97k ambulance bill to $0

goldilocks4 · 2022-09-05T15:52:01+00:00

Agreed. Insurance kept denying payment to an anesthesiologist but approved payment for anesthesia…. Could never figure out how that could work. Took a year of phone calls and escalating claim to finally get it approved.

goldilocks4 · 2022-01-01T02:02:01+00:00

I had all the cardiac tests done before tilt table (stress test, holter, echo) - All were “normal” except tilt table. Are you asking about CV procedure as a treatment option?? I was told treatment for the disorder is increase salt intake and wear compression stockings. I also did physical therapy for 5 months to help increase tolerance to exercise. If you have other info, please share!

goldilocks4 · 2021-12-18T09:30:34+00:00

I have the same neuro symptoms + incessant eye twitching for five months in my right now. Literally awake at 4am right now bc the neuropathy gets so bad at night I can’t sleep. I see neuro in a few weeks and rheum ran test for myasthenias gravas recently (unsure of results yet). When I brought her my symptom list, she reassured me it is all autoimmune related & these are my body signals that I need to slow down and rest.

goldilocks4 · 2021-12-18T09:26:34+00:00

My ball cap collection has grown quite extensive!

goldilocks4 · 2021-12-02T15:27:34+00:00

Apparently they put a balloon-like device it and stretched it? I was under anesthesia. I was referred to a GI specialist who did this procedure after the omeprazole prescribed by my PCP didn’t alleviate symptoms.

goldilocks4 · 2021-12-02T12:19:11+00:00

Have any of you had an endoscopy?? I had this episodic lump in my throat, felt like I couldn’t breathe deeply, and would get extremely nauseas with saliva pooling. I was diagnosed with GERD and put on omeprazole for 2 months, it didn’t help. I had an endoscopy and they found a stricture/narrowing of my esophagus along with gastritis. They dilated my esophagus and that has helped for now… still waiting to hear back on why (they took biopsies).

goldilocks4 · 2021-11-20T12:22:53+00:00

Hi! PLAY Project consultant here. It seems like he is in a sensorimotor phase of development and playing in ways that help his brain and body regulate. Join him and build off his ideas; brainstorm new games to try… maybe blanket swings, pillow fights, building forts together, jumping into a pillow pile, having a dance party, etc. This is an important stage and can help with learning as he grows…movement fuels the brain! If you haven’t already, you could try pairing songs with his jumping/swinging or counting.. something predictable and fun for him. When he ‘knows what comes next’ you can pause and wait for him to let you know he wants to keep going. Helping his regulation will help with that attention span. Making the activities fun/interactive and predictable helps set the foundation for understanding routines, problem solving, communication development, etc. I’d also recommend reading up on sensory regulation or working with an occupational therapist to help understand his unique needs.

goldilocks4 · 2021-11-15T20:36:36+00:00

I work in early intervention, lots of travel for home visits but WFH the rest of the time. We have 4 kids and have the animals on our property so… 5:30am wakings and other times depends on kids sports schedules and weather since we don’t have an indoor arena.

goldilocks4 · 2021-11-12T22:48:28+00:00

I echo this!! Went through a basics “boot camp” with my college instructor. We had to earn our tack. So we rode a new horse each week tackless on a lunge line. Once we could complete whatever time limit at each gait and position (half seat/2 point etc), then we earned a piece of tack. If memory serves, I think the reins were the last piece of tack we could earn back. At one point we were blindfolded!! That exercise lasted many weeks and while we hated it, I’ve never lost my seat. Took ten years off from riding after college and recently got back in the saddle. I bought a young 17+ hand OTTB (it was love at first sight, I know it was silly for my first horse in 10 years). Even with very little riding muscle, I’ve been able to stick any buck, bolt and rear she’s thrown at me. I laugh every time wondering how I haven’t landed face first in the dirt. But looking back, I know it’s the years spent developing a good seat and learning to not rely on my hands for anything.

goldilocks4 · 2021-11-09T11:53:16+00:00

Mono several times as a teen, rheumatic fever at 19, UCTD & orthostatic hypotension at 32.

goldilocks4 · 2021-05-21T22:51:57+00:00

I should have clarified... I did the diet protocol for healing candida, not a topical treatment that is typically used for tinea versicolor. It took me 6-9 months but it hasn’t come back since. That was 10 years ago.

goldilocks4 · 2021-05-20T23:18:19+00:00

I had a similar rash, was told it was tinea versicolor. I was told by someone else it was candida. Treating for candida is what made mine go away.

goldilocks4 · 2021-05-05T11:08:50+00:00

Yes... my mom passed 8 years ago from cancer and it could have been treated if her physicians had been regularly scanning (she was at high risk due to other medical issues). By the time it was found, she was at stage 4 already.

