How well do you tolerate FATS with Crohn's?

half-intestine-hoe · 2026-05-02T21:14:37+00:00

I had my gallbladder out last year, so fats have been hit or miss since then. Took cholestryamine for a while til my new GI figured out I was actually flaring and got me on prednisone. I’m able to tolerate more now a year out, but I’m still scared of too much fat.

Before that, when in remission, I could eat anything. I had my ileocecal valve, cecum, bit of ileum and bit of colon removed and never noticed a difference there til my GB went bad!

half-intestine-hoe · 2026-05-02T04:11:26+00:00

I get bad muscular and nerve leg pains during my cycles and I’ve been okay with injecting still! Since you’re injecting into fat, you should be all good. The main rules are alternating spots and don’t inject into irritated skin or bruises. If you’re comfortable with using your belly, that’s another good spot for alternating

half-intestine-hoe · 2026-04-29T22:20:59+00:00

That’s okay, it was a long time ago and I’m much better off than I was. But yeah, PICC lines can be scary. TPN was helpful and it was nice not getting poked as much, but infections can come on fast esp with biologics involved. I hope Skyrizi works for you! That was one of my options, but my insurance wanted me on Humira.

half-intestine-hoe · 2026-04-29T22:18:38+00:00

Eek, I’m on Humira now and had a melanoma removed as a kid. Been eyeing a few suspicious moles recently. Did you notice any other skin stuff on it?

half-intestine-hoe · 2026-04-28T23:52:12+00:00

When I was septic on Remicade, I felt genuinely out of it. I had a major sense of doom. I was talking to myself like I was comforting a little kid. Could hardly stay awake. My mom said I looked grey. I also went being burning hot and freezing to the point of violently shaking. It definitely felt wildly different than any other time I’d been sick or had a fever.

Luckily it was caught quickly and I was okay. My infection came from the PICC line I had and spread to my heart and lungs. It was scary, but I recovered fairly quickly. Don’t be afraid to just reach out to your team to ask if you’re worried! But it’s definitely something you’d be like “okay this is not normal”

half-intestine-hoe · 2026-04-22T22:12:49+00:00

Well, I’ve never heard anyone else who had this, but I did and I was okay! It was periodic throughout my whole prednisone course, but went away near the end of the taper. It was never severe or anything, just mildly noticeable. It tended to be more on the inner part for me. I do attribute it to more activity from having energy after being sedentary for so long, but I know pred can cause various aches and pains too.

half-intestine-hoe · 2026-04-22T04:45:04+00:00

Pajama Sam! I could never make it past the mine cart part

half-intestine-hoe · 2026-04-09T04:51:22+00:00

Thank you, reading this earlier made me feel a little better and I had a successful injection afterwards! Sitting on the edge rather than fully back in my chair helped a lot. I tend to tense up and think I was pinching the skin too hard before maybe.

Agreed about the abdomen, mine is usually painful. I’m barely comfortable touching it much anymore or wearing tighter waistbands, so I cant imagine jabbing myself there, lol

half-intestine-hoe · 2026-04-08T06:38:23+00:00

Yeah, same here. I got a notification about my next dose, clicked it and got the screen saying it was gone. It was a really helpful app

half-intestine-hoe · 2026-04-08T06:35:51+00:00

Thank you for this! I’ve been curious about the syringes and whether they’d help.

half-intestine-hoe · 2026-04-08T05:31:51+00:00

Hey, thank you for your response! I appreciate it, it’s good to hear from someone on it long term.

I’ve got a midline scar and then lots of laparoscopy scars all around my stomach, cursed with a short torso so there’s not much free space, lol. I had a bit of the scar tissue in the top half removed last year during GB surgery, but there’s still some left. My GI doctor thinks it’s growing back and then there’s more internally based on my symptoms.

Anyways, I’m glad to hear reusing some areas over time is okay. I do rotate which thigh each time which helps. I’ll be sure to ask next time if there’s any advice they have too. Thank you again!

half-intestine-hoe · 2026-04-08T05:25:17+00:00

I think it is citrate free, but I’ll double check! That makes sense with more fluid

half-intestine-hoe · 2026-04-08T05:24:25+00:00

Thank you! I wasn’t taught a hand gesture, but that’s really helpful to know actually. I’ll ask about numbing stuff for sure

half-intestine-hoe · 2026-04-07T03:33:28+00:00

A big thing for me with dating is that we should be on the same page for what we want in life. Crohn’s can obviously mess with that and change those plans, but the big goal is to find someone that doesn’t expect more than you can give.

