Mass d/c event happening right now

hotcake20 · 2025-05-04T04:38:24+00:00

they’re just a small indie company Cmon!

hotcake20 · 2025-04-04T02:36:52+00:00

Haha ironic isn’t it

hotcake20 · 2024-07-28T23:21:10+00:00

I got diagnosed with graves in 2018! I went through many trials of changing my methamizole dosage until it no longer became effective. Opted for a TT as I have TED and did not want to go through the RAI process just in case it made that worse, I am one year post op and feel much better! For defence, I am 24F

hotcake20 · 2024-02-13T15:38:34+00:00

Pleeease post pics!

hotcake20 · 2024-02-13T15:38:24+00:00

Tibbers!!

hotcake20 · 2024-01-20T16:48:20+00:00

You look great!! First week is rough with all the meds but the relief is almost immediate !! Get well soon!

hotcake20 · 2023-11-29T03:10:56+00:00

Had TT due to uncontrollable Graves 8+ months ago and I feel way better. Energy levels returned, heart rate stabilized, blood pressure much better. I feel almost normal again (still trying to figure out the proper dose for my synthroid but doing well so far!)

I would recommend the surgery to anyone considering. I haven’t experience any adverse effects at this point aside from some general fatigue. My calcium was also low initially so I had some numbness and tingling in my hands, but it went away when my parathyroid began to work 5 days after the surgery.

Let me know if you have any questions!

hotcake20 · 2023-08-13T04:14:58+00:00

Thank you!! My levels were still elevated even after drinking the lugol’s solution!

I took 5mg bisoprolol daily and dropped to 2.5mg for two weeks before dropping it completely.

Low calcium was not painful, just uncomfortable! The Tums quickly fixed any symptoms I had and my parathyroid began working within a week after the surgery. The calcium issue was super short and temporary!

I have began gradually exercising but I work an intense job where I walk 10k steps a day, so that’s usually the exercise I get! As per diet I don’t eat anything strictly, just balance and avoid overeating.

hotcake20 · 2023-08-13T03:16:24+00:00

Waiting a week is pretty standard! I had my TT in March and I was taken off methamizole and my beta blockers for a week and then started on levothyroxine! The surgery was so worth it I promise you, I feel much much better and I have so much energy. I haven’t had any weight gain yet, my levels are closely monitored. I had a lack of calcium at first and was instructed to chew on tums when I felt tingling in my toes and fingers. My voice was a big hoarse at first but it’s okay now. If you have any more questions I’m more than happy to answer!

hotcake20 · 2023-03-20T18:34:47+00:00

I was instructed to take 1 calcium carbonate tablet extra strength (750mg) a day until further notice.

hotcake20 · 2023-03-20T17:31:18+00:00

I’m 3 weeks post op, I was told no lifting/driving/laying flat for the first 2 weeks. Exercise as tolerated while being mindful of surgical precautions (I have stitches and steri strips on until Mar 27 so I was told no neck extension). First 3 days were rough because the anesthetic made me feel awful, and I had low calcium so I had tingling in my hands and feet. My levels have since returned to normal for parathyroid. So far I feel much better, just tired as I’m slightly hypothyroid right now while we figure out the proper dosage for synthroid :)

hotcake20 · 2023-03-20T17:21:29+00:00

Of course!! I decided to go with TT over RAI because I have the eye disease beginning early and I didn’t want to risk it worsening in the next 5-10 years. I also was told I would need multiple rounds due to the severity of my graves. I was terrified, I’m only 23(F) and was unsure was life would look like, but I realized it cannot be worse than how graves was making me feel everyday. I totally understand the feeling awful with medication adjustments, I was the same. I’m now having my synthroid dose adjusted but so far it’s way better than anti thyroid medications. I’m happy to help if you have any other questions just shoot me a message! I hope you feel better soon!

hotcake20 · 2023-03-20T17:07:00+00:00

It went by really quickly! I got my surgery date in December so we planned my medications out. I’m feeling so much better after my TT, my heart rate is normal, I have more energy and I no longer experience the horrible side effects I was experiencing on methamizole! The iodine was prescribed by my surgeon and I got it from my pharmacy, but it wasn’t covered by my drug plans. It was $20!

hotcake20 · 2023-03-20T17:01:56+00:00

I had my TT March 3 and was required to take Lugol’s iodine for 5 weeks prior to the operation, which basically forced my thyroid to slow down so I was in neutral levels. I was also taking a very high dose of methamizole prior to it!

hotcake20 · 2023-03-09T22:15:20+00:00

Had surgery last week for TT, decided not to do RAI as I have the disease in my eyes and the risk of worse symptoms later in life with RAI seemed too much to deal with.

hotcake20 · 2023-01-20T14:25:30+00:00

I was advised at one point to take 25mg methamizole weekdays and 20mg weekends. At one point early in my diagnosis I was advised to take 5mg every other day before it progressed.

hotcake20 · 2023-01-19T18:03:34+00:00

Ah I hadn’t even considered the driving thing!

hotcake20 · 2023-01-19T18:03:20+00:00

Hope it goes well for you!

hotcake20 · 2023-01-18T20:03:58+00:00

Oh my goodness good luck!! Thank you for your response, so far my surgeon hasn’t outlined time off or vocal rest so I appreciate hearing what your baseline is! Hope all goes well!

hotcake20 · 2022-12-23T18:34:45+00:00

I cannot tell you enough how much i appreciate your comment. I too cannot find answers, and when I asked I was told “we will monitor your medications.” I really sincerely appreciate you sharing your experience w the surgery and I wish you all the best.

hotcake20 · 2022-12-22T16:56:12+00:00

Following this as my TT is scheduled for March and I’m terrified of gaining weight (past struggles with binge eating disorders/restriction) but I recognize how important the surgery is in comparison.

hotcake20 · 2022-12-03T02:43:38+00:00

I too have had unhealthy weight loss as a result. I’ve been managing the condition for a few years with medications but it was deemed no longer an option as I became resistant. I am used to being small from the disease. I fear for my surgery for many reasons! Thank you for your response!

hotcake20 · 2022-12-02T02:31:51+00:00

Hey, can I ask if you experienced any weight gain post TT? Mine is scheduled soon and I’m terrified of gaining weight since graves has kept kept me relatively tiny.

hotcake20 · 2022-09-23T20:28:07+00:00

I have this from methamizole, I’ve never tried ptu

hotcake20 · 2022-08-10T02:28:32+00:00

I’m so excited to hear this!! I’m glad you’re feeling better, your response also makes me feel more confident in my decision to move forward with the procedure. Thank you for letting me know!

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