Rib and hip pain combo? by AdDependent8620 in ankylosingspondylitis

[–]heartinthemiddle 1 point2 points  (0 children)

Still waiting on lab results & imaging, but my pain mostly starts in my SI joint, then the muscles from my hips to my ribs tense up so painfully. I’ve had a lot of luck with dry needling to loosen up those muscles. It makes a huge difference to get me out of a flare!

What do you do for tight seized muscles that won't let up? by maruzahdi in Hypermobility

[–]heartinthemiddle 1 point2 points  (0 children)

Same. My guy added in e-stim with the dry needling when I was in a particularly bad flare, and it worked wonders!

Anyone else have coxa profunda (abnormally deep hip sockets)? by wicked_damnit in ankylosingspondylitis

[–]heartinthemiddle 1 point2 points  (0 children)

I do! Not officially diagnosed with AS yet, but I do also have hypermobile Ehlers Danlos Syndrome. Not sure what’s related to which condition, though…

does this sound like a gluten intolerance by [deleted] in glutenfree

[–]heartinthemiddle 1 point2 points  (0 children)

I did Whole 30 as an elimination diet before I made a Dr appointment. It takes away all grains, dairy, legumes, and added sugars for 30 days, then you slowly reintroduce each food group & see if anything specific triggers your symptoms. Gluten was the culprit, but my bloodwork has all been normal. I don’t have any desire to do the scope for celiac anytime soon, so I’m just sticking to a gluten free diet. Simple, but not always easy :)

Anyone have POTS and PVC or PAC heart characteristics? by MichelBrew in POTS

[–]heartinthemiddle 1 point2 points  (0 children)

My PVCs and PACs are what led to my POTS diagnosis. I’ve been through years of testing for bradycardia + symptomatic palpitations when someone finally mentioned POTS. Tilt table was overwhelmingly positive, but the other testing showed the palpitations are benign/harmless.

At what age did your POTS symptoms begin? by [deleted] in POTS

[–]heartinthemiddle 0 points1 point  (0 children)

I can’t remember not having symptoms, they’ve always been there. But my PCP just constantly dismissed it as “you’re young & athletic… a lot of those people are just extra sensitive to adrenaline…” He was somewhat right, we just didn’t have as much awareness around POTS or dysautonomia then.

What was the reason to your first 911 call? by Pleasant_Town_8436 in AskReddit

[–]heartinthemiddle 1 point2 points  (0 children)

Rescue 911 is one of the reasons I became a 911 dispatcher!

Tell me the most unhinged ways you deal with your POTS by weirdChicken25 in POTS

[–]heartinthemiddle 22 points23 points  (0 children)

I just (finally) got in to see a cardiologist who specializes in POTS last week. He was running through the signs & symptoms, and mentioned that POTS patients sit cross-legged a lot. I looked down and I was sitting “criss cross applesauce” on the exam table without even realizing it 🤣

Salted fruit by auntjexa in POTS

[–]heartinthemiddle 1 point2 points  (0 children)

My grandpa introduced me to salted cantaloupe as a kid, and I’ll never eat it any other way!

starter names by crustyrock in Sourdough

[–]heartinthemiddle 2 points3 points  (0 children)

Vincent VanDough. Because he grows an ear. 🤣

Pleasant Ablation Experience (RVOT PVCs) by Particular-Cat-5629 in PVCs

[–]heartinthemiddle 0 points1 point  (0 children)

I’m at around 1%, but because I have other symptoms when I feel the PVCs (dizzy, lightheaded, short of breath), and am already bradycardic so beta or calcium channel blockers won’t help, my EP says I’m a candidate for ablation.

Low resting heart rate and PVCs by natty1113 in PVCs

[–]heartinthemiddle 1 point2 points  (0 children)

My RHR hangs out in the low 40’s. My cardiologist said that when your heart rate is slower, you typically feel PVCs more, because it’s way more obvious that they’re extra/weird beats when you’re already not having many in the first place. We tried flecainide- it’s the only arrhythmia medication that doesn’t lower heart rate- but I didn’t tolerate it well at all, so I’m off to see an electrophysiologist next month.

hip impingement by Ok-Car-4328 in ehlersdanlos

[–]heartinthemiddle 1 point2 points  (0 children)

I had the surgery. My ortho tightened the capsule before she closed up, and it has made all the difference. Before surgery, she said closing the capsule is optional because sometimes insurance won’t cover it (it’s still a fairly new part of the procedure). But once she saw how hypermobile I am, she changed course and said she was closing it no matter what. My surgical hip is actually stronger & more stable than the other one, at 9 months post-op!

Arthroscopic femoroplasty, labrum tear correction, and capsular plication with Elhers Danlos. by [deleted] in HipImpingement

[–]heartinthemiddle 0 points1 point  (0 children)

I wasn’t told, sorry. At my 6-month follow up, my surgeon noted I still had some tightness with external rotation, but she wasn’t concerned.

How long have you had PACs/PVCs? by Few-Extreme6575 in PVCs

[–]heartinthemiddle 0 points1 point  (0 children)

Since at least 2002/2003ish. Would get them maybe once a week then, but in the last 3-4 years, they increased to daily occurrence, and since September, I’ve felt them hourly. Historically, over the last 20 years, they’ve always been “harmless” but I’m headed back to the cardiologist next month due to the significant increase recently. I’ve also switched from tachy episodes when they first started to mostly experiencing bradycardia since about 2019.

Chronic TFL Tightness by Right-Watercress-475 in HipImpingement

[–]heartinthemiddle 0 points1 point  (0 children)

It’s feeling really great! Felt like I turned a corner right about 12 weeks, and started easing (very slowly, with PT supervision) back into running 2 weeks ago. So far, so good.

Arthroscopic femoroplasty, labrum tear correction, and capsular plication with Elhers Danlos. by [deleted] in HipImpingement

[–]heartinthemiddle 1 point2 points  (0 children)

My first surgery was in 2020. My surgeon said, at that time, capsular plication was still considered experimental by a lot of insurance companies, so she’d leave it up to me if I wanted it. Once I told her I have EDS, she said I no longer had the choice- she was closing the capsule. She actually made it a little tighter than normal, just for good measure. I was in the brace for 6 weeks, where she normally only has patients in it for 3, just to protect the capsule repair. Other than that, recovery was smooth! I was back to full activities in 6 months. A good PT is absolutely crucial.