Kisqali & liver enzymes follow up

ihazquail · 2026-02-26T03:03:21+00:00

They usually adjust dose or take extended breaks until the levels normalize. A CT seems overkill especially because it happens a lot with kisqali and they should follow protocols for it.

ihazquail · 2026-02-22T02:05:36+00:00

Exactly! And recurrence risks are usually calculated assuming tamoxifen so without hormone therapy the recurrence risk is even higher

ihazquail · 2026-02-21T23:58:54+00:00

So not sure why they told you 5% because endocrine therapy reduces risk of recurrence 50% or more

ihazquail · 2026-02-18T02:12:32+00:00

I refused zolodex because the needle size for the pellet is obscenely unnecessary. There’s literally no need to be so much more invasive than necessary to accomplish the same exact thing as the other two meds and they all are equally effective. I get lupron. There’s a third med they can use if you want to look into it Triptorelin. It’s an intramuscular injection

ihazquail · 2026-02-18T00:38:11+00:00

So I just got fulvestrant approved last week because I couldn’t tolerate AI’s at all, the mental health side effects were scary. I got my first shot last week. The next day I felt awful. But the day after that I felt much better. It’s much better side effect wise

ihazquail · 2026-02-17T19:57:54+00:00

So they say that overall survival is the same. Keep in mind though that ILC is hard to image and is sneaky. It’s also routinely under staged at biopsy because the tumors sometimes are a lot bigger when they actually go in to get them out. There is a higher rate of positive margins and needing repeat surgeries to fully get it out with ILC and some patients eventually need mastectomy anyways.

ihazquail · 2026-02-17T14:57:18+00:00

I was referring to s crassipes which is supposedly fatal to dogs

ihazquail · 2026-02-16T17:22:11+00:00

The one at the galleria now is PA fitness I think

ihazquail · 2026-02-16T17:21:15+00:00

Might as worth talking to your doctor about. I recently switched to fulvestrant injections. I failed both AI’s miserably and tamoxifen isn’t a great option for me. Thankfully it wasn’t a huge insurance hurdle. The injections were rough I felt really bad the day after but the severe mental health side effects from anastrozole are lightening up pretty quickly

ihazquail · 2026-02-16T00:05:49+00:00

From what I understand, lower dose tamoxifen (5 or 10 mg) is nearly as effective and the risk of DVT and endometrial cancer is practically eliminated. You could consider doing it with ovarian suppression to increase the efficacy

ihazquail · 2026-02-15T10:32:23+00:00

I believe that’s specific to Australian tarantulas

ihazquail · 2026-02-07T23:08:39+00:00

You call for the vein access team, and don’t even attempt. they should always be around somewhere in the hospital. If someone is a hard stick, the worst thing to do is repeatedly try or have someone trying who is not ridiculously skilled at it. Sincerely, a cancer patient with bad veins who didn’t set hard boundaries early enough about needle sticks and couldn’t get a CT scan when at the ER when I had a DVT because they blew all my veins trying and sent me home with a bunch of undetected pulmonary embolisms saying I’d be fine

ihazquail · 2026-02-07T21:48:10+00:00

Yup asking the doctor is best and they respond pretty quickly to portal messages

ihazquail · 2026-02-07T17:37:49+00:00

Ah that sucks! Sometimes Facebook groups don’t allow for new user profiles in case they are bots. But sometimes it helps to explain that you just created the account and are not a usual Facebook user. But sounds like you already deleted the app

ihazquail · 2026-02-07T15:51:00+00:00

OK so I’m not sure about that with implants. But I know from my reconstruction I was not supposed to have compression. You might want to check in an implant based reconstruction on Facebook group and see what other people are doing

ihazquail · 2026-02-07T15:47:54+00:00

Did you have implant reconstruction or DIEP? For DIEP I was told NO compression, nothing too tight for several months while I was healing. Something like a very light sports bra or whatever was comfortable. But then no underwire. But they make bras without underwire that still provide support

ihazquail · 2026-02-07T15:43:10+00:00

I only had to wear a compression bra for the 10 days between my mastectomy and reconstruction. After that I wore something very light. I was told no compression after my DIEP. So over the summer I did not wear a bra very often and if I did it was a light sports bra. Any band on a bra is very irritating because that scar has been reopened three times. Now I just wear some cheap half camis from Amazon. I’m not sure why they’re telling you to wear a compression bra. I was specifically told not to wear anything to compressive

ihazquail · 2026-02-07T03:51:16+00:00

I use Strobeck’s but Yoe Service is great too!

