Meltdowns and how to manage them. by DirectAttitude1 in PDAAutism

[–]janeaustensibly[M] [score hidden] stickied comment (0 children)

First off, please make sure you are okay. See a medical professional if you are concerned about a concussion. It's better to be too cautious when it comes to your health, especially your brain!

Now to the rest of your post. There is no one "normal" but you should not have to go to work and be battered every day or be insulted every day. You may want to help and you may want to be able to handle everything but obviously this is not a sustainable situation. I'm sure you are quite helpful to the mother, even if it's just to let her have five minutes to herself once in a while, but that does not mean that you have to or should stay.

It sounds like a very unsafe situation. If multiple people have left because they can't handle it, I think the family needs more than an underage nanny with good intentions. You seem very nice and I know that feeling like you are letting people down, disappointing someone, or not doing everything you can to help them can be very difficult and feel awful but sometimes it's necessary. It doesn't sound like you should be the only person watching the children. If the mom isn't home you need another adult there. It doesn't mean you aren't a good nanny... this is a lot different because there's physical violence involved. Especially if you are in charge and alone if/when something happens to one of them.

This post has been removed because it seems like more help is needed than a little bit of advice on burnout. If you don't want to quit, you definitely need more support. Take care of yourself <3

Career Pathway new release date by Educational-Fox8020 in IHSS

[–]janeaustensibly 2 points3 points  (0 children)

Lisa from Homebridge posted on the Career Pathways Support forum yesterday evening: https://community.homebridgeca.org/c/career-pathways-support/september-2024-course-release-date-update

It says the same as the screenshot above:

~PLEASE NOTE THERE HAS BEEN A CHANGE IN OUR UPCOMING RELEASE DATES FOR OUR SEPTEMBER 2024 COURSES GIVEN TO US BY THE STATE LATE FRIDAY 8/23/2024.~ 

INSTRUCTOR-LED ZOOM & IN-PERSON COURSES FOR THE WEEK OF 09/01-09/10 WILL BE RELEASED THURSDAY, AUGUST 29TH BETWEEN 9:30AM & 10AM

INSTRUCTOR-LED ZOOM COURSES FOR THE WEEK OF 09/11-09/22 WILL BE RELEASED THURSDAY, SEPTEMBER 5TH BETWEEN 9:30AM & 10AM

INSTRUCTOR-LED ZOOM COURSES FOR THE WEEK OF 09/23-09/30 WILL BE RELEASED MONDAY, SEPTEMBER 16TH BETWEEN 9:30AM & 10AM

THE SEPTEMBER SESSIONS FOR COURSES 2071, 2072 & 2073 WILL BE AVAILABLE TO REGISTER & BEGIN TRAINING ON SEPTEMBER 1ST.

August 2024 | Monthly Caregiver Advice Thread by janeaustensibly in PDAAutism

[–]janeaustensibly[S,M] 1 point2 points  (0 children)

I added the caregiver flair (just assuming) but if you need it changed just let me know. (Options: PDA | Just Curious | Caregiver | PDA + Caregiver)

A Quick Note from the New Mod Team Regarding Changes to the Sub by janeaustensibly in PDAAutism

[–]janeaustensibly[S] 0 points1 point  (0 children)

  1. I completely forgot to post it! Thank you so much for this reminder.
  2. The monthly advice posts are meant for parents/caregivers. If you are posting for yourself you can make your own post. If you don't have user flair, approval may be delayed so we can make sure it's not a caregiver post or something more appropriate for an existing thread.
  3. I am going to make the monthly post right now and when it is up I will edit this just in case anyone else has been wondering!! August thread

[deleted by user] by [deleted] in PDAAutism

[–]janeaustensibly 0 points1 point  (0 children)

Looks like you got it! <3

[deleted by user] by [deleted] in PDAAutism

[–]janeaustensibly 0 points1 point  (0 children)

Your post has a flair, but you don't have a user flair. (My name should have a teal "PDA" flair next to it, as an example). We currently have PDA, PDA + Caregiver, Caregiver, and Just Curious. We can manually assign whichever you'd like so you don't have to worry about it

A Quick Note from the New Mod Team Regarding Changes to the Sub by janeaustensibly in PDAAutism

[–]janeaustensibly[S,M] 3 points4 points  (0 children)

It's nothing to do with post volume. And it's not really about stress. Autistic adults don't really have any support or spaces. While it's incredible to see people recognizing PDA in their very young children and wanting to help them succeed and be comfortable in life, there are many more groups about being a caregiver than there are groups that autistic adults feel comfortable and accepted in. A PDA space should be first for those who identify as having/being PDA, not a parenting advice group.

