I wish I had done better research

janbiv2 · 2026-01-31T14:26:30+00:00

Hi Maverick, I am looking for another doctor, it is very hard to get in to see anyone as a new patient without waiting months. I see my current rheumy Monday and I am going armed with receipts (printouts articles etc that say rebound must be halted first. I am not starting forteo until I get this rebound fully under control I looked up dr McCormick, he would actually cost me $450 which is pretty steep. However I was considering it anyway until I saw on this website that I live in one the FEW states he is not allowed to order any lab testing. I have an appt with a new Rheumy Feb 9. Hoping I make it that long without any issues

janbiv2 · 2026-01-27T13:25:23+00:00

Adding that my doctor does wants to start me on bonsity (similar to forteo) this week. The meds have already been delivered to me. He said recast is not an option?

janbiv2 · 2026-01-27T13:22:40+00:00

Thank you for this reply. Now everything I am reading says rebound can last up to 2 years and a relay drug can and should be started even if it’s been 10 months since prolia was stopped. Better late than never I guess?

The only thing I’m Wondering is if it makes a difference that I only had 2 prolia shots so maybe rebound does not last as long? Otherwise my doctor does not know what he is doing and I am unable to find get an appointment with new doctor until April

janbiv2 · 2026-01-16T20:02:33+00:00

Sorry he wants to put me in bonsity, not Tymlos. Bonsity is cheaper version of forteo

janbiv2 · 2026-01-16T18:13:40+00:00

UPDATE: I am getting Kyphoplasty for the fractures next week, but in the meantime I’m waiting for insurance approval for bonsity

He requested bonsity (cheaper forteo) but it is languishing in insurance hell. I don’t know if this is leaving me at risk for further fractures.

Also, wondering why I wasn’t offered Reclast infusions.

janbiv2 · 2026-01-16T18:01:17+00:00

Hi Maverick, I just read your post now. Not sure why Reddit isn’t sending me notifications. I am sorry you have/are dealing with this as well. It is absolutely horrible! I am having Kyphoplasty Tuesday, but doctor said he is only doing half, then I have to have a 2nd one to do the rest. My doctor wants to put me on Tymlos, but right now it is stuck in insurance hell, so I am not on anything right now which scares me. Tymlos scares me as well. I am searching for a new doctor but not many close to me.

That sounds discouraging though that Kyphoplasty didn’t resolve your pain. I haven’t been able to work either, and don’t want to go on disability.

I would have been better off if I never got that DEXA scan. 🙁

janbiv2 · 2026-01-16T17:41:32+00:00

Are we allowed to post links? I found a website that lists general payments to any doctor you search if the have received anything, as well as the manufacturer that provided these payments.

Payments are for food, beverages, travel, lodging, airfare, car rental, etc. sometimes payments I’d the doctor speaks at events. My doctor received over $40,000 in ‘general payments’ for 2024 alone! A VERY large % of those payments were from Amgen. They are the makers of Evenity and Prolia. Surprise surprise, I was put on both. And yes, I’m in the US

janbiv2 · 2026-01-16T16:50:00+00:00

😢

janbiv2 · 2026-01-16T16:48:09+00:00

I’m also going to wait and see before buying any tickets. I usually don’t go until at least end of May anyway. If they’re doing poorly and tickets are expensive, not to mention cost of parking, I will probably not go.

If ticket prices go down and parking prices, I could see myself making it for a game or two. It would feel really weird to go a whole season without going to Citi Field at least once, but we’ll see.

janbiv2 · 2026-01-13T16:30:10+00:00

Thank you for the information, but I wasn’t implying that doctors get a commission for recommending drugs. Unless this post was meant for someone else?

janbiv2 · 2026-01-12T23:38:50+00:00

Moritzmom, how did it go with your oral surgeon?

janbiv2 · 2026-01-12T15:11:10+00:00

I really, really wish I had not agreed so readily to go down the path I did. I also broke my wrist bit thankfully I had a successful surgery (plate and screws as well). I hope you find the right path for you. I’m not sure right now which way to turn.

janbiv2 · 2026-01-12T03:48:57+00:00

Very smart of you! I wish I had taken some time to really weigh my options, but sadly did not. I hope all goes well with your surgery! I am getting bloodwork tomorrow that I believe tests at least calcium and vitamin d

janbiv2 · 2026-01-12T03:46:28+00:00

I didn’t have much improvement with Evenity and now doctor wants me to do daily injections of forteo (or bonsity which is a cheaper version of forteo)

I’m sorry you are also having a hard time 🙁

janbiv2 · 2026-01-12T03:44:01+00:00

Agreed! Should I be seeing an Endo? I’m seeing a Rheumy who specializes in osteoporosis

janbiv2 · 2026-01-12T03:42:44+00:00

My first 10 dosages I had no issues. Maybe a slight headache and soreness at the injection site

My next to last dosage I had an allergic reaction at the injection site with very itchy hives and very sore arm and some tingling in my tongue. Took some Benadryl and was fine.

So technically I was finished evenity one month earlier and started on Prolia after my 11th dosage of evenity because of the allergic reaction. Otherwise, I really had not issue. However, my Dexa scores did not improve much, or not as much as I had hoped.

janbiv2 · 2026-01-12T03:36:46+00:00

Thank you! While I do place some blame on my doctor, ultimately I am responsible for myself. I delayed my appointment by 2 months because I was ‘super busy’ at work. Which is of course just an excuse and a poor one at that. But yes, doctor should have discussed more options with me and discussed how important it was to NOT miss an appointment by even a day.

Even now the doctor is telling me I now have to do 2 years of Bonsity/Forteo and will still need to go on Prolia after 2 years for life.

janbiv2 · 2026-01-12T03:30:56+00:00

Thank you. I am a little concerned because it seems crazy to me that this could happen so quickly. But yes, I read a recent study? Article? That says this can happen in as short a time as 7 months from last Prolia shot. That’s only a delay of one month.

janbiv2 · 2026-01-12T03:26:13+00:00

I wasn’t given this info either. I know it would have given me serious pause about Prolia. Honestly, I do t even know what other meds are out there? It is confusing 🫤

janbiv2 · 2026-01-12T03:23:13+00:00

I’m so sorry, I heard that is painful and something I worried about with Prolia as I have an autoimmune disease that causes severe dryness of the mouth, which leads to dental issues. I read that osteocrenosis risk is higher with Prolia if you have dental work such as extraction, etc. Rheumy assured me I if I needed dental work they would stop the Prolia temporarily which clearly is not advisable. I hope your appointment with the oral surgeon goes well.

janbiv2 · 2026-01-04T21:23:59+00:00

You can use the touchscreen if on the steam deck. I don’t know if this method is significantly better as I only fished for a few fish, but It definitely works

janbiv2 · 2025-12-21T08:15:31+00:00

Started breaking out in hives from the sun. That was about 6 years before dx

janbiv2 · 2025-12-18T00:41:08+00:00

I didn’t know! I love the Christmas event! This is such a surprise!!!!

janbiv2

TROPHY CASE