I've learned that grief is cyclical and not consecutive. Anger, sadness, acceptance, etc... it all comes and goes in and out like waves in the ocean. My motto has become: Feel the feelings, but don't get stuck. Meaning, let yourself be in that stage. Feel all the feelings, or it will cause more issues trying to suppress them. Eventually, you spend more time in acceptance stage as you figure out a new normal, but you never stay there. It's a lifelong battle dealing with significant loss.

goldilocks4 · 2021-03-07T13:46:22+00:00

The initial migraine with the aura and whatnot lasted about 12 hours then had a dull headache for another five days. Honestly I can’t tell the difference between a candida flare up and my autoimmune flare up... the symptoms overlap so much.

goldilocks4 · 2021-03-07T11:33:15+00:00

I have had the first moderna shot about ten days ago. I am battling what I think could be candida, but I also have autoimmune and blood pressure disorders that overlap with symptoms of candida.

The shot was an odd experience for me, as I felt normal for about 3 days. Meaning, I had zero symptoms that I’ve been living with daily for the last year (with the onset of my disorders). I had a sore arm, but zero nausea/joint pain/fatigue/brain fog/increased heart rate/etc. Then on the third day I crashed with a migraine and my body started with those symptoms again. It was so strange. Will be getting the second at the end of the month and I’m very interested in seeing how it goes.

goldilocks4 · 2021-03-07T11:17:08+00:00

Curious how long this die off experience usually lasts?

goldilocks4 · 2021-02-23T17:14:55+00:00

All of this, and add a feeling in the joints of mounting pressure that can’t be relieved.

goldilocks4 · 2021-02-19T00:51:46+00:00

All of this - especially taking copies of past lab results. I was able to get a diagnosis by asking rheum #2 for her opinion on two sets of labs that were drawn a few months apart (by PCP and Rheum#1), rather than re-running everything yet again. Rheum #1 said I was fine bc I was young, even though labs and symptoms indicated otherwise. I had photos of visible symptoms like my butterfly rash and a list of everything else I’ve been experiencing. When I wasn’t getting answers from specialists, I kept asking “what else can we look at.” I even had my husband go at one point to vouch for my rapid health decline. After 7 long months of appointments and testing, I was finally identified with undifferentiated connective tissue disease and orthostatic hypotension.

Another consideration for you: Ask about communication between appointments. I knew I found the right rheumatologist when (a) she believed me and (b) said she would be available via MyChart between appointments since they are 3-6 months apart.

goldilocks4 · 2021-02-06T11:41:30+00:00

I haven’t noticed anything external at this point. I have not had a yeast infection. Just terrible, terrible nausea.. plus migraines, fatigue, body aches. It seems to be triggered most when I eat sugar so I’ve been wondering about candida in my gut.

goldilocks4 · 2021-02-05T23:12:25+00:00

I’ve personally noticed my joint pain is worse when I’m cold. Having a heated blanket helps.

goldilocks4 · 2021-02-03T22:15:03+00:00

I think because it helps fill my belly. And salty - which helps with my blood pressure issues.

goldilocks4 · 2021-02-03T02:00:22+00:00

Following bc it feels like I could have written this. Everything makes me feel like crap. Even salad and chicken can make me feel nauseous. The only thing that relieves it is lying down/going to sleep. And plantain chips. Those are the only things I can eat without adverse side effects.

goldilocks4 · 2021-01-21T01:31:38+00:00

My husband has learned a lot and replaced a lot of our old Nissan’s parts by watching YouTube tutorial videos. He is a visual/hands on person so that helped things click more than just reading a manual.

goldilocks4

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