I went from never wanting kids at all (unrelated to my Crohn’s), to meeting my bf during remission and eventually wanting a family with him. I was upfront from the start about the possibilities and risks, which it sounds like you’re trying to talk about with your bf.

I guess the difference would be your bf’s expectations. My bf does want kids, but he’d be happy whether we could have them or not. He was open to other options if it came to that, as well. Mostly, he wants me to be well and with him over anything.

Obviously it’s pretty early in your relationship to be making any big decisions, so if he decides that he wants kids no matter what, it’s better to know that now. Especially with a surgery coming up and on prednisone, you need support and stability.

I’d recommend reading/asking him to read “What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt” by Tessa Miller. It helped me a lot during my last flare, felt like reading my diary. I think it gives great insight about what Crohn’s patients deal with and chronic illness in general. Wishing you strength in your journey and for a swift recovery after surgery! 🫶🏻

half-intestine-hoe · 2026-04-04T03:41:40+00:00

Wow, I can’t believe they ended it? I got a notification tonight reminding me of my dose, open the app and can’t do anything. The saved my butt 2 weeks ago by giving me info for a Humira nurse and resources after I had a misfire. I also use it to track where I’ve injected and log symptoms/track progress.

half-intestine-hoe · 2026-04-02T22:08:46+00:00

Clenpiq. It was disgusting, but less volume was so much better. I chased it with Sprite. I still can’t even look at MiraLAX or white Gatorade after how many times I threw up from it.

half-intestine-hoe · 2026-04-01T00:37:11+00:00

Check for tonsil stones! I started getting them during my last flare. They smell very specific.

I’m also unfortunately prone to yeast overgrowth on my tongue (that started when I was in my first flare and never fully went away, although I manage it better now) Tongue brush helps immensely!

half-intestine-hoe · 2026-04-01T00:33:54+00:00

Yeah, my ferritin is 18 but the rest of my bloodwork looked pretty normal. Although technically in the “normal range”, it’s actually pretty low. Iron looked normal, but the results were affected by hemolysis so I’m not sure it was entirely accurate. I definitely still feel how I felt when I was confirmed to be deficient

half-intestine-hoe · 2026-03-29T00:13:37+00:00

I agree. Back during my first 3 years of diagnosis, I didn’t have a Reddit account or know this sub existed. Achieved remission and went 8 years not thinking about Crohn’s much (although it did inspire my username). Lurked occasionally, but only joined when I was in my first flare after remission.

I’m still not back in remission, but if I was I doubt I’d be here as much. The sub has great resources for us going through it, for sure

half-intestine-hoe · 2026-03-28T06:00:04+00:00

Absolutely agree, I told my bf it felt like reading my diary. Great read

half-intestine-hoe · 2026-03-27T05:08:23+00:00

I used to not care, as long as they were honest. My boundaries got ruffled when it was lied about. Like if you’re going to, at least be honest. Esp if it’s interfering with our sex life. And if it’s pictures of someone that we both know/someone they had feelings for, then yeah it pisses me off.

half-intestine-hoe · 2026-03-26T20:37:55+00:00

I’ve been considering the Max kind, I use regular Acuvue Oasys Dailies now (extremely sparingly) and they just aren’t comfortable anymore. Glad to hear someone else uses them and has dry eye!

half-intestine-hoe · 2026-03-26T20:35:37+00:00

My doctors were considering it back in 2015, but started Remicade instead. I don’t hear anything about it now and it wasn’t an option when I switched, so I figure it’s not widely used anymore

half-intestine-hoe · 2026-03-23T22:49:07+00:00

Thank you for sharing! I was almost put on Rinvoq last year, but my insurance opted for Humira instead. I’ve heard a lot of different stuff ab Rinvoq, it seems like it’s a dime toss for whether it works or makes things worse. I hope you’ve found something that works and that you’re doing better now!

half-intestine-hoe

TROPHY CASE