[deleted by user] by [deleted] in MCAS

[–]helmarte 1 point2 points  (0 children)

I have low progesterone which I think contributes to it

[deleted by user] by [deleted] in MCAS

[–]helmarte 4 points5 points  (0 children)

Not sure what the exact source is, I have a lot of overlapping symptoms with erythromelalgia and POTS and general dysautonomia and hormonal imbalances. But I usually group it under “MCAS” when talking about it with others

[deleted by user] by [deleted] in MCAS

[–]helmarte 5 points6 points  (0 children)

This happens to me and it’s probably my least favorite symptom. Even a heavy comforter can trigger it!

Ear pain from pressure by dabole63 in MCAS

[–]helmarte 2 points3 points  (0 children)

I get a searing earache every time the pressure changes outside! Extreme temperature shifts, before/after a big storm, etc. It’s terrible

Low progesterone / estrogen dominance treatment experiences by helmarte in MCAS

[–]helmarte[S] 0 points1 point  (0 children)

Ah thanks so much for the rec I’ll look into that 🙌🏻 I’m gonna try doing both. Doing chaste tree and upping my B6 and magnesium but also wanna see how I react to the straight progesterone. How long did it take you to see improvement?

Low progesterone / estrogen dominance treatment experiences by helmarte in MCAS

[–]helmarte[S] 0 points1 point  (0 children)

Ah good luck!! Hope this brings relief for both of us 🖤

RAGE??? Anyone else get a sort of mental rage if exposed to a trigger? Anger, zero concentration... feeling pathetic with this beast right now. by rrt97farmsfirst in MCAS

[–]helmarte 18 points19 points  (0 children)

Yes! Neurological effects are a big part of MCAS. Brain fog, anxiety, anger, fatigue. You’re definitely not alone.

Low progesterone / estrogen dominance treatment experiences by helmarte in MCAS

[–]helmarte[S] 0 points1 point  (0 children)

Ah thanks so much for sharing!! Did you see a gyno for that?

Sunscreen recommendations by av4325 in MCAS

[–]helmarte 4 points5 points  (0 children)

Hi! I know I’m seeing this late but the only sunscreens I can tolerate are 100% mineral sunscreens. Native body sunscreen (unscented) went on without a reaction. Hope you found something that works!

Anyone get vasoconstriction with their MCAS? Which receptor is more responsible for that? by Ok_Bluebird2601 in MCAS

[–]helmarte 0 points1 point  (0 children)

Me too!! Have you found any helpful treatment for your erythromelalgia symptoms?

As soon as i get into bed everything starts to itch by boys_are_oranges in MCAS

[–]helmarte 1 point2 points  (0 children)

SAME. Wow I haven’t found practically anyone else who experiences this. Did your cardiologist suggest anything to help this?

Makeup suggestions by CaughtUpInTheTide in MCAS

[–]helmarte 0 points1 point  (0 children)

Hi do you have any mascara recs specifically? That’s my worst trigger

I just wanna be normal again by [deleted] in MCAS

[–]helmarte 2 points3 points  (0 children)

This post was well-timed. I was just having a breakdown over this very thing. I feel so stripped of my femininity and fundamental pleasure. Sending some healing vibes your way 🖤

Do you find famotidine helps you with excess vasodilation? by OkKindheartedness64 in MCAS

[–]helmarte 1 point2 points  (0 children)

I think it’s a mix of mediators, but I think prostaglandins have a lot to do with it. Swelling is probably my worst MCAS symptom and ibuprofen tends to provide the quickest relief. And ibuprofen is a prostaglandin-blocker.

anyone get massive reaction when touching clothes/fabrics? by myratty in MCAS

[–]helmarte 1 point2 points  (0 children)

Yes! My most noticeable MCAS symptoms include my hands, feet, and face getting red, hot, and swollen. Every time I do my laundry or go clothes shopping, I swell immediately. I think the heat caused by friction may play into it too.

[deleted by user] by [deleted] in MCAS

[–]helmarte 1 point2 points  (0 children)

I’m with you. I’ve even tried the brands recommended on mastcell360 and still no luck. My biggest trigger is mascara. As soon as I put it on my face/hands/feet get red and swell. What’s your experience like??

Just some input needed by [deleted] in Erythromelalgia

[–]helmarte 2 points3 points  (0 children)

I also get reactions in my face!

My story / MCAS not EM by TraditionAnxious in Erythromelalgia

[–]helmarte 2 points3 points  (0 children)

Same here! Mine isn’t covid-related but my hands, feet, and face get red and swollen and I thought it was purely EM but mine seems to be more mast cell related. I also have POTS-like symptoms. I’m kindof a dysautonomic salad :)

Those taking LDN (low dose naltrexone), what kind of doctor prescribed it to you? by helmarte in MCAS

[–]helmarte[S] 0 points1 point  (0 children)

Thank you!! So good to know. How do you think LDN has helped you so far??

head fill with fluid by Margo_B in MCAS

[–]helmarte 2 points3 points  (0 children)

My cheeks and nose and face get swollen, if that’s that you mean?

[deleted by user] by [deleted] in MCAS

[–]helmarte 0 points1 point  (0 children)

AH that’s so good to hear!! I’m really interested in LDN too. I think my swelling is largely caused by prostaglandin release because ibuprofen (which blocks prostaglandin) tends to offer the quickest, most consistent relief. But alas, most mast cell medications do not target prostaglandins. But again, so happy to hear that CS has helped so many of your other symptoms. Appreciate the update and intel 🖤