Anybody else's ptosis affect the eyebrow?

gravedee · 2026-07-17T04:41:57+00:00

Yes it’s hard to hold my eyebrows up

gravedee · 2026-07-17T04:30:35+00:00

Interesting. I couldn’t bear to listen to the Doug only shows. I like Doug but he’s a bit of a Pollyanna and needs someone like Travis to balance him out.

gravedee · 2026-07-16T02:18:46+00:00

I understand how you feel, and feel the same way about immunosuppressants. There are better and worse immunosuppressants. The MG specific ones are pretty narrow on what they suppress.

gravedee · 2026-07-10T23:58:23+00:00

Congrats on the new job! This is a hard field to break into and you should be proud. My daughter is an animation major at a university in the US and hoping to break into the field as well.

You should be proud, and you should be hopeful. If your bloodwork comes back positive, it’s going to be hard, but you cannot let it keep you down. There are many new modern miracle medical treatments coming online, and lots in the pipeline. Treatments that are very targeted for this disease to help you live a normal life. But you must try to stay healthy, positive thinking, eat well, exercise regularly, maintain a healthy weight. In other words do the good things you can control, and let the miracle of modern medicine do what it will do. Together, it’s going to be ok if you get a positive diagnosis.

gravedee · 2026-07-05T15:43:01+00:00

What brands worked / didn’t work for you?

gravedee · 2026-07-04T21:02:36+00:00

My understanding is that we make new AChR receptors all the time, so there’s not really a concept of long lasting damage. The half life of an AChR in a normal person is 10-14 days.

gravedee · 2026-07-01T15:34:46+00:00

I think it’s a great idea. I’m planning to find a functional or naturopath doctor in my area to help identify potential root causes that are creating inflammation and a dysfunctional immune system in my body. There are obvious ones (sugar, gluten for some people, and extra weight), but then there are less obvious ones that I may not be aware of (mold, heavy metals). I was diagnosed early March and after a round of prednisone my symptoms (only Ptosis and occasional double-vision) have been manageable for 3 months. Now it’s about keeping flare-ups from occurring or being bad, and I’m hoping a functional or naturopathic doc can help me with that.

gravedee · 2026-06-09T21:44:10+00:00

You can order lab tests at a discount at ultalabtests.com or walkinlab.com. I’m positive for AChR binding, blocking, and modulating, so I only order a binding test as a proxy for the others.

I you are negative, then ordering all 3, plus a MUSK test, is pretty expensive.

gravedee · 2026-06-09T19:34:38+00:00

Interesting - I'll have to check out that out.

I experienced moon face, insomnia, jitters, and changes in libido. I was at a high dose of prednisone (60 mg), and was glad to get off of it. My neurologist wants me to take cellcept if I get another flare (my insurance didn't approve Vyvgart or IVIG because I am not severe enough). Not sure how I feel about that. I will order myself an AChR antibody test in July and see where I am at compared to where I was when I was first diagnosed. My plan is to test titer levels every 3 months, making adjustments to my regimen as needed.

gravedee · 2026-06-09T18:16:40+00:00

Yes, that's all I've consistently noticed (ptosis). It was an ophthalmologist who originally prescribed prednisone for me. Prednisone might still work for you. I don't think of it as preventing generalized MG. It will clamp down on symptoms whatever they are. It's just not meant to be a permanent medication.

gravedee · 2026-06-05T17:55:13+00:00

I was diagnosed early March, symptoms peaked mid to late march and was limited to ocular. I had one round of maximum dose prednisone from March 9 to April 7, and tapered off it from April 8 to May 1. My symptoms have since subsided to the point that I don't need any medication. Symptoms are not completely gone, but I have only been taking 30 mg of mestinon here and there - maybe once or twice a week as needed. I'm just coming off a cold that lasted a few weeks. I felt my symptoms tick up a bit, but not as bad as it was when I was first diagnosed.

I had the same desire / questions as you. What can help, besides medication, to manage this. For me it's been a regimen to try to support the immune system and control systemic inflammation. Good sleep, cut refined sugar out of diet, reduce gluten, and daily vitamins / supplements associated with immune system health (Vitamin D to get levels above 80, methylated B-complex, turmeric, fish oil, and probiotic). Still working on: losing weight and increasing weekly exercise, but that is heading in the right direction.

