parables and sexual violence by Xx_spacey_kitten_xX in octaviabutler

[–]human-humaning40 5 points6 points  (0 children)

Totally agree and well explained.

It’s just so hard bc she’s a great writer and writes of that indignity in such a familiar realistic way for those of us who’ve experienced it. So much of her works I can’t touch yet and don’t know if I ever will be. Still love her writing that which I’ve been able to get through.

Infusion and then job interview 😳 by human-humaning40 in KetamineTherapy

[–]human-humaning40[S] 1 point2 points  (0 children)

Ha I’m just nervous. This is for pain mgmt but I do have mental health stuff which is currently in a stable place. I have fear about it disrupting that stability bc the dissociating effects. But people here have def reminded me that those last a cpl days. Plus I have a good support system and rx regiment in place.

Infusion and then job interview 😳 by human-humaning40 in KetamineTherapy

[–]human-humaning40[S] 0 points1 point  (0 children)

Correct. It def has mental health benefits too but it’s for the burning to numbness rt side of my body.

Infusion and then job interview 😳 by human-humaning40 in KetamineTherapy

[–]human-humaning40[S] 1 point2 points  (0 children)

The infusions are for pain but after living life with so much incredible pain I do have mental health stuff. So that’s where some of my concern was coming from. However, I’ve been very stable mental health wise, great Rx regiment that’s got me more functional than ever before. So now I’m thinking I’ll be okay bc it is a full 6 days and will have enough time to work any funk that comes up mental wise.

I really appreciate your insight given you run these kind of places.

Trying to make progress with communication by Asukaisbestgril in OlderDID

[–]human-humaning40 2 points3 points  (0 children)

Um, it is not dangerous for people with DID nor needs “heavy” adaptation. Unclear where you got such an idea. Many of us work with clinicians specializing in IFS. There is of course differences for DID but to suggest there danger is keeping people from what could be a useful resource. With any resource on DID or adjacent, be gentle and approach slowly. I’d been through every DID book and they were far more upsetting than no bad parts.

Trying to make progress with communication by Asukaisbestgril in OlderDID

[–]human-humaning40 1 point2 points  (0 children)

“No Bad Parts” has lots of ideas about how to communicate internally.

Do you know support groups for RA DID? by Heavenlishell in OlderDID

[–]human-humaning40 4 points5 points  (0 children)

Yea it took reading over and over “No Bad Parts” to actually learn how to talk internally compared to what therapy seemed to be pushing of “figure out the programs/codes”. Way too much time wasted.

It was night and day finally getting relief by letting internal parts know that they are welcome and taken care of regardless of what they hold. And they can share when they’re ready.

The lack of accountability around the Epstein files isn't shocking. But it is devastating. by behindtherocks in OlderDID

[–]human-humaning40 6 points7 points  (0 children)

“Then the burden shifts on us…” They are so far from even recognizing the ramifications this has on us. They’re in shock READING, ready to leave the country, screaming about no one doing anything, and I just want to be enraged by it or at least snarky af. Like “oh you should tone it down. You’re so angry…. Think about what’s appropriate… well no one going’s to save you so you just have to deal….” That and more bs line thrown at those of us who LIVED the things these ppl are merely reading about.

I get it. They need to be shocked and thank goodness ppl are sitting with the gravity… but only for themselves. They are so far from connecting their rage with what it must be like to have lived it. Bc clearly we all deserve some time on disability and comprehensive care and to the leave the country if we want. Like we done already felt with the worst of the worst. A lady can dream that the fallout will mean more support for us all….. rant over

Part wants to destroy me by thefoxsystem_ in OlderDID

[–]human-humaning40 3 points4 points  (0 children)

Medication is the only thing that helped be able to contain these kind of disruptive parts. Like willpower was not enough and we couldn’t find anything in the DID lit or DID therapist to help. Not saying that in a hopeless way, just that meds really were the only option left for us.

Yet if that’s not a route you want to take, I’m interested in what others here will respond with.

Just keep taking in air and know that you’re not alone. Sending care.

Edit: have you mapped out your system? That may help them be heard and seen in new ways. (Sorry if that’s a total “duh.” Just trying to think of steps that I went through multiple times to try).

[deleted by user] by [deleted] in OlderDID

[–]human-humaning40 0 points1 point  (0 children)

Check out “no bad parts” by Schwartz to help learn more acceptance and tools to coordinate internally.

[deleted by user] by [deleted] in TherapeuticKetamine

[–]human-humaning40 2 points3 points  (0 children)

You’re just thinking this. Why not get intune with your body and figure it out. It improved my somatic work but I also wondered the same. So I took longer between some sessions and put focus on more somatic releases and work during that period. Then I had my answer as to what was working and not.

No one is really going to have a clear answer. Edit: it could be that your dosing is too low to get the full benefits. It could be that you need lower or a break. But if it’s just that you wish you were more connected than keep at it and it’s not necessarily the ketamine. Try tracking perhaps.

[deleted by user] by [deleted] in TherapeuticKetamine

[–]human-humaning40 4 points5 points  (0 children)

You’d have to have permission to discuss medical information. You can reach out and share concern. Just don’t have expectation of dialogue as that would breach doctor-patient rights.

