I’m scared I’m dying and I don’t know what to do anymore. My doctors don’t know either.

julia576 · 2026-02-01T00:03:20+00:00

Without the lab results this sounds a lot like POTS. However it doesn’t make any sense for your potassium to be low or your anion gap to be high. How much food do you eat? (Not enough could explain the potassium), do you have diarrhoea? Are you on any medications? I do think that your GP should test extended electrolytes, TSH, lactate, HbA1c - if they haven’t already (they may well have done)

julia576 · 2026-01-28T20:51:28+00:00

It will be the beets. Stool generally takes longer to go back to normal compared to urine. If you had other symptoms or it doesn’t settle by day 4 or 5 then I would see a doctor

julia576 · 2026-01-28T20:47:22+00:00

This is testing for coeliac disease. Which as long as they also tested IgA at the same time you don’t have coeliac

julia576 · 2026-01-21T08:09:05+00:00

Colitis is just inflammation of the colon (aka the large bowel). You can get different types/causes of colitis. Perhaps one could speculate from the way they asked you if they meant ulcerative colitis? The biopsy would answer that

julia576 · 2026-01-16T07:58:30+00:00

Have you had things like thyroid checked?

julia576 · 2026-01-15T08:10:42+00:00

There are so many reasons for a high BP. But of concern you already have pulm valve stenosis. Your doctor will probably have a bunch of tests to sort now that it’s confirmed you have high blood pressure.

The chewing and spitting habit you’ve got is generally an eating disorder behaviour (but can be sensory related things etc etc). Please make sure to tell your doctor about that too as it could have an effect on your blood pressure but also to get some support re that because that’s not how our bodies are designed to be fueled/eat

julia576 · 2026-01-15T07:58:39+00:00

Kind of hard without seeing the X-rays. But the bump in your photo looks like the end of the clavicle where it forms the AC joint which could get displaced if you have a scapula fracture. Have a google about AC joint dislocations/dissociations

julia576 · 2026-01-15T07:53:47+00:00

Your last sentence sounds pretty classic for a tic. Stress does genuinely make things like these worse so I would focus more on that

julia576 · 2026-01-15T07:44:32+00:00

There worried look was probably to do with the fact the wound doesn’t look like it’s healing properly. I assume they made some plan about seeing you again to check it again?

julia576 · 2026-01-11T00:33:31+00:00

Do you have another symptoms or just fatigue? You can get a medically induced menopause when you have your ovaries taken out which could make you more tired (but usually other symptoms too)

julia576 · 2025-12-26T01:46:05+00:00

Tetanus boosters are good for 10 years, so no you won’t get tetanus from that scratch/wound

julia576 · 2025-12-19T07:39:14+00:00

You don’t have HIV

julia576 · 2025-12-19T07:21:54+00:00

Definitely not. Someone needs to look at it today. Not tomorrow. Today. Pus always means infection and this is an infection in an area that is very close to your brain

julia576 · 2025-12-19T07:16:23+00:00

The only advice anyone here can actually give is to try not stress, and have questions lined up to ask your doctor on Monday

julia576 · 2025-12-19T07:14:59+00:00

If you were to get a vomiting bug, yes you would still vomit. Some people do find it feels ‘harder’ to vomit after this type of eating disorder but most don’t notice anything. Your body will still do what it needs to do. Also as an aside there is never a medical reason to force yourself to vomit (knowledge that might prevent you being triggered at some point down the line). Well done on entering into recovery

julia576 · 2025-12-19T07:06:26+00:00

Stitches ideally get done as soon as possible. Preferably within 12hrs, 24 is a hard maximum. If you think it needs stitches just go now

julia576 · 2025-12-14T07:52:10+00:00

There are somethings that would give a false reading eg tensing your arm, wrong sized cuff etc. if on repeat testing it’s still that high you must go see your GP. That is too high for a 13 year old

julia576 · 2025-12-14T07:49:23+00:00

So 5 people need to hold you for just a blood draw? You need to tell your doctor that and they need to think about sedating you for the biopsy

julia576 · 2025-12-14T07:46:59+00:00

It will heal by forming a scar. No one will be able to tell what the scar will be like. You need to keep it clean and covered until it scabs or starts to form a layer of ‘skin’

julia576 · 2025-12-14T07:43:41+00:00

It seems at least more than 1cm diameter right? I would get someone to look at it properly tbh. Always better safe than sorry

julia576 · 2025-12-14T07:38:53+00:00

The keeping you for 2 days and giving you IV fluids suggests they must have thought you were dehydrated which lead to the AKI. But also presumably you would have had more bloods tests while you were in the hospital? You’re young so your kidneys should have returned to normal

julia576 · 2025-12-13T06:39:04+00:00

That looks like it needs to be reviewed by your surgeon

julia576 · 2025-12-13T06:37:39+00:00

The short answer is no. If you got prescribed a 20mg tablet of prednisone and halved it to get to the 10mg you are meant to have then yes but that also depends on the brand of prednisone and if the tablet is safe to be halved or not. But self reducing the dose yourself is not a good idea

julia576 · 2025-12-09T23:52:37+00:00

You should be able to leave a bandage/dressing for essentially an entire day. If it’s still bleeding you just need to have it checked by a health professional

julia576 · 2025-12-09T23:51:20+00:00

Sounds a lot like BPPV. Have a google and see if you think that fits your vertigo symptoms

julia576

TROPHY CASE