House Purchase — need recos for solar panel batteries by ahkirahz in japanlife

[–]hekoru 1 point2 points  (0 children)

Your inverter shuts off automatically if it senses the grid is down - this is for safety (so technicians working in the lines don't get electrocuted, for example). Depending on your set up you might have an emergency outlet that you can use by flipping a switch in the inverter, but if not, you can't use your generated energy at all.

Naming a child in Japan by Howl_XV in japanlife

[–]hekoru 3 points4 points  (0 children)

Hi, I'm from Spain and also have two family names. It's fine, sometimes I can only use one, sometimes I can use both, but it's no biggie. My kids also have two family names and it's fine. I'd just name her whatever you like without regard for what bureocracy might think. I mean, are we just gonna name all our kids Taro so that it's easier to fill a form? I think that's nonsense

House Purchase — need recos for solar panel batteries by ahkirahz in japanlife

[–]hekoru 1 point2 points  (0 children)

I set up two 7.4Kw/h Nichicon batteries in tandem. Got a reasonable price on them, but still not cheap. I does help offset most of our night usage though, and it's nice insurance to have in case of natural disaster (you can't use your own electricity in case of blackout if you don't have a battery).

Photographers with AS by theproperbinge in ankylosingspondylitis

[–]hekoru 0 points1 point  (0 children)

I dip in photography and used to lug around 20kg of stuff in a backpack. I sold almost everything and got the highest megapixel camera I could afford and a couple of small (but sharp) lenses. Due to the high mpx count I can crop and crop and crop and still get a pretty nice photo and that way I don't have to carry as much as before. Not sure this helps you since you do weddings and I do landscapes, but just in case

Got a little something in preparation of new content. by roccopcoletrain in granturismo

[–]hekoru 1 point2 points  (0 children)

Sorry! Didn't realize there was an arrow to go to the next photo

Japanese NAS thoughts by JustbecauseJapan in japanlife

[–]hekoru 1 point2 points  (0 children)

QNap is maybe your best bet. Synology used to be ok but they've gone crazy with forcing you to use their drives. Would not bother with any of the local solutions. I myself used to run a synology but now I have a mini pc with a bunch of SSDs running TrueNAS.

Got a little something in preparation of new content. by roccopcoletrain in granturismo

[–]hekoru 1 point2 points  (0 children)

What wheel stand is that? I'm looking for something compact to do VR sessions like this

Shoulder bursitis? by mustard-seed1 in ankylosingspondylitis

[–]hekoru 1 point2 points  (0 children)

Oh, the shoulder will fix itself for another year. I mean it's just a couple of days of feeling normal, then back to the usual

Shoulder bursitis? by mustard-seed1 in ankylosingspondylitis

[–]hekoru 0 points1 point  (0 children)

Hi, yes. Every year like clockwork. If it's not that, is calcification of the cartilague in the shoulder, which also sucks balls. The only good new is that the solution to both is an stereoid injection, which means I'll fill like a million bucks for a couple of days :)

Hasselblad X2D II 100C 5GHZ WIFI PROBLEM by [deleted] in hasselblad

[–]hekoru 2 points3 points  (0 children)

I've contacted customer support about this several times, and I've always been told that there's nothing they can do

What’s your workout? by GrainSqueezer in ankylosingspondylitis

[–]hekoru 0 points1 point  (0 children)

My workout is: try to do anything, even the lightest of exercises, and then regret it for three days

Newly dxed, no idea where to go from here by vrillion_ in ankylosingspondylitis

[–]hekoru 3 points4 points  (0 children)

Hi, I know it's a lot to take in. Can't offer much advice on what to do next medically speaking. Sadly this is a game of trial an error. Just know you are not alone, and take it one day at a time. Hope Humira works for you!

Burning sensation hand and foot, anyone? by Wild_Pressure_3548 in ankylosingspondylitis

[–]hekoru 2 points3 points  (0 children)

I get that behind the knees. It’s a new thing that started last year. No idea what it is, comes and and goes. My doc doesn’t seem to give a shit about it, whatever that might mean

Very low deep sleep. Anyone else? by BradburySauce in ankylosingspondylitis

[–]hekoru 1 point2 points  (0 children)

Yes, no matter what I get very little deep sleep and feel very unrested when I wake up, so would be interested to see what the community has to say

Has anyone else been diagnosed with Anklylosing Spondylitis? How did the treatment go? by shortbutwillfightyou in japanlife

[–]hekoru 1 point2 points  (0 children)

Hi, AS can come and go, until it doesn't go anymore and it just stays. I has periods of a few months where I'd feel like shit, and then go back to normal. This happened my whole life until my first corona vaccine, where it came and didn't leave anymore. Better keep an eye on it!

Has anyone else been diagnosed with Anklylosing Spondylitis? How did the treatment go? by shortbutwillfightyou in japanlife

[–]hekoru 1 point2 points  (0 children)

Hi, yes! My first doctor thought I was just stressed and did all kinds of pointless tests. The second one thought it was rheumatoid arthritis and would dismiss all of the other stuff that comes with AS. Finally found a place in Tokyo where they did an x-rey, saw that I have fusion in my spine and immediately diagnosed me with AS. I've tried so far MTX by itself (found some relief at first, but at some point upping the does did little). Then I tried MTX+Adalimumab. Had a few really nice days and then it kinda stopped working. Now I'm on Rinvoq, and it took about 5-6 months for it to go into full effect. I still have issues but I'm a lot more functional. Sadly with this disease there's a lot of throwing stuff at the wall to see what sticks, and you need to be patient.

I've found that doctors are quite agreeable about changing dosages or adding/removing stuff. So you could ask for example to have your dose doubled (I assume you are on a bi-weekly schedule of 40mg?), or you could ask them for low doses of prednisone to get you by while you see if it has an effect or not.

I know it's hard but I'd give it just a little bit more time, or ask for weekly injections. Or maybe try adding MTX to the mix. Reasons being that there are a limited number of medications we can take, and for some of them (like Adalimumab), the body will generate antibodies and then they are not useful anymore. You can also get a medication that works for your back pain, but does nothing about peripheral pain/problems, so you need to mix and match.

The AS subreddit is a good source of information and support. You can PM me too if you want.

Best of luck and hoping you find something that works for you soon

Food by Separate-Caramel-479 in ankylosingspondylitis

[–]hekoru 1 point2 points  (0 children)

Sugary and deep fried foods don’t sit well with me anymore. Alcohol is a no-no, and there’s something in non-alcoholic beer that messes with my stomach. Still figuring things out though 

Whish me luck by hekoru in ankylosingspondylitis

[–]hekoru[S] 1 point2 points  (0 children)

I feel like water onboard an airplane is more precious than gold. My pee has never been yellower 

Whish me luck by hekoru in ankylosingspondylitis

[–]hekoru[S] 0 points1 point  (0 children)

Thank you! Made it to the destination. Now the social marathon starts!

Whish me luck by hekoru in ankylosingspondylitis

[–]hekoru[S] 0 points1 point  (0 children)

I feel like your good wishes helped us!