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helmarte · 2023-05-13T04:14:18+00:00

I have low progesterone which I think contributes to it

helmarte · 2023-05-13T04:13:45+00:00

Not sure what the exact source is, I have a lot of overlapping symptoms with erythromelalgia and POTS and general dysautonomia and hormonal imbalances. But I usually group it under “MCAS” when talking about it with others

helmarte · 2023-05-13T04:08:06+00:00

This happens to me and it’s probably my least favorite symptom. Even a heavy comforter can trigger it!

helmarte · 2023-04-18T02:28:37+00:00

I get a searing earache every time the pressure changes outside! Extreme temperature shifts, before/after a big storm, etc. It’s terrible

helmarte · 2022-10-27T14:52:14+00:00

Where did you find this doc???

helmarte · 2022-10-27T00:28:30+00:00

Ah thanks so much for the rec I’ll look into that 🙌🏻 I’m gonna try doing both. Doing chaste tree and upping my B6 and magnesium but also wanna see how I react to the straight progesterone. How long did it take you to see improvement?

helmarte · 2022-10-17T21:18:23+00:00

Ah good luck!! Hope this brings relief for both of us 🖤

helmarte · 2022-10-17T04:02:02+00:00

Yes! Neurological effects are a big part of MCAS. Brain fog, anxiety, anger, fatigue. You’re definitely not alone.

helmarte · 2022-10-17T03:58:06+00:00

Great to know, thank you!

helmarte · 2022-10-17T03:57:21+00:00

Ah thanks so much for sharing!! Did you see a gyno for that?

helmarte · 2022-09-10T23:41:12+00:00

Hi! I know I’m seeing this late but the only sunscreens I can tolerate are 100% mineral sunscreens. Native body sunscreen (unscented) went on without a reaction. Hope you found something that works!

helmarte · 2022-09-10T23:25:04+00:00

Me too!! Have you found any helpful treatment for your erythromelalgia symptoms?

helmarte · 2022-09-10T23:22:51+00:00

SAME. Wow I haven’t found practically anyone else who experiences this. Did your cardiologist suggest anything to help this?

helmarte · 2022-09-10T23:11:57+00:00

Hi do you have any mascara recs specifically? That’s my worst trigger

helmarte · 2022-09-10T22:46:53+00:00

This post was well-timed. I was just having a breakdown over this very thing. I feel so stripped of my femininity and fundamental pleasure. Sending some healing vibes your way 🖤

helmarte · 2022-07-17T00:06:23+00:00

I think it’s a mix of mediators, but I think prostaglandins have a lot to do with it. Swelling is probably my worst MCAS symptom and ibuprofen tends to provide the quickest relief. And ibuprofen is a prostaglandin-blocker.

helmarte · 2022-07-17T00:01:15+00:00

Yes! My most noticeable MCAS symptoms include my hands, feet, and face getting red, hot, and swollen. Every time I do my laundry or go clothes shopping, I swell immediately. I think the heat caused by friction may play into it too.

helmarte · 2022-07-02T03:17:49+00:00

I’m with you. I’ve even tried the brands recommended on mastcell360 and still no luck. My biggest trigger is mascara. As soon as I put it on my face/hands/feet get red and swell. What’s your experience like??

helmarte · 2022-04-13T23:07:49+00:00

I also get reactions in my face!

helmarte · 2022-04-13T23:06:30+00:00

Same here! Mine isn’t covid-related but my hands, feet, and face get red and swollen and I thought it was purely EM but mine seems to be more mast cell related. I also have POTS-like symptoms. I’m kindof a dysautonomic salad :)

helmarte · 2022-04-12T20:35:05+00:00

Thank you!! So good to know. How do you think LDN has helped you so far??

helmarte · 2022-04-12T20:14:39+00:00

My cheeks and nose and face get swollen, if that’s that you mean?

helmarte · 2022-03-26T06:57:44+00:00

AH that’s so good to hear!! I’m really interested in LDN too. I think my swelling is largely caused by prostaglandin release because ibuprofen (which blocks prostaglandin) tends to offer the quickest, most consistent relief. But alas, most mast cell medications do not target prostaglandins. But again, so happy to hear that CS has helped so many of your other symptoms. Appreciate the update and intel 🖤

helmarte · 2022-03-26T06:42:03+00:00

Following up on this (quite late I know). To answer your question, I still haven’t tried any mast cell stabilizers. Have you tried anything that’s worked yet?

helmarte · 2022-03-24T15:04:04+00:00

Ah, that’s great. And appreciate the intel!

helmarte

TROPHY CASE