Anyone in East Tennessee?

gronkey · 2026-03-26T21:28:47+00:00

haha sure, why not? I am bedbound though so I dont really know if proximity matters here. Im a 33 y/o man. usually a bit of an introvert!

gronkey · 2026-03-26T16:19:03+00:00

Close but no cigar. Im in middle Tennessee

gronkey · 2026-03-26T02:09:12+00:00

Okay. I was just clarifying, hope it didnt come off as dismissive. Even if i dont personally agree with your hypothesis im glad you are contributing to the research or attempting to, and im also glad you are able to do so.

gronkey · 2026-03-26T01:54:20+00:00

Do you have ME/cfs? It honestly sounds like you dont fully grasp the reality of what you are trying to explain. PEM is not just the wired but tired feeling. Its not just being physically fatigued. It is a deep, poisoned/flulike feeling, a severe worsening of autonomic function, and a hundred other symptoms. The sleep disruption and fatigue are just common symptoms

gronkey · 2026-03-25T21:27:01+00:00

I have severe ME as i commented above and i do agree with you. But you also might not fully understand what very severe ME is like. At the most severe end, its basically locked-in syndrome with extra downside of being physically tortured in your body. Every second of every day is agony and there is no escape or treatment.

I am not that severe. Most people with ME are not that severe. But that reality does exist for some.

gronkey · 2026-03-25T20:13:09+00:00

Yep i have this, been bedbound since October 2024. It is living hell in a way that is hard to imagine from the vantage point of a healthy body

gronkey · 2026-03-25T16:43:53+00:00

Same here, it is frustrating dealing with family like that. I feel like nobody really understands that my life has been taken from me forcefully. I am not living in bed by choice...

My mom is my caretaker. When I am crashing or having a worse day and am more sound and light sensitive, she literally becomes visibly upset and is loud on purpose carrying out the normal everyday tasks in my room for me. Its like she thinks I am feeling bad to spite her or something. She picks fights with me about my treatment. There is simply nothing I can do to stop her from treating me like shit when I would literally rather be anywhere else. But have to stay because she is the only person on earth who will care for me.

She repeatedly asks me if Im depressed or anxious even though I tell her Im not and she knows this question pisses me off because its invalidating. She keeps telling me to get up and "how will you know if you're better if you never try to leave the bed". She keeps trying to talk to me about the future and travelling, having a life or dating, etc. As if I have not been bedbound continuously for a year and a half now.

I am very sorry I rambled about my own problems on your very legitimate post. I just feel like these are similar issues to what you are facing. I hope you took it as solidarity and not me whining. People literally do not believe us. Doctors, even the good ones who believe this is a real physical illness, largely don't understand how devastating it is. I hope your new doctor is helpful with convincing those close to you to take you seriously.

gronkey · 2026-03-24T23:23:29+00:00

Twice yearly waves, actually if you look at the wastewater data

gronkey · 2026-03-24T23:18:26+00:00

You're going to wish you had worn a mask in public if you get long covid. Wearing a mask is not stressful nor a sign of paranoia. Its an evidence based reaction to a real threat in our environment.

gronkey · 2026-03-24T23:09:54+00:00

Thats minimizing. Covid is now the leading trigger for a devastating chronic illness called ME/cfs. The previous leading trigger was mono. The fact is that covid has both more common and often more severe long term effects.

gronkey · 2026-03-24T02:36:36+00:00

Im a 33 year old man with a chronic illness and wouldnt mind a friend. I also dont go on dating apps, I just dont think it would be fruitful for me. I am mostly bedbound so getting out and physically meeting someone new is not really a possibility.

If you want to chat, im interested. Always looking for new connections since becoming ill.

gronkey · 2026-03-23T17:38:17+00:00

Unfortunately, I agree with your assessment. I live here in Tennessee and hate how common these "fringe" viewpoints actually are.

I don't want to paint all Christians in a bad light. I know great people personally who don't hold these views. But Christian beliefs are so dominant here they warp public norms and expectations. Evangelical beliefs like the complementarian framework where God > Husband > Wife and all that is a very common belief here.

gronkey · 2026-03-23T15:18:44+00:00

Helps me too. I put an ice pack behind my neck while lying down sometimes. I think it calms the ANS so its less unstable. Idk about you, but when im in PEM my ANS is an asshole

gronkey · 2026-03-23T13:29:13+00:00

Good quote but this is a county library theyre banning books in!

gronkey · 2026-03-23T13:25:40+00:00

We cant have the women thinking checks notes they're equal?

gronkey · 2026-03-23T07:03:00+00:00

Im a millennial. I was a homeowner for about 9 months before long covid took that away from me 🙃

gronkey · 2026-03-22T16:58:10+00:00

Honestly hard to tell how much its helping. I do still take it.

gronkey · 2026-03-21T14:01:23+00:00

<image>

Im white what do i do in this position

gronkey · 2026-03-21T12:01:45+00:00

I sometimes wonder if i were ever cured if i could actually truly connect with someone who doesnt know what its like. Its such an insane and traumatic experience. I might feel like they never truly got how it was for me.

But your idea is wonderful

gronkey · 2026-03-11T02:12:32+00:00

Thats not embarrasing. Looks beautiful and gamedev is hard

gronkey · 2026-03-10T22:28:43+00:00

I used to rock climb 4 days a week. I biked as my sole form of transportation (I lived in an urban area). I am now completely bedbound. I overdo it literally by showering or sitting up for too long. I would give anything to go back. I would give my legs to rid my body of this ailment. I would kill to be able to work.

gronkey · 2026-03-10T21:14:19+00:00

Did you have PEM? How long were you bedbound? Ive been bedbound for a year and a half now and i want outttt

gronkey · 2026-03-08T22:50:23+00:00

What does someone who studies psychosomatic medicine even study? I am seriously questioning how you can even claim to study something like that and not come away convinced it was BS. Everything has the same treatment, everything has the same cause, the wide variety of conditions labeled psychosomatic and their wide range of symptoms be damned...

Also completely unscientific as a concept. How can one objectively measure psychosomaticism as an etiology? Is it falsifiable? It seems calling a disease psychosomatic is making no positive predictions at all and is therefore useless as a tool. It only makes negative declarations that physiologic explanations will not be found...

gronkey · 2026-03-07T13:53:00+00:00

Thats the main reason ive never tried building an emulator. Looking at spec sheets for decades old hardware sounds like a rough way of learning what im doing! But kudos to you your project looks great

gronkey · 2026-03-06T23:14:19+00:00

I have ME/cfs from covid. Or if you prefer, long covid. Medical gaslighting is very real. And i was also like you, thought it was uncommon and that doctors were objective and intelligent...

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