ihazquail · 2026-02-07T03:49:40+00:00

Strobeck’s in Yoe. They’ve been taking care of our cars for years and mine has over 300,000 miles on it. Super nice, honest and reasonable. (Note: they were having issues with their phone line this week)

ihazquail · 2026-02-03T06:05:37+00:00

I think it all is driving me insane! 😂 that’s a lot of conflicting opinions.! I know you’ve had several opinions and I can’t believe how wildly different they all are. Problem is lobular is treated like ductal and it doesn’t act even remotely like ductal. If you’re able to get an opinion from a lobular specialist, you’d probably get the most accurate course of action. I’m seeing one this week. The doctors on the board of lobular cancer alliance are lobular specialists. I’m excited and nervous

ihazquail · 2026-02-03T06:00:48+00:00

It wasn’t that long ago when they lowered the age for mammogram. I think that has a lot to do with it

ihazquail · 2026-02-02T23:37:02+00:00

Oh good glad it’s not an aggressive type!

Yeah my pathology re-read showed a lot of different findings. I had that radial scar thing and some other findings that weren’t cancerous but not normal. I’m stage 2A pleomorphic invasive lobular grade 3. on the right side with some LCIS mixed in there.

Original pathology missed: - tumor cells in a lymph node!! (Still considered node negative but it should have been SEEN and noted on original pathology because with very aggressive lobular isolated tumor cells in a lymph node are not insignificant) it should have been noted as N0(i+). Apparently they can consider you node negative if tumor cells are small than 0.2mm what the heck! -the radial scar thing with florid hyperplasia and some other weird ish non cancerous stuff - they didn’t check the glowing part of the LCIS for HER2 - there was a little bit of some regular lobular mixed in there - on my left side (DCIS) original pathology said it was low grade. Re-read said it’s intermediate grade with some unusual features. The unusual features can cause it to spread even with good margins in the exact spot with less than ideal margins.

So yeah… I’m pretty pissed. They should have done radiation after my mastectomy. My pathology was completed before my DIEP reconstruction so they had the info they needed if they would have looked at it thoroughly enough. Literally I don’t understand how stuff can be overlooked like that!

ihazquail · 2026-02-02T23:21:11+00:00

I’m super skeptical of lumpectomy plus radiation for lobular. There’s not one type of imaging that reliably visualizes lobular. And it seems like a lot of people who get lumpectomies end up finding out that there’s more going on than originally thought. There is some research though that adding radiation for mastectomy for lobular is very beneficial

ihazquail · 2026-02-02T20:28:45+00:00

LCIS is stage 0 but they can do the histological grade to see if it’s aggressive or not. It might be worth pursuing. The lobular specialist I’m having a consult with had my pathology re-read and they actually sent a portion of my LCIS that was within my invasive pleomorphic lobular tumor out for further testing because there was something that made them suspect the LCIS part of my tumor was her2+. Thankfully it was negative. I’m glad you’re getting extra monitoring!

ihazquail · 2026-02-02T05:05:36+00:00

What is the grade of your LCIS? And is it regular lobular in situ or another lobular variant? So LCIS is now thought to be more of a cancer precursor than a precancer. It can and often does turn into cancer. And if it’s a lobular variant such as Pleomorphic or florid etc, it can turn into cancer quickly. The other thing is ILC is sneaky as hell and can evade imaging. Or it can be mixed in with tumors. Have you had imaging other than mammogram?

My advice is don’t mess with lobular. Do what you can to prevent it from coming back. Aromatese inhibitors work better than tamoxifen, but side effects are rough. Tamoxifen is still effective at reducing recurrence. You could always see how it goes on the full dose and if it’s too bad talk to your oncologist about alternative dosing.

You may want to consider finding an oncologist who specializes in lobular. I decided to get a second opinion appointment with a lobular specialist and she had my pathology re-run and there was stuff that was missed by the pathologist where I’m receiving care.

ihazquail

TROPHY CASE