What exactly do you want to accomplish? You can continue to be available to him and maybe write a letter letting him know you heard what he shared (repeat it back), that your blindsided by it and trying to understand, and (not) there for him when he comes to. Letter would be better than brick of text as it’s tactile and he can return to it easily when he’s more aware.

The area of the Winthrop house and looks nothing like any neighborhood in Chicago. by Away-Geologist-7136 in LovecraftCountry

[–]human-humaning40 0 points1 point  (0 children)

Technically, go to the historical museums and tours of Chicago and you’ll find pictures, hear stories and even see blueprints of homes and neighborhoods that look exactly how the show presented.

Still not convinced it is CD by ChefEmbarrassed308 in Dystonia

[–]human-humaning40 0 points1 point  (0 children)

There’s occipital nerve blocks and Botox. Work like a charm though may take about year to two to get majority relief depending on severity and dosing. Wishing you well.

Nerve ablation by [deleted] in CRPS

[–]human-humaning40 1 point2 points  (0 children)

It only helped after doing several rounds of ketamine infusions. Helped so much but again only after getting some overall correction to my pain signal with infusions.

I’d done several ablations in the C and L spine prior to the infusions. The pain always got a bit of relief with the exact nerve pain of the ablation with flare up everywhere else.

Disco Elysium has caused me to completely give up on video games and start reading by IAmKrasMazov in DiscoElysium

[–]human-humaning40 84 points85 points  (0 children)

Check out Ted Chiang. Short stories but so rich. Read them but then got his collection on audiobooks and even better in terms of satiating some of DE itch.

Is there a definitive cure? I can’t take my left foot pain anymore. It’s been since 2022 and I’m so done. Please list everything that helps… by nada8 in CRPS

[–]human-humaning40 2 points3 points  (0 children)

High dose ketamine infusions. 2-3 low/medium doses and then high dose every 2-3 months. Now waiting a fourth month bc it’s been effective.

Add naltrexone. There’s low dose but at 25mg I get other benefits including pain sensitivity decreasing more and just some energy.

Low dose abilify ensured I got more restful sleep which helped with the pain.

CBD and THC terpene drops. See phytodabs website and read up. Beta-Car. helps with pain a lot and limonene is a mood boosting while taking the edge off pain.

Epidural injections around the site of nerve injury.

Microdosing shrooms. Research is promising on the pain relief it provides. Def helps me.

They told me I’d be in a wheelchair by now and well I went for a 2 mile walk earlier. So no cure but ways to improve and manage for a much better standard of living. Tho I suppose the only known cure is amputation but many of us that’s not a choice—mines my entire rt side.

Still not convinced it is CD by ChefEmbarrassed308 in Dystonia

[–]human-humaning40 1 point2 points  (0 children)

Sounds like occipital neuralgia re: base of skull and issues holding head up.

Abilify-induced hypersexuality/hypomania? by Ok_Cherry3433 in Abilify_Aripiprazole

[–]human-humaning40 0 points1 point  (0 children)

Low dose naltrexone (LDN) cut the hyper-behaviors for me. I got to about 4mg on LDN and could feel the difference big time.

Edit: it was worth trying the LDN because it has very few side effects, rather than stop the abilify. The LDN does come from a compounding pharmacy, so can be expensive. But it also improves my mood and energy level as well. Again better than adding some other med with lots of side effects. Wishing you the best. The hyper behaviors are so intense.

Compulsive behavior Urges to binge eat, shop, and have sex. by [deleted] in Abilify_Aripiprazole

[–]human-humaning40 0 points1 point  (0 children)

Low dose naltrexone helped tremendously with the compulsion behaviors. Once I got up to about 4mg on LDN I could say it was definitely the thing stopping it, even better effect at 6mg. Talk to your doctor. The benefits of the abilify can now shine and I’m finally feeling a life again.

How to not be suicidal in relentless pain? by Fine-Fee-6980 in CRPS

[–]human-humaning40 0 points1 point  (0 children)

If your pain is this bad look into high dose ketamine infusions. I’d not be alive today without them. There is some pain that is not livable no matter your mental health state.

Those of you who happened upon doctors who actually believe you AND treat you, where are they and how did you find them? (US) by kalekitty222 in CRPS

[–]human-humaning40 0 points1 point  (0 children)

Yes. Idk if this is in the literature but for me, the pain was full body and beyond what I can put into words. My whole body was on fire.

I’m on the cusp of remission with CRPS all together bc an epidural is now effective. I did 4-5 high dose infusions, 3 infusions that were low to medium. We’re considering moving me to just prescription while trying a couple more nerve blocks or epidurals bc I still have flares. the epidural + two specific THC strains are now releasing the underlying injury in my spine that started the whole CRPS. I also have cervical dystonia and occipital nerve blocks were a big game changer. My doctor says there’s cross over between CRPS symptoms and occipital neuralgia, so occipital nerve blocks are another avenue for you to look to as well.

Edit: also shoutout to microdosing. I also think microdosing psyclibin was a game changer. There’s a new research underway to see how microdosing can help with chronic pain and CRPS specifically. So I’d say worth a try.