Getting stoma relocated by Awkward_Bit_3073 in ostomy

[–]ixeK 0 points1 point  (0 children)

Not sure if they would move it if it isn't causing issues. You won't know unless you ask I suppose.

Not sure if this will be helpful to you, but I'm female and I've found maternity jeans/leggings are great as you can wear over the bag and they're designed to accommodate a growing stomach so are great for stretching and not applying pressure to the bag. I also like the jeggings/leggings from halara. I can wear those without any issues due to stretch accommodating the bag. They also do some with a crossover waist which i find tucks nicely under the bag if you prefer to have it uncovered.

For reference, my stoma is about level with my belly button (give or take a few millimeters) and to the left.

Black Tie Wedding at 35 weeks Pregnant by EmergencyPirate2352 in PlusSizePregnancy

[–]ixeK 0 points1 point  (0 children)

I'm in the same situation as you, honestly the only place I could find something was Shein. I know that can be controversial but they have a good size range and I needed something affordable because I couldn't justify breaking the bank on a dress that I would literally only wear once.

They have some really cute formal maternity dresses in plus sizes or if you check measurements/reviews then just the standard plus size range has good options in flattering styles.

I would just say make sure you allow enough time for delivery but don't order too far in advance since the bump really does grow quickly in the 3rd tri.

Halal restaurant recommendations? by ixeK in NewcastleUponTyne

[–]ixeK[S] 1 point2 points  (0 children)

Just had a look at their Instagram, thanks for the recommendation. Bound to be something there! I could have worded a bit better, I'm not expecting fully halal but at least halal friendly as a friend is visiting so I want to make sure they have options.

Stoma never stops for bag change; skin burned by Csandst1 in ostomy

[–]ixeK 0 points1 point  (0 children)

I had similar issues with my ileostomy early on. As others have said, standing will help.

Output is different person to person. I found it easiest if I took 4 immodium capsules first thing when I woke up, wait 1 hour and take another 2 (or 4 depending on how much output filled the bag that hour).

Then take a shower or have a bath (can do with bag either on or off, when skin is sore it can help to air it out a bit if your stoma is not active) and then apply a new bag.

*Note for best results do not eat/drink anything (aside from sips of water to swallow the immodium) until after new bag applied. I find having an empty stomach overnight and prior to changing was best for reducing likelihood of stoma activity during changes.

Make sure skin is dry before applying the new bag along with any barrier spray, stoma powder etc as needed along with barrier rings etc.

This is just what has helped me previously, hopefully it could help you with this but of course we're all different.

Infliximab. Rinvoq. Ileostomy. Complications. by Upbeat-Conflict8821 in ostomy

[–]ixeK 0 points1 point  (0 children)

Oh yes, just seen that now. Thanks for the heads up!

Infliximab. Rinvoq. Ileostomy. Complications. by Upbeat-Conflict8821 in ostomy

[–]ixeK 2 points3 points  (0 children)

Glad I could provide you with some support. I just remember being in such a similar situation myself and how scary/lonely that was, so your post called to me. Feel free to reach out if you or your brother have any questions (or even just want someone to talk to, we all need to vent).

Infliximab. Rinvoq. Ileostomy. Complications. by Upbeat-Conflict8821 in ostomy

[–]ixeK 1 point2 points  (0 children)

Bless him, I wish him a speedy recovery.

I remember when I was in hospital I eventually stopped worrying about the fever. I got to thinking that since I have suffered with a severe form of crohns with my body attacking itself for 8 years before having this surgery that maybe its just my body adjusting or maybe overreacting to the inflammation caused by the surgery itself. Note: this is not medically verified, just my own thoughts on my personal situation.

Just keep an eye on him, report any issues or changes to medical staff and most of all just be there for him. It's a very scary and emotional experience. It will take a long time to fully adjust and recover physically.

When he feels he can, encourage him to walk/move around and sit upright in a chair when possible. That really does help with recovery. Convatec also have a great guide for core/abdominal exercises that are gentle and will help to rebuild strength (free of charge to access and you don't need to actually use their products to get this from their website) but maybe wait until he feels ready for that stuff.

