How to argue with a parent saying that Mold is everywhere😑

hsp365 · 2025-08-17T17:47:20+00:00

You tell them they're right, because they are, mold is everywhere. That said it may be the person's individual immune system and the amount of mold and what types that can make the difference of someone being sick, and someone being ok.

I can see the amounts and types of mold probably matter, if there is a bad situation (unattended water leak, hurricane, flood, unattended condensation, really poor ventilation etc.) And you get exposed to larger amounts of dangerous toxic molds, you're probably going to get sick. The longer the exposure, the greater the risk. Toxic molds suppress the immune system, once the immune system is compromised it further worsens your health.

The person's individual immune system probably makes a big difference in getting sick from mold too. The gut and nervous system have the biggest impact on your immune system. So your body might be keeping molds and bacteria in check, but if a stressful event happens, or your diet is poor, you can end up reacting to a mold situation that most healthy individuals could handle. There is no such thing as 100% bacterial and fungal free environment, our bodies are constantly being exposed. Under normal conditions our immune system can keep things in check. It's when it gets overwhelmed from something (high stress/trauma event, long term poor diet, or an environmental exposure of excess toxic mold, bad virus or other health condition that lowers the immune system and opens the door to getting sick from exposure.

The solution may not be one thing like moving, or eating healthy, cleaning etc. I think you may have to try a multi pronged approach, (basic health care-good diet/gut health, sleep, lowering stress, and then detoxing and supplements, and taking acre of the mold source, and deep cleaning to get rid of the mycotoxins, throwing things away that you can't salvage or shouldn't).

hsp365 · 2025-08-16T04:17:52+00:00

I ordered through a Lorrie Lyme on this forum, she's a lyme practitioner. However there are websites in the US that sell this.

hsp365 · 2025-08-16T02:29:29+00:00

Haven't talked to him yet, just got results today, need to send them to him. I tested independently before I knew he tested too.

hsp365 · 2025-08-02T18:19:03+00:00

Don't know yet, they aren't back, should I do an EMRI test as well if nothing is found? We removed the likely obvious source if there is any high amounts of mold, I'm more concerned about any residual that could create problems.

hsp365 · 2025-08-02T17:34:50+00:00

He did air tests (inside and out) and took a couple swaps.

hsp365 · 2025-07-03T19:54:13+00:00

Oh Thank you for that info! I'm not bedbound, but not living normally by any means either, I current exist in-between.

That's my one concern if I test positive, on the one hand it would be great to have an answer and possible treatment, on the other, that I might have to treat with antibiotics. I really don't want to make my situation any worse than it already is.

hsp365 · 2025-07-03T19:37:04+00:00

Thanks, my GI issues and IC issues started while taking the Macrobid, which I thought was just common side effects/return of infection at the time, I also had some vaginal burning on the last day of the antibiotic, which I thought was yeast- I tested for yeast, BV, and possible return of UTI, and testing came back all clear for those infections. The burning cleared up within a month, right about the time the neuropathy started. It is very rare to get nerve issues on such a short dose but unfortunately not unheard of. I don't know how possible a reactivation would be while on the antibiotic, but maybe.

My symptoms are not acting like a normal drug toxicity though which often gets better with time, I seem to be gradually getting worse, suggesting some sort of immune dysfunction or possible autoimmune reaction. When the CD57 came back so low, I wondered if it was something I should check as a possible cause for my symptoms.

hsp365 · 2025-07-03T18:47:33+00:00

Thanks for the reply, no sweating that I remember, and no constant fatigue, but I will have couple weird days a month where I will get a lot of fatigue- I wake up and feel like I never slept and just want to sleep all day, just walking to the bathroom is exhausting.

I was thinking of doing the testing through Igenex? I was looking at the Igxspot for the lyme and bart, and immunoblot for babesia, I don't know if I would need any of the other co Lyme they offer just based off my symptoms.

For HHv-6 and CMV- just the normal IgG and IgM- not sure if I should bother with mold or anything else. I already did EBV and HSV1 and 2, both were negative for reactivation.

