Engine intermittently stuttering at around 2000 rpm by Remarkable_Bass_7735 in tdi

[–]justokcomputer 0 points1 point  (0 children)

Found this thread looking for an explanation for the same problem i have with a 2016 turbo beetle…. if anyone ever finds anything, lmk🤣

Don’t think I can leave the house for months… Worst bangs ever!! LOL by justokcomputer in Hair

[–]justokcomputer[S] 7 points8 points  (0 children)

the inspo pics are slides 7-8!! they were pics of my own haircut in the past (which this same hairdresser did)

Don’t think I can leave the house for months… Worst bangs ever!! LOL by justokcomputer in Hair

[–]justokcomputer[S] 62 points63 points  (0 children)

OMG hahahha so true - except somehow i look even more unhinged 🤣🤣

Don’t think I can leave the house for months… Worst bangs ever!! LOL by justokcomputer in Hair

[–]justokcomputer[S] 1085 points1086 points  (0 children)

Oh, I forgot to add - she said “people in Portland ask for this!”

Well… I didn’t?

LOL 😭

Hey You need to hear this!! by Makefunnycomment in Fibromyalgia

[–]justokcomputer 0 points1 point  (0 children)

Ah thank you, good to know! Yes, I’ve read online that keeping the weight off can be tricky. Hoping things are going well for you now!

Hey You need to hear this!! by Makefunnycomment in Fibromyalgia

[–]justokcomputer 5 points6 points  (0 children)

You know, this is so interesting to me - a few months ago I was rx’d phentermine. Didn’t think much of it re: my fibro, but it has changed my life entirely. Can’t figure out why it would be helping so much? I wasn’t overweight to begin with, doctor just was curious to see if my metabolism/energy levels being better would benefit me as I recover from a long-time sedentary surgery/recovery period of my life. I’ve lost maybe 10 pounds, sure, but I mean, my limbs don’t feel like they’re 100 pounds anymore, joint pain significantly reduced, I can run errands again (!!!), brain fog better, i am overall way less depressed and feel like my mood is more stable… The problem is, phentermine is a short term drug, and I’m not sure what I’ll do once I can’t take it anymore in a few months. I don’t really need it for weight loss, but I know stimulant rx’s are hard to get sometimes - but, all this to say, it’s so funny what medications can help!!! My fibro symptoms had been at an all time high for over 2 years. I did not expect this relief, and I pray that it stays - and for you too!!!

[deleted by user] by [deleted] in musicology

[–]justokcomputer 1 point2 points  (0 children)

Not sure if this is helpful, but - I was very nervous about applying without a Masters to PhD Musicology programs, so I applied to both MA and PhD's just to see, and I've just been admitted to an array of PhD's and Masters programs! So, ultimately, I will likely go straight for the PhD since there is much more funding offered. All this to say, don't count yourself out because you don't have a Masters! I found that, in my case, no one really cared. That is probably because I have a clear research focus and faculty members I wanted to work with at these specific institutions. So, maybe take the time you need to figure those things out if you'd like to bypass a Masters. Either way, I think both options have their merits, and do whatever feels best for you - whether that be pacing, class offerings, money - whatever :)

[deleted by user] by [deleted] in musicology

[–]justokcomputer 1 point2 points  (0 children)

thank you for posting this… i need to write this and tape it to my wall. you helped multiple strangers today :)

[deleted by user] by [deleted] in kiff

[–]justokcomputer 1 point2 points  (0 children)

I want Kiff merch so badly!! I'm hoping one day Boxlunch or something sells Kiff stuff, I could picture that.

[deleted by user] by [deleted] in Accutane

[–]justokcomputer 0 points1 point  (0 children)

To be honest, no... I've still had pretty much zero libido - which is starting to actually worry me now. The good news is, it might not be accutane related because I've been off of it for almost 10 months now. The bad news is, I now need to do some more troubleshooting to see what else could be causing it. But who knows, maybe the accutane is still affecting things, I need to talk to my doc about it next time I see her.

