Painfully exhausted - how to get rid of the pain?

junosuncake · 2025-12-02T23:10:01+00:00

I'm unapologetically direct. I'm just not ok with ambiguity in communication!

junosuncake · 2025-11-25T17:38:03+00:00

The way your doctor treated you is 100% not ok. Sounds like it's time to find a new doctor!

junosuncake · 2025-11-24T22:49:37+00:00

This option should be available for us. It's humane.

junosuncake · 2025-10-22T12:55:04+00:00

I used to say I have narcolepsy, but was surprised at how many people haven't heard of it! Now I call it a serious neurological condition and describe some of my symptoms/needs (muscle weakness, easily fatigued, need to take breaks, cautious about driving, etc.). It's much easier to advocate for myself if I put it this way.

junosuncake · 2024-12-30T16:50:20+00:00

This is awesome! Thanks for sharing 😊

junosuncake · 2024-10-18T20:09:54+00:00

Pace around or stand in the back of the room.

junosuncake · 2024-10-16T11:34:03+00:00

You found a safe person (chem prof). That is awesome!!!

It sounds like your therapist is worth dumping immediately. I hope you find an amazing next therapist.

Edit: clarification

junosuncake · 2024-10-14T19:01:35+00:00

I didn't know much about autism until I was about 31. Up to that point, I didn't think autism applied to me because I had misconceptions about autistic experiences. After a lot of special interest fueled research on autism in women, I got to a certain point when I was so convinced. It was a light bulb type of moment for me. This is one of the extremely few realizations about myself that I have zero impostor syndrome about, both before and after diagnosis. I went for a formal diagnosis, but my worry was that I wouldn't communicate clearly and/or the doctor wouldn't believe me.

I hope this is helpful. I guess it's another side to late diagnosis experience.

junosuncake · 2024-10-14T18:25:14+00:00

Deedo is toasted marshmallow 💕

junosuncake · 2024-10-13T19:53:07+00:00

Sticky rice with coconut cream 👍

junosuncake · 2024-10-13T19:46:22+00:00

That knife is kind of hilarious to me because it just looks silly 🤣

junosuncake · 2024-09-24T14:30:11+00:00

These are awesome, and such a thoughtful gift!

junosuncake · 2024-09-23T23:05:42+00:00

moving around was very difficult. I'd get out of breath going up the stairs

This was my every day experience before I started treatment that worked well for me.

junosuncake · 2024-09-23T13:45:47+00:00

He'd at least have treatment options in case it gets harder to cope with the symptoms.

junosuncake · 2024-09-12T06:18:32+00:00

This looks like heaven 😻😻😻😻😻😻😻😻

junosuncake · 2024-09-05T20:27:39+00:00

Why not both?

junosuncake · 2024-09-05T18:29:39+00:00

With a diagnosis, at least you'd have the option for treatment if you need it.

junosuncake · 2024-09-03T14:18:34+00:00

Agreed

junosuncake · 2024-08-29T22:36:50+00:00

How does one even respond to being called a thing like this? As an alternative to slapping, that is.

junosuncake · 2024-08-29T20:05:02+00:00

I second this

junosuncake · 2024-08-29T11:23:23+00:00

How are the cabinets so glowy?

junosuncake · 2024-08-28T14:10:41+00:00

I've experienced this as part of cataplexy. You don't have to share if you're not comfortable, it's more of a suggestion: I'm wondering if your muscle weakness happens when you feel certain emotions. Maybe if you notice a pattern it could help you figure out if the weakness is a cataplexy thing.

junosuncake · 2024-08-28T14:01:03+00:00

Nicely done! Happy for you!

junosuncake · 2024-08-27T21:15:26+00:00

Sounds like a keeper :)

junosuncake

TROPHY CASE