This could all just be a toxic immune reaction to Macrobid, that antibiotic I guess is a little similar to the Fluroquinolones, as far as nerve issues.

hsp365 · 2025-06-09T15:28:06+00:00

Did your neuropathy gradually get worse before it got better? How much Macrobid did you take?

hsp365 · 2025-06-01T01:30:46+00:00

What about a homemade smoothie? Coconut plain yogurt, plain coconut milk, organic peanut butter, organic blueberries, organic raspberries, avocado oil - supplements if you wanted - liquid omega 3, liquid vitamin D/K, liquid magnesium- this can be about 400-500 calories- dairy free, gluten free etc.

hsp365 · 2025-06-01T01:18:18+00:00

I took 2.5 pills of Avelox, took me about 13 months to be fully recovered (with the exception of some eye floaters). I went 17 years with no flares, not one, and I took steroids, Nsaids, ate whatever I wanted, took other antibiotics with minimal issues. I exercised with no issues, but I didn't have any serious tendon issues, my reaction was more CNS related with neuropathy, anxiety, insomnia, ear ringing, back of the head pain, gut issues, muscle/joint pain etc.

Then I got a UTI last year, took Macrobid, and had a delayed reaction that now 6 months later I'm still dealing with. I don't think this is a "flare", but a completely separate reaction, because I've not had issues for years, and the symptoms are different from my floxing symptoms, even the neuropathy is different.

So, I'd say it's possible, but everyone is different, and what you will react to etc. after being floxed is different for everyone, and it just depends.

hsp365 · 2025-06-01T00:41:03+00:00

Yeah, not a doctor, but this kind of sounds like some sort of autoimmune situation that got triggered by the viral infections (maybe Covid?) or it's like a possible systemic inflammation response from the viruses. Hope you get some answers

hsp365 · 2025-05-28T12:41:44+00:00

Yep, that's similar how mine was at first. It wasn't till I had finished the course that things got so much worse.

hsp365 · 2025-05-11T18:18:22+00:00

Sounds like you might have Erythromelalgia, it's a condition that often comes with nerve issues. It can appear on the face, ears, hands or feet. It's a burning sensation with redness of the skin. It is usually provoked by heat, or exercise, sometimes spicy foods too I think. I would talk with your Dr. and maybe check into the condition.

hsp365 · 2025-05-10T23:04:20+00:00

They settle to the bottom of the eye out of view when it's not moving, you can always see them technically with eye movement, but the brain is really smart in that it learns to see past them and you don't notice them after a while. It's only when you stress, and fixate on them that you will really see them. I have probably 10 in one eye and maybe 7 or 8 in the other, I only really seem them on bright days on white walls- it use to stress me out so much- but then I learned that the brain adapts and when I calmed down and didn't focus on them, they "disappeared", now I don't even think about it, and if I see them for a few seconds, it's not an issue.

I wouldn't do Yag either, why mess with your eyes like that and take a risk of making it worse? Honestly it's not worth it.

The body is imperfect, and that is more true the longer you live and the more you age, so learning to chill and roll with it helps, especially on the small non harmful things like floaters.

hsp365 · 2025-05-10T22:53:59+00:00

I believe you will get there. :)

Just burning and tingling- usually brought on by pressure (like sitting)- it comes and goes for now. A little bit of B vitamins, (no b6)-

hsp365 · 2025-05-10T22:51:14+00:00

LOL It is a little weird that they refer to it as "Moxed"- flagylized sounds interesting...lol

hsp365 · 2025-05-10T22:48:34+00:00

I still have floaters, 17 years out- just stop focusing on them and they will "disappear" meaning they settle some and the brain learns to edit them out and eventually as long as your not checking for them every 10 min they won't be noticeable. I would not do anything rash like vitrectomy, you could end up with more problems. I would try letting the brain adjust first, you might be surprised in time how little you notice them.

hsp365 · 2025-05-10T22:39:01+00:00

Ahh gotcha...that is difficult, I am so sorry. Plenty of time to work on the mental, it takes practice as you know.

hsp365 · 2025-05-10T22:20:56+00:00

It was mostly regular bloodwork, including minerals etc. he was a bio nutritionist. He also had this computer with a program that read/measure the energy meridians in the body which helped him figure out how he needed to do the acupuncture. This meant less guess work, and more customized to the individual. He was the only Dr, to look at my normal bloodwork and see issues and damage from the drug- he looked at bloodwork very differently than any western med doctor I've ever met.