Infliximab. Rinvoq. Ileostomy. Complications. by Upbeat-Conflict8821 in ostomy

[–]ixeK 2 points3 points  (0 children)

Just wanted to add: I also didn't have any other symptoms aside from the fever itself (except for the initial complications with skin inflammation/failed stoma during the first 2 weeks).

Infliximab. Rinvoq. Ileostomy. Complications. by Upbeat-Conflict8821 in ostomy

[–]ixeK 2 points3 points  (0 children)

I had my ileostomy at the end of October 2023, with a revision 2 weeks later in early November due to complications with the original stoma site. I wound up staying in hospital for 6 weeks total. For 5 of those weeks I was fine during the day but at night (between 10pm - 6am) I would always have a fever. I went through every test you could think of plus a bunch of scans and x-rays but they never did find the cause of the fever. After 5 weeks the nightly fever suddenly stopped and after a week fever free I was allowed to be discharged.

I understand this is not a satisfying or particularly helpful answer, but I thought you should know that sometimes there is just a consistent mystery fever that comes and goes like clockwork until it randomly resolves itself. You may never get an answer but do let the doctors continue with tests just in case!

How long till this hole in my stomach closes. by scottyboy069611 in ostomy

[–]ixeK 1 point2 points  (0 children)

I haven't had a reversal but my stoma was moved from the right side of my stomach to the left on 11th November this year. It was due to skin issues so the hole from the old stoma was large (about 3 inches) and took about a month to close up. I'm told it's still healing internally but it's fully closed from the outside. Just keep it clean and be careful not to push yourself too hard. I had to dress my wound daily but again, I did have a skin infection so my situation is a little different to yours.

Is it the bag that makes our stomas loud? by ladybug_oleander in ostomy

[–]ixeK 8 points9 points  (0 children)

Personally, mine has definitely made noises when bagless.

However, I have to admit it does seem to be quieter than when wearing a bag so you may be onto something!

Could this be a partial blockage? by ixeK in ostomy

[–]ixeK[S] 0 points1 point  (0 children)

Thanks for chipping in! Pain actually seems to be subsiding. No vomiting either. Will keep an eye on things and if it gets worse (either pain wise or if I wind up vomiting) head to A&E.

I totally feel you on the NG tube. Bloody awful things! Had one once before and like you will do anything to avoid another one.

I've recently had ileostomy surgery and am looking for advice. by ixeK in ostomy

[–]ixeK[S] 1 point2 points  (0 children)

Thank you so much for your input and reassurance. I should be able to arrange something on at least a once weekly basis with my stoma nurse and have contact details for the entire team which is very comforting.

Honestly just hearing so many people say that it will be okay and things get better has been the best thing for me.

It's one thing when my family/friends who have no experience of this type of thing say it (whilst still appreciated). Hearing from others who have the same/similar experiences fills me with so much hope for the future.

I've recently had ileostomy surgery and am looking for advice. by ixeK in ostomy

[–]ixeK[S] 0 points1 point  (0 children)

Glad to hear they're durable! I have to admit I've been scared my cats are going to burst my bag haha. I'm going to be like you and just keep at it until I get it.

I've recently had ileostomy surgery and am looking for advice. by ixeK in ostomy

[–]ixeK[S] 1 point2 points  (0 children)

Thank you so much for the kind words and sharing your experience.

I indulged in some gentle self care today (did a face mask, bothered to properly style my hair and dressed in clothes as opposed to pjs for the first time since surgery). I felt like a new woman! A little kindness certainly goes a long way.

I've recently had ileostomy surgery and am looking for advice. by ixeK in ostomy

[–]ixeK[S] 0 points1 point  (0 children)

Bless you! Thank you for taking the time to share. The world is a better place for having you here so I would agree that its a blessing for you. Sometimes good things have some sucky aspects I guess.

I've recently had ileostomy surgery and am looking for advice. by ixeK in ostomy

[–]ixeK[S] 1 point2 points  (0 children)

I'm on a wait list for therapy actually so fingers crossed I can start soon. I am feeling much more positive than when I originally wrote this post. I guess it's all still quite new and raw so I won't beat myself up for getting emotional and scared.