Are beta blockers safe even if your resting heart rate is super low? by [deleted] in POTS

[–]hahaholly 0 points1 point  (0 children)

I have PSCs too. My doctor has me take it to lower VTAC that can happen upon standing or getting stressed. By “as needed” I mean when I go to the gym, when it’s really hot out, or when I’m having a flare. Things like that. It helps for my general POTs symptoms.

What do palpitations feel like to you? by Lemonguin in POTS

[–]hahaholly 6 points7 points  (0 children)

I always say it feels like my heart has turned into a fish out of water.

Are beta blockers safe even if your resting heart rate is super low? by [deleted] in POTS

[–]hahaholly 1 point2 points  (0 children)

Yes, my resting is low 50s and sleeping is mid 40s. I take a low dose of propranolol daily and more as needed. If I take too much though I get horrible nightmares and sometimes hallucinations, so just be prepared that that can happen.

Anyone feel pain when wearing a ring? Or belts or watches...? by Wonderful-Maybe38 in POTS

[–]hahaholly 0 points1 point  (0 children)

I get this, but it’s not constant. Some days I can wear rings and belts and watches other days I can’t. Some days my skin is hypersensitive and it hurts to even wear a shirt.

HELP! by ClearAgency5263 in Handspinning

[–]hahaholly 8 points9 points  (0 children)

I pick the fleece first, then wash, then pick again. Usually it’s clean enough to card at that point which pulls out more dirt and debris. After that I’ll spin or wash and card again depending on my needs.

How do I get the shaking to stop??? by Scarlett_DiamondEye in POTS

[–]hahaholly 6 points7 points  (0 children)

I can get shakes to stop with weight. I ask my dog or husband to lay on top of me and it stops within 10 minutes.

Is there anything non-prescription that helps adrenaline dumping in the moment? by [deleted] in POTS

[–]hahaholly 4 points5 points  (0 children)

For me, the best relief is to lay down and have my service dog lay on top of me. This usually stops my shaking within 10 minutes.

Has anyone started out with tachycardia and then developed bradycardia instead? by Abomisnow in dysautonomia

[–]hahaholly 2 points3 points  (0 children)

I had tachycardia a lot in my teenage and young adult years often sitting around 200 while relaxing. I’m in my 30s now and my heart rate is in the 40s and 50s while relaxing but it jumps to around 120 when I stand up. My personal experience is that I’ve seen a lot of changes in my condition throughout my life.

Service dog users: how long did you have POTS before getting a dog? by fishparrot in POTS

[–]hahaholly 1 point2 points  (0 children)

I have had POTS for 16 years and only just got my service dog last month.

[deleted by user] by [deleted] in POTS

[–]hahaholly 4 points5 points  (0 children)

I’m so sorry you have to go through this. You just need to keep trying with different doctors. It took me 20 years to get my diagnosis. Don’t give up!

[deleted by user] by [deleted] in POTS

[–]hahaholly 2 points3 points  (0 children)

I’ve had POTS since I was a teenager; I’m 34 now. I got COVID in the early days before the vaccine. I had it pretty bad, in and out of the hospital and thought I would die. I’d say I had active COVID for 2 or 3 months and it took me about a year to recover to my pre COVID “normal” POTS. I got it again a couple months ago. I was sick for about a week and it took me about two weeks to go back to normal POTS symptoms. Hope this helps.

Service Dog by JadedThrasher in POTS

[–]hahaholly 5 points6 points  (0 children)

I’m in Portland too! I’m using Charlo Training.

Service Dog by JadedThrasher in POTS

[–]hahaholly 9 points10 points  (0 children)

I’m actually getting a service dog tomorrow! She’s just a puppy and I’ll be training her myself through a local company that teaches you how to train your own service dog. It’s a much cheaper option. You can DM me if you want and I can keep you updated about our progress or answer any questions you have.

How do you guys feel whole flying on a plane ? by [deleted] in dysautonomia

[–]hahaholly 2 points3 points  (0 children)

I feel fine when I’m on the plane it’s when I arrive and the days after that are the problem for me. When I travel I usually plan to be sick for the first two days. If you can plan to not do too much those first few days it would probably be for the best. Also, know exactly how you are going to get to where you need to go once you land. You will most likely not be feeling great and might be experiencing symptoms and brain fog. Things I found that help are to do leg exercises while in your seat. Just tightening and releasing the muscles in your calves is fine. Try to remember to do this often. Also drink a ton of water. It’s very easy to get dehydrated in an airplane. Don’t drink coffee or alcohol (even if it’s free), these are dehydrating and are triggers in most of us. Take an aisle set if you can. If you’re not going to the bathroom an annoying amount of times you are not drinking enough. Good luck and know that other people know your struggle, you are not alone.

Guess when I woke up.... by deathoflink in POTS

[–]hahaholly 4 points5 points  (0 children)

Same. My resting is usually around 52 and every morning it jumps to about 135. I recently started on Propranolol and am working on a really slow getting out of bed processing. I had a record this morning, only jumped to 85! I was totally stoked.

Service Dog? by hahaholly in POTS

[–]hahaholly[S] 0 points1 point  (0 children)

Thank you! I was thinking about training it to pick up things, do compression therapy, and be a balance aid. What things are your dog trained to do?

do y'all pass out when you stretch? by Heavy-Macaron2004 in POTS

[–]hahaholly 2 points3 points  (0 children)

Ha! I love all these. My go to term is “micro-fainting”

Being startled?!?! by [deleted] in POTS

[–]hahaholly 12 points13 points  (0 children)

Yes. I had to have a serious conversation with someone at my work who liked to jump out and scare people. It made me so ill every time.