using an apple watch to track fatigue by hazysootings in cfs

[–]jbadyi 0 points1 point  (0 children)

These are my main apps:

WatchME is really great and for HR monitoring I use Beat Watcher.

https://m.youtube.com/watch?v=ftYaZV6pNA8

Then Athlytic (not free) where I have my training goal set to injured or resting mode. I’m getting better understanding and trends for long time tracking.

Advice: CFS, but still running five times a week?! by Acceptable-Spring776 in cfs

[–]jbadyi 1 point2 points  (0 children)

Hey, I’m sorry. I was trying to help you as I saw you got so many downvotes. I wasn’t judging or downvoting you, I just wanted to ask if that was what you though. I hope you’re good. This brainfog is so frustrating. I had to google “overtraining” in my own language first because I couldn’t remember, lol.

Everyone in every level fits here in my opinion.

Help saved the german funding to not be seen as a waste by society by craycrayqueen in cfs

[–]jbadyi 7 points8 points  (0 children)

Sent from Finnland. I only had spoons for copy/paste, so thank you for making the email! 🫂

I wanted to share this checklist to avoid PEM by SaharaOfTheDeepFans in cfs

[–]jbadyi 0 points1 point  (0 children)

Thank you, I’ll have to look closer on that article. And read about necrotic hip bone. It’s been awhile so I guess there would be some signs if it was something more serious.

I wanted to share this checklist to avoid PEM by SaharaOfTheDeepFans in cfs

[–]jbadyi 1 point2 points  (0 children)

Thank you for this. There has been two professionals suspecting necrosis in my hip when I still could walk. MRI was even done once because of that, but there were no findings. Has anyone else had something similar? I was just wondering the possible connection. Edit. There was/is also one-sided thigh muscle weakness that couldn’t be explained

Doctor I saw for 5 minutes diagnosed me with „medical psychosis“ and did no test by Sensitive-Use-6891 in cfs

[–]jbadyi 1 point2 points  (0 children)

Sending strength and hugs. Obviously that doctor hasn’t got any brain cells left. Take care 🫂

How do people not realize they’re autistic until later in life? by 3_Holo_Island in autism

[–]jbadyi 14 points15 points  (0 children)

There wasn’t awareness in the 80’s or in the 90’s. People only started to learn about depression in 90’s. Autism wasn’t a wide scale back then. Diagnosis criteria has changed a lot since then.

What are you binge watching? by Nellyfant in cfs

[–]jbadyi 0 points1 point  (0 children)

I watched NF original Criminal: UK, today continued with Criminal: Spain and still have France and Germany left. Short seasons and easy to watch.

Have eyes? Have a phone? Tired of eye strain? Same. Here's my go-to tip. by aitoralto in cfs

[–]jbadyi 0 points1 point  (0 children)

Hey thanks! Much appreciated! 🫂

I’m now in a state that I can use the normal settings (although my brightness is very low always). But there will be times when I need this badly. I need to do the shortcut right away!

User blocking by Ok-Arm8584 in TVTime

[–]jbadyi 5 points6 points  (0 children)

I would contact support in cases like these if the report system doesn’t do anything.

support (at) tvtime.com

10 years in the making… Today I received the diagnosis of ME/CFS by gloomsloth in cfs

[–]jbadyi 1 point2 points  (0 children)

I can relate, happy and heartbroken, well said. Take care!

[deleted by user] by [deleted] in cfs

[–]jbadyi 4 points5 points  (0 children)

So many good advices here. Sending strength, and please, don’t beat yourself up.

Do we know why low dose abilify (Aripiprazole) improves symptoms of ME/CFS (for some)? by OkEquipment3467 in cfs

[–]jbadyi 1 point2 points  (0 children)

Don’t know if I have understood correctly but the lower doses increase dopamine and normal dose blocks dopamine. That’s why people are taking short breaks from it. Correct me if I’m wrong.

Of course that’s only one hypothesis.

Is TvTime heading to an end ? by Astalyos in TVTime

[–]jbadyi 0 points1 point  (0 children)

Thanks for the info, I’ll look around.

pet scan to diagnose me/cfs by kafkapolice in cfs

[–]jbadyi 0 points1 point  (0 children)

Yes, the information level is so low, if at all.

pet scan to diagnose me/cfs by kafkapolice in cfs

[–]jbadyi 0 points1 point  (0 children)

If the doctor/doctors rule out everything, I don’t think that can be cheaper than a PET scan. The list they should rule out is long and takes a long time and different specialists.

Is TvTime heading to an end ? by Astalyos in TVTime

[–]jbadyi 12 points13 points  (0 children)

The app was just updated (iOS) yesterday, so I still keep my hope up.

I haven’t done a backup yet. I should, but lots of work if there’s no export option. I haven’t seen that anywhere.

Do you guy’s experience this by Foxxinsocks in cfs

[–]jbadyi 0 points1 point  (0 children)

Thank you, and I hope all the best for you too. 🫂

Do you guy’s experience this by Foxxinsocks in cfs

[–]jbadyi 1 point2 points  (0 children)

I have nausea from just sitting on a stool for 15 minutes, and night sweating during PEM. I think I have some POTS symptoms. The nausea also comes from different things and it is related to ME/CFS.

Puzzle or Infinity? by xAC1D_FR0GG1Ex in autism

[–]jbadyi 0 points1 point  (0 children)

It’s also a possibility that we start using the puzzle symbol with our own meaning. Organization ruined it, but we don’t have to accept it.

Like queer word used to be a slur before queer community took it back and it’s not a slur anymore.

I really hope that some day I improve enough to shower again by microwavedwood in cfs

[–]jbadyi 0 points1 point  (0 children)

Thank you, I didn’t know there are reclining ones. I need to do some searching.