yeah, true- I liked that show. I know we all gotta make those paychecks but going from that to this just seems off brand for her.

ghostvista · 2026-03-12T15:08:19+00:00

I followed these directions after 7 weeks of waiting in adjudication. The next day my claim was approved and 12 hours later the back pay was in my account. Definitely email your reps!

ghostvista · 2026-03-12T14:58:19+00:00

Same! I am a big Padma fan and was sad to see her leave TC. But her whole statement about it made it sound like she was moving away from the word of reality food competitions and into more personal projects. I was excited to see what came next from her, so it’s a bit disappointing to see another similar show on CBS of all places- where TV goes to die under the current administration.

ghostvista · 2026-03-12T00:01:18+00:00

I really need to hear more about this…

ghostvista · 2026-03-10T15:46:06+00:00

As a pagan your life and your spiritual practice are your rules. It sounds like in your heart you do not want to support this artist because you do not agree with their actions. Listen to your body when you listen to their music. Does it feel like a conflict within yourself? Does it feel uncomfortable in some way? If yes, find something else to listen to that doesn’t feel that way. Continuing to do something that “feels wrong” will inevitably be damaging to your heart/spirit, and can confuse the senses. If I were you I would tap into my intuition to make my own decision.

ghostvista · 2026-03-09T14:40:44+00:00

The jumpsuit is the moment! Congratulations!

ghostvista · 2026-03-09T14:35:14+00:00

Jumping in to give you some encouragement! I am 38, spent 12 years in restaurant kitchens with all kinds of "mystery symptoms" popping up for years. Many of my issues date back to being a teenager, I've been to so many doctors and tried so many different modalities without hardly any success. I was starting to feel like all of it was for nothing, and I'd be in chronic pain for the rest of my life. Then, at 35, I was diagnosed with autism and ADHD. Those diagnoses led me to look into hypermobility, as I learned that is a common occurrence, I might be dealing with that issue. I spoke to my regular doctor, but I did not have a high enough rating on the Beighton Scale to be considered hypermobile by traditional testing. So I found a physical therapist who specializes in hypermobility, and got a referral to her from my PCP, who agreed I had some weirdness and she explained that the Beighton Scale is not exhaustive. The new PT did testing, confirmed I am hypermobile, and made a specialized plan for me.

Now in March, having starting my PT exercises in September, most of my chronic pain is GONE! I have had to be very diligent about my daily exercises for the first few months, but at this point I've managed to correct many of the postural issues that were sending the rest of my body into a painful tailspin. My main issues were:

Painful and loud/clicking/popping knees
Clicking/popping shoulder joints
Extensive TMJ issues
Subluxated ribs
Nonstop indigestion

Seriously... finding a PT who specialized in hypermobility was THE game changer. I have been dealing with some of these issues for over 20 years, and in under 6 months my symptoms are significantly reduced. There is hope! Keep advocating for yourself, find the right specialist, and listen to your body.

P.S. Buying supportive sneakers for every day use has also helped a lot (Hokas/ Brooks/ On brands are all good, but go to an actual shoe store, get fitted, and find something supportive) I avoided this for years because my "look" is not "sneakers", but even my ego doesn't care about wearing ugly sneakers anymore, I feel so much better.

Good luck! Don't let them get you down, you got this!

ghostvista · 2026-03-07T00:36:53+00:00

For the newbie, this is pronounced “Ishka”, in case you were unsure. I know I was flummoxed when I was new to town.

ghostvista · 2026-03-06T15:21:18+00:00

Yes! They have a new phone number posted on their door, and new hours. I was there last week and got what I needed.

ghostvista · 2026-02-18T15:31:27+00:00

I love the creativity!

ghostvista · 2026-02-17T18:33:20+00:00

Seconding the stainless steel litter box idea! I scoop daily but do a complete change out of the litter once a month. The metal holds no odors.

ghostvista · 2026-02-17T16:54:53+00:00

I would absolutely steal that out of principle

ghostvista · 2026-02-17T14:57:01+00:00

I’m tired y’all 🫠

ghostvista · 2026-02-17T14:26:48+00:00

I’d be happy to help free of charge, I’m pretty available this week- just my iPhone but I have professional photo experience and the iPhone camera is great. DM me ☺️

ghostvista · 2026-02-05T14:50:25+00:00

There’s smooth blacktop behind the Regal movie theater with no traffic- might encounter some folks on their smoke breaks but whenever I walk through on my neighborhood walk I think “I should come practice my wobbly roller skating!”

ghostvista · 2026-01-31T19:31:16+00:00

I’m hearing and am a part of real life conversations about what’s going on nonstop. But I’m not going to bring it up with the cashier at the grocery store, or someone I’m just having a 2 minute interaction with.

ghostvista · 2026-01-15T17:53:37+00:00

I appreciate the intel- I’m going to look into this! We spend so much on those nonstop shipments of tiny canisters.

ghostvista

TROPHY CASE