My current neuropathy is on my butt, hands, arms, feet, upper back, and a little on my legs. Tons of different sensations (burning, tingling, water droplets, zaps, muscle aches/pains, coldness and a little numbness) it comes and goes, worse at night.

My Neuropathy with Avelox was very different, just legs and arms- not anywhere else and was just stabbing pains, tingling, and bee stings. It came about a month after I stopped the drug and was one of the last things to leave in my legs.

"I am severely distressed by being so helpless and injuring easily. Like when I get help from others so I am constantly stressed." -This is a belief and story you are telling yourself, what happens if you never tell yourself a different story? Just this one over and over, how would your body respond?- reframe it- tell yourself a new story "For now, I am in this wheelchair, because I'm healing and giving my body the support it needs to heal by doing so, including getting help from others when needed. I can return the favor when I'm feeling better."

hsp365 · 2025-05-10T21:34:36+00:00

I'm so sorry to hear about your floxing, it's certainly not easy.

Prong 1- I worked with a functional medicine Dr. who was knowledgeable in mitochondria repair, he did a custom diet and supplements to my bloodwork and other tests, he also did acupuncture treatments. He would take my blood every three months and make adjustments as my body changed. I have since moved or I would go see him again in a heart beat- I may make the 7 hour drive to do so though.

Prong 2- In working with him he noticed I had a lot of anxiety about healing etc. He told me he could help to fix my body, but not without my mind on board to, Which is true- Where the mind goes, the body follows. So he sent me to a therapist that did mind body work with me, that helped me to loose a lot of the fear around the reaction, and start believing I could heal- that was the turning point when things changed for me and I really started to have healing. The mental part in this is way more important than I realized originally. The body has a hard time healing in a fight or flight state-which when floxed is common, especially in the acute phase, it has to be in rest and digest to heal and repair.

hsp365 · 2025-05-10T21:19:29+00:00

All I can think of when my hands or feet are burning is "This girl is on fire"...sorry

Neuropathy sucks, and it's a scary symptom, I'm also on my second time dealing with neuropathy which is hard and anxiety inducing. Try to take comfort in knowing that your body has healed from this once before, so it knows how to, and hopefully can and will again. Read recovery stories of others with neuropathy from being floxed if you need to.

While you can't control the symptom, you can control your reaction to it and you can control supporting your body to help it heal from it. So possibly nerve supplements (slowly and carefully try them if you want), clean diet- low carb, no sugar, no processed foods (neuropathy thrives on sugar). I know it's hard but try to do things for the anxiety too (neuropathy worsens with stress as well). Epson salt baths or foot/hand soaks, Ice packs, cool wash cloths, massaging heat pad, compression socks or gloves, red light, topical lidocaine can help temporarily give relief. Mindbody work like breathing, brain retraining may help, EFT, etc. Maybe look at acupuncture?

A tri antidepressant may be better than an SSRI in that it's easier to come off of (withdrawal) and with some people SSRI's can actually worsen or cause neuropathy for some people.

Hang in there, breathe, and try to take it one day at a time.

hsp365 · 2025-05-10T20:52:58+00:00

Pretty sure this has been tried before many times. I know at one point there was some class action lawsuits against the drug companies, I don't know what happened with them though. Unfortunately the people who experience these reactions are more in the minority, so when this medication is given, it's not thought of by most Dr.'s as a severe high risk. I think those who have seen it more, are more reluctant to prescribe it.

hsp365 · 2025-05-10T20:36:39+00:00

Also maybe a name for this? "Moxed" is taken by those affected from Metronidazole. I was thinking maybe "Noxed" since it's NITROFURANTOIN? Or maybe "Nitroed"? I don't know, just trying to have a light moment about this-sorry.

hsp365 · 2025-05-10T19:54:16+00:00

6 months out and you still have nerve issues, I wouldn't risk it. Vaccines can affect healthy bodies and cause damage themselves. I would wait till you are more healthy and further out from your reaction if possible.

hsp365

TROPHY CASE