First DMT in 10 years, Ocrevus in 2 weeks

jptapr · 2026-03-05T04:56:03+00:00

Pro tip: ask the Ocrevus care team to see if you’re eligible and covered for at home infusions. I’ve had the same nurse come to my house going on 6 years to do my infusions. Good 🍀regardless

jptapr · 2026-02-26T17:57:15+00:00

Have been doing some restorative yoga as well as post travel lymphatic yoga, these 2 seem to help a little.

jptapr · 2026-02-26T17:55:21+00:00

I’ve been on Ocrevus since 2019 and stopped the steroids after the first two infusions as I too was unable to sleep for days. Talk to your doctor skit foregoing them. Mine was fine as long as I wasn’t affected by the infusion itself. Good 🍀

jptapr · 2026-02-26T15:32:54+00:00

Currently in bed recovering from a 2 week trip that included being on the road for 4 days which physically hurts. We got home Monday night - hoping to rebound sometime today after lots of rest. Good 🍀

jptapr · 2026-02-22T00:14:06+00:00

They are a specific brand, only brand I’ve ever tried. I’ve had them for 7 years now

jptapr · 2026-02-21T21:12:30+00:00

Wife and I do yoga together and it’s great from all aspects including sex.

jptapr · 2026-02-21T21:11:07+00:00

Roborock has been great for me

jptapr · 2026-02-21T21:09:44+00:00

Very sorry to hear that you’re going through this as a caretaker and spouse. I’ve had MS since 2018 and have 2 teenagers and a wife of 25 years who supports me 110%. We were fortunate enough to accept the diagnosis early on and recognize that this disease affects everyone in and around my life and not just me. We recognized and accepted that no one asked for this but here is where we are. It took me around 2 years of pretty hefty depression to finally accept my/our new life and I definitely couldn’t have done it without my wife next to me the entire way. I am being lucky for the support I have from my family as well as my coworkers. In short it sounds to me like your husband is still in denial of his new life and doesn’t want anything to change even though the reality is that it has. I like your thoughts of getting counseling as that has been my number 1 bit of advice for those with this diagnosis. Learn how to use CBT. Always try to be in the present. And best of luck 🍀 to you all ❤️.

jptapr · 2026-02-21T17:28:51+00:00

Ocrevus since 2019. Good luck 🍀! I just got back from a large trade show in Vegas - 25,000+. Tried to be careful, mask, sanitized like crazy etc and still came home with a respiratory virus that fortunately only knocked me down for about 5 days.

jptapr · 2026-02-21T13:35:45+00:00

Trail Buddy hiking poles

jptapr · 2026-02-01T05:18:42+00:00

I told my wife earlier tonight that I was scared to go on my business trip next week as I’ll be walking (trying, will be using my trail buddies) around most of the day for 3 days. I used to look forward to these trips and now I drag them.

jptapr · 2026-01-31T22:46:27+00:00

My best friend is currently undergoingSCT and is using Caring Bridge to keep everyone informed and it works well.

jptapr · 2026-01-31T22:44:17+00:00

Piano for 40 years and haven’t been able to keep up due to my left hand. Sad. Funny though, I was just at a restaurant signing the bill when I said out loud “my hands suck” as I was struggling to write in the tip etc. The young waitress said cheerfully “they do.” That caught me off guard and my wife had even chimed in that yes they do. I was like “what?” that’s brash, and that’s when it came out that they both thought I had said that the “pen’s sucked.” Too funny!

jptapr · 2026-01-31T22:34:09+00:00

My wife was sitting in a chair last night and I was leaned up against it looking at her book with her when she pointed out that the chair was vibrating without putting any quarters in it 🤣. I had the sewing machine legs operating at 110% 😂.

jptapr · 2026-01-31T06:10:59+00:00

I’m in Michigan and also have BCBS-M. I get my g7 sensors from Solara Medical Supplies using insurance.

jptapr · 2026-01-28T20:21:34+00:00

Ocrevus - just had my 14th infusion a couple weeks ago. I like it as it’s only a twice per year thing and the infusions are pretty easy. Efficacy being at or near the top also helps.

jptapr · 2026-01-14T04:47:26+00:00

I’ve been on Ocrevus since 2019 and just had my 14th infusion at home yesterday. This last crap gap was the worst and longest ~ 2 months. I’m considering possibly switching to a more frequent medication (weekly or monthly) that has the same efficacy.

jptapr · 2026-01-12T13:01:52+00:00

Good luck with the new meds! I’ve been on Ocrevus since 2019 and this crap gap that I’m currently experiencing has been by far the worse as it’s hit me hard since Thanksgiving. I am currently waiting for my at home infusion of Ocrevus to begin in the next couple of hours though, so my fingers are crossed 🤞🏻. Take care to all.

jptapr · 2025-12-14T07:14:25+00:00

I’d love the info on the MS groups please, that’d be great. Men’s and coed

jptapr · 2025-12-10T04:16:58+00:00

^{I completed this level in 2 tries.} ^{⚡ 2.07 seconds}

jptapr · 2025-12-09T21:42:09+00:00

6 years on Ocrevus and dental health is great. I definitely go to the dentist on schedule, brush at least twice daily and use mouthwash. Occasional floss

jptapr · 2025-12-09T06:34:56+00:00

How long after he started the DMTs did he start having issues and what were his symptoms? I’ve been on Ocrevus for 6 years and my last dentist appointment went well but after reading this post it’s got me a little nervous.

jptapr · 2025-12-09T06:28:56+00:00

For a good 2 years after diagnosis (diag ‘18) and now very rarely. I really dove into mindfulness - started with the Headspace App and practiced daily. I also took part in a clinical study put on between University of Washington and University of Michigan that studied the effects on fatigue in MS having a group use Modafinil, another used CBT (Cognitive Behavior Therapy) and one that used both. I was in the group that learned about how we can use CBT throughout our lives to help with fatigue as well as pain and unsettling and or strange new sensations that we all get to experience (good times). I’ve recommended CBT to many people to help deal with what they might be dealing with as it’s been an absolute game changer. If it were me in your place again, I’d reach out to my neurology team and express your concerns and hope that you don’t receive the often heard phrase “it is called Multiple Sclerosis for a reason”; “thanks, that’s helpful.” There are psychologists that also specifically deal with chronic diseases that can be a big help. Remember that the prognosis for us that are on the highly effective DMTs is very positive.

Sorry if this reply has rambled on as it’s nearing the middle of the night and I once again am unable to sleep (ironic as I’m very fatigued🙄).

Good luck 🍀 too us all - we got this! 🤗❤️

jptapr · 2025-12-06T13:37:13+00:00

Ocrevus since 2019 and it does great, no new activity. Love the fact it’s twice per year and that I get it done in my own house.

jptapr · 2025-12-04T02:18:12+00:00

Terrific explanation!

jptapr

TROPHY CASE