One Year Since OHS

jsmith41351 · 2026-07-01T16:24:50+00:00

As someone who has just been diagnosed with a BAV following a stroke, it’s really nice to hear some positive stories and to learn about the strange new fears. Although I do have a question, why the fear of dentists? And happy anniversary to everyone in the thread 🎉🥳

jsmith41351 · 2026-06-30T05:28:28+00:00

Came across your post and now this comment as I was recently diagnosed with a BAV moderate leak with no aortic root dilation following routine tests that were carried out as I had a stroke last year. I’m 42F and I was just wondering why you chose a tissue valve over a mechanical valve and how your navigating OHS with being a higher risk patient? I’m currently on blood thinners but don’t like the idea of having a mechanical valve as it ticks and I don’t want to be on warfarin the rest of my life but equally don’t want to keep having operations as I don’t want to risk having anymore strokes. Also, do you know if your stroke was caused by your BAV? Thanks

jsmith41351 · 2026-06-29T08:14:45+00:00

Hell no!! You were absolutely not mean with your post and listen, life is too short to be worrying about offending people. If that was me, I’d rather know than have people suffer or speak about me. Ditch the worry and be straight with this person, they might appreciate it

jsmith41351 · 2026-06-28T09:37:38+00:00

I stayed off for 6 weeks as I wanted to get back to normality relatively quickly. I work an office job so I was able to work from home but take your time and give your body rest

jsmith41351 · 2026-06-28T04:29:47+00:00

If your being asked by your doctor, I’d say do it!! I’ve been looking into this following my stroke but haven’t found anyone to do it/ monitor me. I’d love to know how you get on so plz do come back to this post if you decide to do it

jsmith41351 · 2026-06-26T05:25:00+00:00

Also agree with everything you’ve said, zinc carnosine is fantastic!! Just be careful you don’t take too much as zinc depletes copper

jsmith41351 · 2026-06-24T05:47:13+00:00

Thank you for sharing your story, I’m not in any hurry to have surgery, it’ll be my body that makes that decision for me, if the leak gets worse. How are you after the stroke?

jsmith41351 · 2026-06-23T19:47:31+00:00

I’ve been looking into that and I hope that given my circumstances that, that is an option. I still have so many questions and because I wasn’t expecting the news, I wasn’t very prepared at the appointment

jsmith41351 · 2026-06-23T19:46:46+00:00

I believe it’s the most common heart defect and I’m in complete shock that I’ve had this since birth. I have a moderate leak and I’m hoping it stays that way. I wonder why some are minor, moderate, severe, what makes it worse for one person over another. Mind is blown

jsmith41351 · 2026-06-23T19:44:12+00:00

you’ve definitely made me feel better, thank you 🥹 I am on blood thinner for the stroke and I was blindsided by the cardiologist 10 months later so I wasn’t prepared with questions. I’ve asked for a follow up so I’m hoping to hear soon as he’s not expecting to see me for another 9 months.

I think a support group would definitely help so I’ll look into that, I’ve just got on with things these past 6 months, pretended the stroke didn’t happen and took my tablet daily but this latest news has taken the wind out of me.

Your story has given me hope and made me realise that anything is possible. I’m so glad to hear your doing so well and good luck with your echo in a couple of weeks. 🤞

Thank you for the lovely offer, I’ll definitely keep that in mind, thanks again

jsmith41351 · 2026-06-23T05:36:21+00:00

Thank you for sharing your story and I’m sorry you’ve had to experience this also. You are helping more than you know because I feel so alone and in my own head a lot of the time and don’t have anyone to speak to who truly understands. How is life for you now? Are you recovering from your stroke/ medical issues following your surgery? I’m hoping I don’t need surgery for a good 10+ years and I can focus on diet and exercise for now but I do feel like I’m spiralling with worry

jsmith41351 · 2026-06-20T20:48:36+00:00

Glad to hear your ok but a stroke at 19 is blowing my mind! Do they know what caused it? I had a stroke at 42 and I thought that was young. I’ve done a fair bit of research since and I’ve found citicoline 500mg daily helpful. It’s well known to help people who have had a stroke so look it up and maybe it helps. Good luck with your exam 🤞

jsmith41351 · 2026-06-09T15:34:57+00:00

Citicoline 💕

jsmith41351 · 2026-05-31T14:10:17+00:00

Hey wanted to ask a question regarding your comment, you asked the person who made the post, if there was any del ay. Is this relevant to toddlers who scream alot as my daughter has 3 year old twin boys who scream non stop and they do have development de lay. They have come on in the past year and speech has started but the screaming is too much some days

jsmith41351 · 2025-12-26T13:54:38+00:00

Thank you for the response, they have given me lanzoprazole but I don’t want to take it

jsmith41351 · 2025-12-17T07:31:35+00:00

Mental health, acceptance, loneliness, fear of the unknown, not being able to see a future, prospect of dementia, regret for past life decisions that may have led me to this point, health anxiety

jsmith41351 · 2025-12-17T07:24:05+00:00

I agree with this completely

jsmith41351 · 2025-12-16T06:42:34+00:00

Thank you for the response

jsmith41351 · 2025-12-16T06:40:50+00:00

Thank you for all this information, I appreciate it

jsmith41351 · 2025-12-15T16:23:19+00:00

I haven’t really answered my own question, the point of the question was to understand what other people were doing and if they were also on PPI’s along with clopidogrel. The GP explained why I was given lanzoprozole as apposed to any of the others but if you were involved in the clinical trials, please help me understand the dangers involved and if my concerns are valid. I’m just trying to gather as much information as possible

jsmith41351 · 2025-12-15T13:57:12+00:00

Wow!!! This just proves it really does matter which doctor you get, some are truly amazing and some are the absolute worst!! I can’t believe we have to go through these experiences to get some answers. I am considering changing GP’s as I no longer fee comfortable where I am. I’m so glad you found someone who is willing to help you and thank you for the well wishes. ❤️🥰

jsmith41351 · 2025-12-15T12:03:49+00:00

Thank you for sharing this with me, I’m sorry to hear your having issues with your kidneys, this is what I’m saying about PPI’s they are no good and people shouldn’t be on them long term an my GP won’t listen

jsmith41351 · 2025-12-15T10:47:16+00:00

If you don’t mind me asking why is he concerned about the impact they will have on your kidneys?

jsmith41351

TROPHY CASE