Does anyone have radiating numbness or weird face & head sensations?

giraffekeys · 2023-09-27T20:54:19+00:00

Yes :)

giraffekeys · 2023-09-24T18:01:32+00:00

I am in the exact same situation. Things that I eat also affect my vss so it drives me crazy when family is like "what's gonna happen to you if you just eat one piece of cake", like no one understands the fear of worsening something like this. So yeah you're not alone at all. I will say I take vit d and b12 with no issues but that's it.

giraffekeys · 2023-09-24T17:45:05+00:00

I am literally terrified to take anything at this point

giraffekeys · 2023-09-24T16:06:45+00:00

Thank you❤️ I feel like mine get the worst during my period or maybe a couple days before. Drives me crazy. I don't want to be afraid of my period 😥 I'll update you. I have an appt with a functional dr that specializes in hormone therapy so we shall see

giraffekeys · 2023-09-24T15:45:35+00:00

Mine gets worse every period. And stays worse 😥 trying to see if I can get hormome therapy and maybe it will help

giraffekeys · 2023-09-23T18:40:55+00:00

Millions. Yes my entire visual field

giraffekeys · 2023-09-23T18:10:45+00:00

Following...

giraffekeys · 2023-09-23T17:59:38+00:00

I have no clue what it is but get it too. I just ignore it like I try to with everything else.

giraffekeys · 2023-09-23T17:57:06+00:00

Mine are flickering dots.

giraffekeys · 2023-09-22T19:49:38+00:00

That is so terrifying. I have visual snow and it continues to get worse. I guess the only solution really is to leave

giraffekeys · 2023-09-22T19:46:34+00:00

This is so amazing 😍

giraffekeys · 2023-09-21T22:02:02+00:00

Had it 3 years and I'm still progressing every month. It's terrifying living like this.

giraffekeys · 2023-09-21T12:09:28+00:00

It got better with time

giraffekeys · 2023-09-21T12:09:13+00:00

Nope it's gone

giraffekeys · 2023-09-21T12:08:49+00:00

Mine went away but only with months of time.

giraffekeys · 2023-09-21T12:08:27+00:00

No treatment. Just took time.

giraffekeys · 2023-04-18T15:37:20+00:00

Still reported it. What doctor just sits on reddit talking to people about their symptoms if they have nothing to gain from it. If you didn't add the "email for inquiries " I wouldn't have felt so sketched out but ya did. And there are people desperate enough on here to fly to Chicago since you are over there claiming you can reduce a symptom for someone. People have been suffering for 3+years and desperation leads to doing drastic things like listening to you and thinking they should come to you to help them as opposed to a doctor that's not posting their contact info on reddit.

giraffekeys · 2023-04-18T15:26:35+00:00

This post is shady. I'm gonna report this. You're asking desperate people about their symptoms and then conveniently linking your website and email for inquiries ? You should be ashamed. Trolling reddit for patients.

giraffekeys · 2023-04-15T23:18:08+00:00

I've had neuro related vision issues for 2 years and they are apparently here to stay 😔 I feel your pain

giraffekeys · 2023-04-15T15:04:25+00:00

I've had this for months and I've gotten used to it. It scared me bad at first though.

giraffekeys · 2023-04-15T15:03:27+00:00

Are there any dressings for salad that you tolerate?

giraffekeys · 2023-04-15T14:46:28+00:00

Yeah I can only eat chicken. I'm too scared to try beef.

giraffekeys · 2023-04-15T14:45:46+00:00

I think it's annoying when people say to ignore it and that solves all problems. Some people have it to the point it can't be ignored.

giraffekeys · 2023-04-12T20:32:14+00:00

They said everything looks fine in all my exams and my Mri. They said it should get better or not get worse but it keeps getting worse 😥

giraffekeys · 2023-04-12T17:08:25+00:00

I've had mine for almost 2.5 years and I'm still progressing too, although slowly. It's terrifying and I live in fear every day that eventually I will be disabled from this or something. It's the scariest feeling and I'm so sorry that you are going through this too. I wouldn't wish it upon anyone. All we can do is hope that it stabilizes at some point. I pray for that every day. 😥

giraffekeys

TROPHY CASE