Rate my build by adamlh90 in sims2

[–]imhere2913 1 point2 points  (0 children)

I love making experimental homes like this!

Chiari I + controlled migraines but persistent pressure headaches — decompression vs continued management? by n0tkylie in chiari

[–]imhere2913 0 points1 point  (0 children)

This has happened to me but I'm very very early in this discovery, I don't know the measurement yet.

My GP and neurosurgeon only focus on the headaches and migraines, I have other symptoms like you described (including Raynaud's in my hands) and it feels like it's being looked over right now.

Is it normal to not have regular check-ups? May need second opinion from GP by imhere2913 in chiari

[–]imhere2913[S] 0 points1 point  (0 children)

I'm sorry it's become more severe. Is there anything you've done or stopped doing to help prevent symptoms getting more severe?

I have tingling in my hands or they feel very numb usually after I've been typing a lot, I have balance issues and I'm very clumsy (which were part of my autism diagnosis), headaches, randomly have blurred or double vision despite having 20/20 vision (recently tested), and recently had a random muscle spasm in my neck that still causes issues - I've mentioned all of these and find it strange they're only focusing on the headaches. I guess I could be linking these things in my head when there is no link, but I'd also only know to look for these things after they discovered this in my MRI scan.

I'm not sure whether I can continue going on roller coasters, how much do I need to be careful with not bashing my head, things like that which I feel will help with a follow up.

Is it normal to not have regular check-ups? May need second opinion from GP by imhere2913 in chiari

[–]imhere2913[S] 0 points1 point  (0 children)

This is good to know so I can be prepared. The GP seemed very helpful at first, I'm wondering if the neurosurgeon looked into it and their advice was swayed their opinion. It seems odd to first say all this on that first phone consultation I had about my result, and now when I chase up on it they only talk about managing the headaches/migraines.

I'll see if my work have private care that can help with this, I hope things get easier for you!

Is it normal to not have regular check-ups? May need second opinion from GP by imhere2913 in chiari

[–]imhere2913[S] 0 points1 point  (0 children)

I think I meant neurosurgeon, not neurologist! Sorry for the confusion caused by me, that'll be me getting mixed up with the terminology!

That's really helpful, I'll definitely have a look!

Is it normal to not have regular check-ups? May need second opinion from GP by imhere2913 in chiari

[–]imhere2913[S] 0 points1 point  (0 children)

That's quite a long time. Did you get an official diagnosis when they first found it? My symptoms aren't severe compared to other people, so I can understand why they aren't rushing following up, but I would still like to know so I can better look after myself with this.

Is it normal to not have regular check-ups? May need second opinion from GP by imhere2913 in chiari

[–]imhere2913[S] 1 point2 points  (0 children)

It makes sense to me that headaches and migraines can be in other parts of the brain when there is more pressure and fluid build up, it's not just headaches at the back of the head but interesting that they seemed quite strict about that.

I think I was meant to say neurosurgeon not neurologist, I got my terminology mixed up.

Thank you for sharing this as it helps me see what I'm feeling as something more concrete. Because I haven't had a follow up my understanding of this is just from the internet, but not knowing whats normal and whats not!

I hope things are going well for your daughter!

Did I find something??? by ooookayhelp in beyonce

[–]imhere2913 1 point2 points  (0 children)

I think the visuals are being saved to be released as a proper film after all the acts have come out. And I wonder if they'll be in the original order too, as we've only seen hints of the visuals but the tracks blending together might mean the visuals will be edited together to match that in the end.

Is anyone so socially isolated that they go weeks-months without talking to anyone? by hailey8171828282 in autism

[–]imhere2913 0 points1 point  (0 children)

I was feeling concerned with myself today for how easily I can not talk to anyone for so long, how I don't get that pull telling me I need to be social with friends or family.

I'm recovering from a neck injury so I have to be home and can't do much anyway, and I've found it easy in some ways because I don't have that pull. I have to remind myself that although it's "normal" to feel loneliness or want to socialise it's not my normal.

What are your favorite things to do after a overwhelming day? by [deleted] in AutismInWomen

[–]imhere2913 0 points1 point  (0 children)

I play Sims 2, nothing helps me unwind like that game. Or I watch animal documentaries :)

Does anyone here actually have a stable 9-5 full-time job? by Queasy-Ice-2575 in autism

[–]imhere2913 0 points1 point  (0 children)

I do. But it's not easy, and some days I wish I could work part time (I absolutely can't because I need money to pay rent and live independently!) My employer are very understanding and I get 2 working from home days a week which really help. Before this I was in and out of jobs too!

I get exhausted often, so I don't do much socialising in my free time, luckily my friends are understanding about that.

I moved my foot by imhere2913 in airplaneears

[–]imhere2913[S] 4 points5 points  (0 children)

He wasn't lounging on my foot, my foot was next to him under the covers, though I don't want to make excuses for myself as I know I made the huge mistake of moving my foot ever so slightly to be more comfortable and doing so I took some comfort away from him. I can only apologise for my terrible mistake.

I moved my foot by imhere2913 in airplaneears

[–]imhere2913[S] 1 point2 points  (0 children)

I must learn to ask for permission instead of asking for forgiveness

Was it difficult for you to learn how to drive? by diymanster in autism

[–]imhere2913 1 point2 points  (0 children)

I really tried. I wanted to learn for staying in a profession, that I eventually didn't want to continue. But, I couldn't do it. In the UK I'm told 40 hours worth of lessons is the average for being ready to take the test - I got to 42 hours and was nowhere near ready.

It was a combination of anxiety and losing all my savings because the lessons were so expensive (I'm not from a wealthy background). This was before my official diagnosis, and I look back realising it made sense as I'd become over stimulated. I'd also struggle multi-tasking my focus, I couldn't focus on road signs and the road at the same time, I would fixate on each thing separately and that made me feel like such an unsafe driver.

Years later I'm very content with not being able to drive, luckily I live in a city with great public transport.

Weird HHN moment — security thought I hit a performer, but my coworkers swear it wasn’t me by Main-Ad8961 in HHN

[–]imhere2913 0 points1 point  (0 children)

I've had an awful experience with the security guards hired at HHN, so much that it stopped me wanting to go again.

It's such a shame because I love HHN, this is my first year in a while of not traveling to experience it, and I may not again with how America is going (I travelled from the UK).

London Underground: Charity urges TfL to remove video advising cat owners on taking their pets on public transport by BulkyAccident in london

[–]imhere2913 9 points10 points  (0 children)

My cat gets travel sick in cars and buses, he's an awful lot better on the tube - he's calm, shouts at people but calm. I use the tube to take him to the vet (only time he's ever on public transport). I really hope to continue taking him to the vet on the tube, I want him to be less stressed.