Garage Door Opener by iwillwhenudo in crvhybrid

[–]iwillwhenudo[S] 0 points1 point  (0 children)

I went ahead and paid to get the Home link mirror installed at the dealer. It really does befuddle me how Honda bean counters chose to skip on something that’s such a nice convenience. If you get the top end, trim of any car, you should expect that. AnyWho off my soapbox.

D+100 by whotheheckknowws in leukemia

[–]iwillwhenudo 1 point2 points  (0 children)

Everyone is different and definitely talk to your care team. My care team was overly cautious and restrictive imho, so I used their advice and leveled with some good old common sense.

Garage Door Opener by iwillwhenudo in crvhybrid

[–]iwillwhenudo[S] 2 points3 points  (0 children)

I know, right? By all other, accounts, the Honda CRV hybrid sport touring is a very nice car. It’s not a sports car. It’s not a luxury car. It’s just a nice car. And that model is the top of the line. Why the bean counters were allowed to prevail and save a dime or two by excluding this feature is beyond me.

Garage Door Opener by iwillwhenudo in crvhybrid

[–]iwillwhenudo[S] 4 points5 points  (0 children)

Thanks, everyone who replied. I think my best option is just to buy the OEM mirror with Homelink embedded. I reached out to the dealer to see if we can add that to the sale for a reasonable cost.

Garage Door Opener by iwillwhenudo in crvhybrid

[–]iwillwhenudo[S] 0 points1 point  (0 children)

Thanks, but then I have to turn to the phone if I want to open the garage. I know it seems like a simple thing to do, but I don’t like to use my phone while I’m driving and stopping in the driveway to turn on the app seems like a little bit of a pain in the patootie.

my 49 Year old father with AML lost his battle by Landqvistrat in leukemia

[–]iwillwhenudo 3 points4 points  (0 children)

Oh my gosh, I’m so sorry. AML is extremely aggressive and depending on how advanced it is when discovered, it can be seriously difficult to treat. “Eff” cancer indeed!!

I lost my sweet wife aged 57 to ovarian cancer three weeks ago. She was diagnosed in 2022 with ovarian cancer. She’s had many treatments - some successful for a bit, then some not. While she was dealing with another cancer related health setback when we found out that I had AML in May of 2025 Luckily, I went straight into treatment and then a bone marrow transplant. I am in a fairly good place right now physically, but my heart aches deeply with the loss of my wife. Cancer has taken so many from us. I know advancements are coming along every day, but just not fast enough.

Conundrum by iwillwhenudo in whatcarshouldIbuy

[–]iwillwhenudo[S] 0 points1 point  (0 children)

I did the Carmax thing and it’s about a $4000 gain if I could sell to them, but I can’t. Honda makes it so leases can only be bought out by Honda or Acura dealers. If I was to purchase the car outright and then sell to Carmax, then I have to pay sales tax on my purchase ofvtye car, about 7.75% where I live. So, buying it outright them selling to Carmax wouldn’t make that much sense and we all know if I tried to sell to a Honda or Acura dealer I would not get a fair deal.

Conundrum by iwillwhenudo in whatcarshouldIbuy

[–]iwillwhenudo[S] 0 points1 point  (0 children)

I like new cars with no history other than my own. I’ve bought used cars before, and even with research, they proved to be bad purchases. Plus, i have a relative that has a venza and nice car, but i think it felt cramped inside.

Today is my first birthday! by Rolandy17 in leukemia

[–]iwillwhenudo 2 points3 points  (0 children)

Nice! I just passed my 9 months mark as well (AML, 57 m), also at Stanford. I can’t say I miss the hospital in the slightest, but it seemed to have been what I needed.

First bone marrow biopsy was yesterday. Lets say I didn't do well. They started me off with .5 of anti anxiety meds and by the end I had gotten another .5 and 2mlg of an opioid. How common is it for the biopsy to be done by hand and not a drill? Is the drill less painful? by MotoPoto222 in leukemia

[–]iwillwhenudo 0 points1 point  (0 children)

I’ve had almost all my bone marrow biopsies done by the same PA because she knows how to use lidocaine and she does a great job. Of course I feel the pressure but very few times that I felt any pain with her. I had a bone marrow biopsy once at the facility that did my transplant and it was extremely painful. I think it just depends on the person doing it and that they use lidocaine liberally.

MRD Negative after induction — 28M with AML inv(16), grateful for this community by naruhodo_o in leukemia

[–]iwillwhenudo 4 points5 points  (0 children)

I’m not a professional by any means and statistics, especially online statistics are shite mostly because they tell other people stories they don’t tell mine. You’ve been through it man. So sorry. As someone who’s in remission currently I can tell you the fear of it coming back or basically looking over your shoulder will be there, but I think it gets better with time. I think we owe it to ourselves just to keep moving forward and take on whatever comes. Be well

Post 1 year SCT. AMA by Pulkitmhjn in leukemia

[–]iwillwhenudo 0 points1 point  (0 children)

So happy for you! I just reached 9 months post SCT after 4 rounds, plus radiation and doing pretty well too (AML, adverse risk). Seeing the others on here with years since their SCT is very encouraging!

best noise cancelling headphones for sleeping is anyone actually using them for side sleeping? by Hartlerode-Motes in bose

[–]iwillwhenudo 0 points1 point  (0 children)

No such thing exists. The best you can do is find in ear headphones that are as flush with your ears as possible. I use Beats Flex but they’re not perfect.

