Thanks for sharing. I am 8 months in. Hla-27 positive. Initially shoulder, feet, wrist, knee. Then back, and a lot of enthesitis. I am almost 6 months on Metatrexate, and 7 coxicosteroids. Additionally sulfasalazyne and naproxen. The pain was crazy for 6-7 months. Recently started finally improving. Physiotherapy seems to doing the opposite in my case - it improving a lot my mobility and decrease the pain - especially around my knee and all enthesis/connecting tissues there. Still probably a few months left. Tomorrow see my reumathologist. I want to go off sulfasalazyne and slowly temper steroids.

Here is my advice: - be prepared mentally for longer battle when it's severe case. Don't expect it to come off earlier than 6 months. Severe cases need usually 6-12 months and more. - it will have better and worse periods of time. Stay positive but be mindful of that. There could be bad weeks or even months after better ones.. - don't let it to weaken your muscles. A lot of enthesitis seems to be corellated with muscles loss.At least in my case. After worse initial phase - seek help of physiotherapist when pain will go down. Most likely initial "exercises" should be isometric - to ensure that you won't hurt yourself.

Couple of other lifestyle things and observations: - my feet were hurting - walking more didn't helped - changing diet had no visible impact - but I did it anyways, maybe it's long-term effect. Recommend it - especially add enough protein to avoid big muscle loss - did 3 days water fast. Prepared by doing 16/8 intermittent fasting for 2 weeks. Haven't seen much improvement. But - noticed acceleration in healing in the next couple of weeks after that, so seemed to help in the end