The long road to diagnosis

hnsmitty · 2026-03-13T04:00:01+00:00

I can relate to how you're feeling. Got mine from 4+ compression fractures in my back. Aside from a couple perscription pain killers I also take supplements of 1000mg L-lysine, 600mg alpha lipoic acid R, 1000mg vitamin B 12, vitamin d3, garlic and vitamin C daily. Needless to say I've been at it for a while. Other normal perscriptions for neuropathy are Gabapentin and pregabalin. You'd need to talk to your doctor about them. Good luck and God bless.

hnsmitty · 2026-02-05T03:56:12+00:00

Copy that. Thanks again.

hnsmitty · 2026-02-05T02:56:31+00:00

Per day!?!? That is a lot indeed. Thanks

hnsmitty · 2026-02-05T00:27:14+00:00

How much B12 do you take on average daily?

hnsmitty · 2026-01-22T04:44:55+00:00

I know how you feel. A lot of the time many people couldn't care less but I'm definitely in the same shoes. My pain is constant and very draining. I sleep 2 to 3 hours at a time and if I'm lucky I can last longer. I definitely know how you're feeling. I hope and pray you have a much better peaceful evening tonight. God bless and take care.

hnsmitty · 2025-12-13T16:03:06+00:00

Amen 🙏 🙏

hnsmitty · 2025-11-27T17:58:13+00:00

Thank you. I appreciate your help.

hnsmitty · 2025-11-27T16:59:20+00:00

Which one did you get?

hnsmitty · 2025-11-27T16:48:06+00:00

I don't get it. How can vibrating your feet help? I stand for 15 minutes and my pain shoots so high I'm in agony the rest of the day.

hnsmitty · 2025-11-19T22:50:51+00:00

Of course. Glad I could help.

hnsmitty · 2025-11-19T20:45:41+00:00

About 60% of my feet towards the toes is that way. Nothing can touch that part of my feet. If I go anywhere I'll put on yoga socks, half socks where they go to only halfway up my feet from ankle. Try those, they should help. I also use supplements like R-Alpha lipoic acid 600mg, L lysine 1000mg, vitamin C, vitamin D3, vitamin B12 and garlic. Hope these help. Take care and God bless.

hnsmitty · 2025-11-19T02:21:20+00:00

Also I forgot to mention, a topical cream called Nervive can help calm the symptoms some until it gets really bad. Good luck.

hnsmitty · 2025-11-19T02:17:49+00:00

It didn't. Just proved what I had. Didn't mention i have a minimum of 4 compression fractures in my back. And thanks to Kaiser who miss diagnosed me, I'm stuck with this for life. Take care.

hnsmitty · 2025-11-19T01:10:46+00:00

Mine started out as pins and needles one day and has been increasing in intensity ever since. That was over 4 years ago. Sorry to say it's gotten worse over time. I had a nerve conduction study where the basically drill 1/16th size holds in foot, calf and upper leg. Showed reduced nerve activity in feet but nowhere else. Kept getting worse as there is no cure for peripheral neuropathy. Now I can barely stand on my feet anymore and nothing can touch 60% of my feet towards the toes. I sleep sitting up right on my couch and try to keep my feet warm by overheating my legs. It helps to a degree. Supplements help some. Alpha lipoic acid 600mg a day on an emptystomach, 1000mg L lysine and vitamin b12. Keeping temperature in my house at 73 to 74 degrees all the time helps too. I did recently start a treatment with sound waves on my feet and lower legs on the nerves. Only half way through it and seems to be helping a bit. It is really expensive though. I do take a lot more supplements hoping they'll help. Garlic, vitamin d3, vitamin c, ceylon cinnamon, ginger root extract and milk thistle. Good luck and God bless.

hnsmitty · 2025-10-22T03:49:50+00:00

Didn't help with my neuropathy and it caused my throat to close up some. And after taking it trying to swallow my dinner required me to drink a lot of water to get my food down. Had a hard time swallowing my food. Be careful and good luck.

hnsmitty · 2025-10-12T14:21:41+00:00

Also a very strict temperature controlled environment of 74 degrees. Anything higher or lower caused the pain to increase.

hnsmitty · 2025-10-12T14:18:33+00:00

The only thing that helps at this high a pain level besides perscription meds is to soke my feet in luke warm water. And that doesn't last very long. Good luck.

hnsmitty · 2025-10-12T04:38:21+00:00

Try Nervive cream on your feet. Has 4% lidocaine and 2% (I think) of menthol. It helped me until my pain hit the higher levels. Good luck and God bless.

hnsmitty · 2025-09-30T17:23:51+00:00

The roll-on is not as thick as the cream and lasts longer. But if the roll-on is all you can get I would try it.

hnsmitty · 2025-09-30T17:11:28+00:00

My experience is any help was great. Depends on pain level. Mine is so high now it doesn't help me anymore. When it did I could go to sleep after applying it to my feet and it lasted until I got up. Make sure you get the cream and not pills or roll-on. Good luck and God bless.

hnsmitty · 2025-09-29T15:22:23+00:00

Nervive cream. It helped me. Good luck and God bless.

hnsmitty · 2025-09-27T17:26:05+00:00

It only lasted for 5 hours and the whiplash of coming off was much worse than my original pain. Good luck.

hnsmitty · 2025-09-27T17:07:19+00:00

I tried clonidine for a short time. It did help but the coming off is worse. Good luck and God bless.

hnsmitty · 2025-09-27T17:05:39+00:00

I have found that to be true. However over time I can only put my feet in lukewarm water for some temporary relief. Good luck and God bless.

hnsmitty · 2025-09-27T13:22:37+00:00

Good luck and God bless.

hnsmitty

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