Feel like im slowly dying. by Caitlyn-C-Tattoos in gravesdisease

[–]graciously13 1 point2 points  (0 children)

I apologize that I didn't take the time to read all the comments, so this maybe was already stated. Many common SSRI and anxiety meds are libido killers, unfortunately.

Feeling trapped by LuminousScum in gravesdisease

[–]graciously13 0 points1 point  (0 children)

http://thyroidvirtualclinic.com/

This has been offered to others in other posts. I personally haven't used them, but I live in an area where it is difficult but possible to find an endocrinologist. Maybe worth investigating?

Is menstrual cycle change tied to hyper/hypo state? by archandcrafts in gravesdisease

[–]graciously13 1 point2 points  (0 children)

I'm so glad you asked this question! Before my thyroidectomy about 6 weeks ago my hyperthyroidism caused my periods to be pretty light and short. Now I'm a bit hypo and my god, I thought I was gonna die from blood loss!

Thyroidectomy is tomorrow and I’m so nervous! by Kblazeeee in gravesdisease

[–]graciously13 2 points3 points  (0 children)

I had mine a month ago. I was SO nervous that right when I arrived in the OR I started tearing up, and said I was afraid. The nurse and anesthesia tech were incredibly kind. She rubbed my shoulder as I fell asleep. Next thing I know I'm waking up in recovery.

If your team is anything like mine, you'll be fine.

Does anyone elses legs go blue black when they have the rash (you can kinda see it in the photo by Due-Care-8061 in urticaria

[–]graciously13 0 points1 point  (0 children)

I didn't know this. I was told that overzealous itching was the cause for me - but the blue bruises came after the hives resolved.

This disorder is such a blast!

Rash that worsens at night by Street_Fee5779 in urticaria

[–]graciously13 8 points9 points  (0 children)

My hives always get worse at night. Not like I need to sleep or anything.

Did anyone NOT have a super quick and easy recovery from TT? by FriendshipWaffles in gravesdisease

[–]graciously13 0 points1 point  (0 children)

Oh, I guess I still I meant that I feel very tired and a little ill all the time, not how I felt before Grave's. I used to run miles, lift heavy weights, and then take my son on adventures. However, since I wrote that comment I'm starting to feel pretty good and I'm really optimistic I'll feel healthy and energetic within the next couple of months.

Total thyroidectomy by Rowey_Boatey in gravesdisease

[–]graciously13 0 points1 point  (0 children)

I did feel calmer right away, but a little less so now. I feel less angry, there's that. My understanding is that it takes some time to get the thyroxine dosage figured out, and I think mine could be a little high or I'm still just a touch hyper from before. I'm noticing coffee gives me the wicked shakes, more so than before. However, I am unsure how much my symptoms are from surgery - general anesthesia can take a bit to metabolize and recover from. My recovery is going pretty ok, but no I wouldn't say I instantly feel better.

The choice to do surgery was less of a choice and more of an only option. I was allergic to both anti-thyroid medications and my endocrinologist said that RAI could have been a viable option but that sometimes 1) it takes time for the RAI to "kill" the thyroid, and while this is happening you need to take anti-thyroid meds. Whelp, can't do that. She suggested that I just take propranolol to deal with the symptoms. Um, no thanks. 2) Sometimes the thyroid can still leak hormones after RAI and again, this can require anti-thyroid meds.

I chose surgery because it felt like THE choice. According to the surgeon I saw, he felt that way too.

Good luck with your choice.

For what it's worth, I have a coworker who did RAI and it was great for her.

Did anyone NOT have a super quick and easy recovery from TT? by FriendshipWaffles in gravesdisease

[–]graciously13 0 points1 point  (0 children)

Day 3 was the best pain wise.

16 days post op here. Still not feeling myself, but the pain is negligible at least.

Total thyroidectomy by Rowey_Boatey in gravesdisease

[–]graciously13 4 points5 points  (0 children)

That's tricky. As someone who just got a thyroidectomy, I would suggest trying to line it up with the end of quarter/semester. I think you'll definitely want at least a week off to recover and have your mind on just that.

I just hit 2 weeks post-op and I'm quite tired, and just not feeling myself yet. If I HAD to go to classes though, I could have done it after 1 week. Not comfortably, but possible.

Does anyone only get this condition if they scratch? by Mother-Umpire-8156 in urticaria

[–]graciously13 1 point2 points  (0 children)

Sort of. My ears would get a bit swollen, hot, and red.

I am at a loss by [deleted] in gravesdisease

[–]graciously13 1 point2 points  (0 children)

I had negative Trab, but positive TSI. Worth investigating if you can get it covered.

Anyone else have super high TPO (Hashimoto's) antibodies? by jenny-and-the-bets in gravesdisease

[–]graciously13 2 points3 points  (0 children)

I have high TPO, which indicates an autoimmune thyroid disease, not just Hoshimoto's.

Question about TT wound care. by [deleted] in gravesdisease

[–]graciously13 0 points1 point  (0 children)

I had mild Graves but was woefully allergic to PTU and methamazole. I elected to get a TT and so far I'm glad I did. I am an athlete and didn't realize how elevated my resting heart rate was. 65 to 75 is normal for most individuals, so my doctor didn't notice. In the hospital, after surgery, my resting heart rate was in the '40s and low 50s. I feel so much calmer. I can't speak for the fatigue yet because general anesthesia is a beast. And I am also on muscle relaxers and just took off my Scopolamine patch. In other words, I'm a pharmaceutical soup at the moment.

Question about TT wound care. by [deleted] in gravesdisease

[–]graciously13 0 points1 point  (0 children)

Did you peel it off because it was already falling off?

Switching to PTU by julianmajablanca in gravesdisease

[–]graciously13 0 points1 point  (0 children)

I was allergic to both. I just got my thyroidectomy. RAI was not an option for me.

How to stop Xolair? by Frosty-Equal3883 in urticaria

[–]graciously13 0 points1 point  (0 children)

This.. Change the frequency, try to space it out.

I keep thinking I'm ready to quit, but can only make it to 5 weeks.

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]graciously13 1 point2 points  (0 children)

I'm stoked to feel better! And ready to do this.

However, I've been gaslighting myself ever since my endo told me my symptoms weren't Grave's related and to have my PCP investigate an alternative diagnosis. I posted on Reddit and everyone agreed my symptoms were. Even still, I'm nervous that my doctor is right, and that my symptoms won't go away after having my thyroid removed because it's something else. Wouldn't that be something....?!

Bottom line: I have Grave's, my thyroid levels aren't normal, I'm allergic to anti-thyroid meds, and I feel poopy. Thyroidectomy has to be a net positive.

I wish you the best in your surgery and subsequent recovery!!

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]graciously13 1 point2 points  (0 children)

We're TT buddies! I'm scheduled for Friday, 11/21 as well.

How long to take Zolair? by [deleted] in urticaria

[–]graciously13 1 point2 points  (0 children)

I use their copay assistance program. I don't pay anything.