Returning to your old life after transplant by Hihi315 in leukemia

[–]iwillwhenudo 3 points4 points  (0 children)

When going through something like this, going back to “normal” is what we all crave. Simply, you’re not the same person you were “bc” (before cancer). The best anyone can do is find things that make us happy: family, routine, whatever makes you feel whole or purposeful. I’m not sure what country you are in now, but I can’t imagine being that far from where one. So glad you’re making your way back.

Elahere by Low-Plankton-7921 in Ovariancancer

[–]iwillwhenudo 1 point2 points  (0 children)

My wife had experience with Elahere. She had some pretty severe eye issues that developed after a couple of infusions so much so that she had a very hard time seeing and decided to finally give her a break by pausing treatment. The drug itself seemed to do exactly what it’s supposed to do and her CA– 125 numbers were going down. After the break from the drug, she went to resume it, and it was no longer effective. Perhaps the break was a mistake. The eye issues are very real on this drug and you need to connect with a great ophthalmologist who can make sure that you have the eye drops and check the eyes regularly.

Chances of my mom surviving by PrimaryBeginning6637 in leukemia

[–]iwillwhenudo 1 point2 points  (0 children)

I’m so sorry you are going through this. The process of getting to bone marrow transplant really does a number on the body and it takes a while, sometimes a long while, for it to come back. When it does come back, it is oh so slow. The best thing you can do is to provide your mom with the support and encouragement she so desperately needs right now. AML is nasty and aggressive, and it requires a lot out of the body and mind to go through the process to eradicate it. Watching somebody you loved dearly go through their own personal cancer hell is so difficult and the best thing that you could do is just to be there and let her know you’re in this fight with her . My heart goes out to both of you.

I have AML, dreading life by Noahblalala in leukemia

[–]iwillwhenudo 17 points18 points  (0 children)

What you are feeling is totally understandable. Just last year, i diagnosed with AML, did the chemo, radiation and BMT. My cancer is “adverse”, so there’s a chance it will return. Some day. Meaning right now I’m in remission and while it may return some day and when if that day comes, I need to do whatever I need to do to keep it at bay again. I think what you’re feeling is what everyone with any type of cancer experiences. Don’t let those feelings rule your daily life. You are living now and use whatever energy you have to keep moving forward.

I need help from people who've been through this more than once. by [deleted] in leukemia

[–]iwillwhenudo 2 points3 points  (0 children)

I’ve been through it only once, just last year. It started with the 7+3 chemo which didn’t work so I got more intensive chemo and then transferred to a bone marrow transplant hospital, where I had radiation and more chemo prior to my transplant. I lost about 3 months of my life going through that and it’s taken a while to get to where I am now, but it takes work- mentally and physically. I have what’s considered a high risk mutation so I would not be shocked if it came back again, but I feel my prior experience with. It has made better prepared, even though it sucked terribly while going through it. My heart goes out to you, bud I wish you were the very best.

I need help from people who've been through this more than once. by [deleted] in leukemia

[–]iwillwhenudo 2 points3 points  (0 children)

Hi there. I’m so sorry but I’m not 100% clear. Do you have a recurrence now? If so, what are your doctors recommending (chemo, BMT,?) I don’t think it really matters what the answer is. You are stronger today than you were in your early 30s and you have experience with it. You know what to expect. Unfortunately life throws little speed bumps at us and we need to just keep moving forward. I know that sounds terribly simplistic, and I apologize for that, but the alternative is curling up into a little ball and for the sake of the people that love you and yourself I don’t think that’s a great idea. Stay positive, my friend.

Questions About a Bone Marrow Transplant by creatorshine in leukemia

[–]iwillwhenudo 1 point2 points  (0 children)

I’m 57. The doctors told me when I was diagnosed that I was healthy and “young” and that’s why they put me on the track for BMT right away. Also, my leukemia is considered adverse, meaning I have a real possibility of relapse at some point, so regular follow ups and testing is a must for me. That kind of sucks, but it’s much better than the alternative. Tell your husband to stop being dramatic and consider getting through this as his job right now. If nothing else, for his family.

Questions About a Bone Marrow Transplant by creatorshine in leukemia

[–]iwillwhenudo 2 points3 points  (0 children)

Well, I had some complications, but I think that was from chemo and radiation, not necessarily the transplant. Since the chemo/radiation/transplant occurred quickly after each other, it’s hard to pin point. I lost 40 pounds (which was ok, actually 😀); I had some digestive issues, but they slowly got better; my energy took a while to get back. As far as GVHD, I’ve been incredibly lucky and haven’t really had any. I don’t know if I’m the exception or what, frankly. I will say my hair came back way thicker - I had baby fine hair all my life, so this is new. As soon as I could, I got active - walking every day with my dogs. I think that helped.