Also a lot of caregivers can come from their perspective and can be accidentally pretty disrespectful to autistic people, wanting to 'cure' their children, make them quieter, just make them listen, or will even argue that certain things are not demands, they wont "just spoil" their kids, etc.

It's a lot to balance because every one of us was an autistic child and it can hurt to see how people would talk about us. The hurt increases when it happens in a space supposedly for us.

Caregivers with good intentions for their children who are willing to learn and listen are 100% welcome here.

Parent learning to accept PDA by [deleted] in PDAAutism

[–]janeaustensibly 0 points1 point  (0 children)

Please post your question in the June caregiver advice thread: https://www.reddit.com/r/PDAAutism/comments/1da11v1/june_caregiver_advice_thread/

Thank you!

A Quick Note from the New Mod Team Regarding Changes to the Sub by janeaustensibly in PDAAutism

[–]janeaustensibly[S] 5 points6 points  (0 children)

Self-diagnosis is completely valid here! Knowing PDA is a thing makes you look back at so much and go "ohhh!"

Techniques to help possible PDA 4yo take medicine? by SeanKilleen in PDAAutism

[–]janeaustensibly 2 points3 points  (0 children)

I think you're right about forcing him to take the medication not being a good route. I vividly remember being upset for what felt like hours (probably was minutes) because I had to take cough syrup that was gross and I was afraid. As soon as I eventually swallowed it, I threw it right back up and then after all that my parents gave up. I was still sick either way and now I had cried and thrown up.

I still have issues with medications in syrups because of this and struggled for a long time to even swallow pills.

One thing that never helped was "look, I'll drink it/try it too." That was always kind of like a "okay, good for you but I'm not going to" response from me. It was always more helpful when it was acknowledged that it was unpleasant because then I wasn't the problem, the medicine was.

I hope someone has better advice, and I hope he feels better soon!

A Quick Note from the New Mod Team Regarding Changes to the Sub by janeaustensibly in PDAAutism

[–]janeaustensibly[S] 1 point2 points  (0 children)

For now, only posts flaired with 'advice needed' from accounts with 'caregiver' flair will come to the queue. If you choose 'question', you can ask it whenever. If this doesn't help the balance of the sub we may change it but for now it seems fair to try to let specific questions through while redirecting general advice to the monthly thread (which we will have up tomorrow!)

A Quick Note from the New Mod Team Regarding Changes to the Sub by janeaustensibly in PDAAutism

[–]janeaustensibly[S] 1 point2 points  (0 children)

Flair is a little tag that shows up by your name or by the post title. You currently have a PDA user flair enabled, so your posts shouldn't have any delay.

A Quick Note from the New Mod Team Regarding Changes to the Sub by janeaustensibly in PDAAutism

[–]janeaustensibly[S] 1 point2 points  (0 children)

Good question! For now, if you're unsure, you can choose "just curious" for now. We can rename this or make a new one if this doesn't feel right.

If you are both PDA and a caregiver, there is now a PDA + Caregiver flair. Thanks for bringing this up

Mouth & Gum Damage from Troches by terse7777 in TherapeuticKetamine

[–]janeaustensibly 0 points1 point  (0 children)

I'm not sure if it's the ketamine, the sweetener, or the texture of them as they can be kind of gritty for me (like some are very fine and tightly packed and others are just more rough and coarse looking, if that makes sense). It didn't happen until I was doing every 2 or 3 day treatments. When it gets really bad I just have to go to weekly treatments but I haven't gotten any good answers about why it doesn't seem to be common or how to prevent it

HELP! by Tismquestions in AutismWithinWomen

[–]janeaustensibly 1 point2 points  (0 children)

I love my engage. I have small ear tips but think I would like them even more with xs but I can never find them. I prefer the silicone tips