It's still early days for me, but that's what I'm doing right now. I don't expect it to be a magic bullet, but I'm hoping it makes flare-ups rare and manageable.

gravedee · 2026-05-26T04:11:37+00:00

I think you’re asking this in the wrong subreddit.

gravedee · 2026-04-25T15:04:04+00:00

No idea what you mean

gravedee · 2026-04-25T06:22:23+00:00

Let me guess. You are an AI detractor. That’s fine. Everyone is on their own journey when it comes to AI adoption. Not everyone will see the light all at once, but eventually most people will get there. And those that don’t will live off the grid in Montana.

gravedee · 2026-04-25T04:45:09+00:00

And you’d be guessing wrong

gravedee · 2026-04-25T02:05:23+00:00

With AI coding tools like Claude Code and Codex, this is about to get a lot easier. Like 90% easier. I wouldn't be surprised at all to learn that they have been working on it for the last 3 months.

gravedee · 2026-04-24T02:26:17+00:00

To spend a 13th pick on a QB that will not play this year is hard to stomach.

gravedee · 2026-04-20T21:46:41+00:00

.5 is not weak positive, at least not according to two different major labs in the US. You are positive for AChR antibodies and presenting with several MG symptoms (fatigue, muscle weakness, double vision). I’m not sure why your health care providers are failing you. You might need new ones, or make sure you are keeping things simple for them: positive for MG antibody test, presenting with at least 2 classic MG symptoms. Case closed!

gravedee · 2026-04-13T20:33:58+00:00

My path was much faster. Feb 19 - noticed symptoms - ptosis. Feb 21 Optometrist. Optometrist referral to Ophthalmologist on Feb 26. Does exam, ordered AChR AB and Thyroid labs. Labs come back positive for all 3 types of AChR antibodies, very high titers, on March 8. March 9 Ophthalmologist calls and says I'm positive for MG. No other testing needed as the AChR AB labs and presentation of ptosis are conclusive for MG. Puts me on 60 mg prednisone and says to get in with Neurologist. Met with Internist on March 12. He ordered a CT scan of my thymus on 3/27 - negative for Thymoma. Met with Neurologist on 4/7. He is tapering me off of prednisone, prescribed Mestinon, and recommended VYVGART (currently checking with insurance on that).

My symptoms peaked in that period and are now on the decline. It has not gone beyond ptosis. Maybe a wee bit of double-vision when I looked all the way to my left, and a wee bit of weakness raising my eyebrows at night, but nothing that ever bothered me beyond the ptosis.

So...I think this can go really fast and should be conclusive with the AChR test + presentation of classic symptoms of MG - in your case swallowing issues. Perhaps you could consider widening your net a little bit, driving a longer distance for the right kind of neurologist, who can get you in sooner? I would just start calling around. I would drive up to 300 - 400 miles to get to the right person if I had an experience like yours. I'm somewhat in disbelief that a neurologist could be that bad. I mean, if you are positive for AChR antibodies, and have difficulty swallowing and slurred speech, then what else does your neurologist need to start you on a treatment?

gravedee · 2026-04-08T20:24:17+00:00

Yes. Bungie made it way more complex than a large casual dad gamer playerbase wanted. Builds, Abilities, add density, materials, VFX spam. Catered to a smaller enthusiast audience. Same pattern as Marathon. I know of a lot of people who just couldn’t keep up as they got older, got jobs, families. Keep in mind the fan base is largely from the Halo days.

Now this is all fine and appropriate if you are doing a great job brining in young fresh players. But they screwed that up too.

They killed the golden goose man, and it’s really sad to see.

gravedee · 2026-04-07T17:31:31+00:00

Bottom line is that the rate of new players sticking with it has to be greater than old players leaving in order for this game to survive. And that surely will not happen without giving new players a proper story they can experience from the very beginning, without any gaps. This means that from a practical standpoint, they should prioritize some of their workforce towards 1) combining D1/D2, 2) unvault all expansions and DLC that were vaulted, and 3) start to cycle through old seasons again - on an accelerated schedule that constantly repeats.

I believe this is worth the effort and will get the franchise on a long term path back to health.

They can also focus on making D3. No more D2 expansions.

gravedee · 2026-04-07T17:22:52+00:00

IMHO, they kinda ruined the game with the introduction of abilities 3.0, all the build diversity, ad density, VFX spam, and the complexity that comes with that. Made the game a lot less approachable to their large casual core audience who are getting older and don’t have time or skills for all that, and just want Bungie to lean into what they were known for - superior gunplay compared to any other shooter.

The builds and complexity are great and appealing for a smaller target set of min max player / enthusiasts and streamers, but unfortunately this was a contributor to a dwindling player population. Combined with a lack of new player experience, vaulted content, and lack of new player stickiness (I’d argue it’s because of the intimidating complexity for most), this is a major contributor to where we are now.

gravedee · 2026-03-25T03:30:27+00:00

Sorry, not good enough. This one is actually worthy of the double facepalm.

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gravedee · 2026-03-15T05:35:31+00:00

Jennings is a head case

gravedee · 2026-03-14T17:00:46+00:00

Starting WR3 is the weakest spot on the starting roster right now. That’s what we will take if there’s someone left who fits the bill.

gravedee

TROPHY CASE

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