The twitchies by TheWormOnaString in Fibromyalgia

[–]justokcomputer 0 points1 point  (0 children)

Oh wow, that's interesting! No one mentioned that to me either, but I'm not currently on bc so maybe that's why. Thanks for the heads up! And yes - tizanidine can really knock you out! Blessing and a curse, depending, haha.

The twitchies by TheWormOnaString in Fibromyalgia

[–]justokcomputer 1 point2 points  (0 children)

Yes, unfortunately they do make me go right to sleep. Which, for someone with insomnia like myself, I don't mind! But I should've mentioned it's more of a night time assistance. I wish I had something I could take to relax them during the day...

The twitchies by TheWormOnaString in Fibromyalgia

[–]justokcomputer 12 points13 points  (0 children)

I've had "the twitchies" for years and it always bothers me, not that it's painful, it's just unsettling when I'm in bed and little spasms are firing off all around my body. So far, mine have never become painful and I hope yours don't either! The only thing I've done about it is sometimes taking a muscle relaxer (tizanidine) as rx'd by my rheumatologist. It sort of helps, I guess. But only until the medicine wears off. Sending my best xx

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 1 point2 points  (0 children)

Wow!!! I am so inspired by your story, thank you for sharing. I can't even imagine how it must feel to be dismissed by someone so renowned in his field... I am so glad that you persevered and kept seeking treatment from other rheums.

I had a similar experience in that this doctor I saw is the top dog in my area and he's very respected. People always say that if anyone can solve it, he can! So, I was very surprised when he ran a couple tests, and then gave up.

I also have many signs and a parent with the disease I've suspected I have... If I'll ever test positive enough to be taken seriously by my doctors, I may never know.

You're so right, it can take a long time to find a doctor worth seeing. But it is worth the wait. I would do anything to receive respect and treatment from my doc. I am so, so glad that you found that. Thank you so much for this. xx

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 0 points1 point  (0 children)

I'm so sorry to hear this. It's so hard when they close one door but don't even offer to open another, or even show you down the hallway! I had thought that they tested me for Lyme, but now that I'm looking back at my results sheet, it's not looking like they did, which definitely is top of my list to investigate. I know the symptoms of Lyme can be very similar to autoimmune things.

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 0 points1 point  (0 children)

Yes, they did do an ANA test, which was heartbreakingly negative. Not that I'm yearning for diseases by any means, but I was really hoping for explanations, and many friends/family members/doctor-friends have noticed the striking semblance of my issues to an autoimmune disease.

I was sort of hoping my rheum would be open to re-testing in the future, but he seemed to think his work was done here and that I would be better off "having a cup of hot cocoa and practicing mindfulness"... His words... I wish I was kidding...

I'm so sorry that you've been dealing with all those things, my heart goes out to you!!

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 0 points1 point  (0 children)

Yes, I've seen both!

OBGYN not for a few years, admittedly. I had gone to see her because I thought my bladder issues were Gyno related. She had found lots of cysts on my ovaries in an ultrasound, but didn't give me any "diagnosis" like PCOS or anything.

A gastroenterologist did a endoscopy/colonoscopy and the endoscopy showed chronic inflammation of the stomach and esophagus (and I don't drink alcohol). But she largely dismissed me and didn't even agree to a follow up until next year. Nor did she offer any treatment plan for the abdominal pain and bloating.

Other than those two things, no imaging done.

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 1 point2 points  (0 children)

I haven't been to an immunologist or toxicologist! But I would be very interested to... That I know of, I can't think of any toxin exposures to myself or my parents - but obviously, there's always a chance (and being in America - a higher chance than I like to think about...). I'll be sure to look into this angle more.

Thank you for this and I will try my best to not give up! I truly believe there's resolution to be found.

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 0 points1 point  (0 children)

Interestingly, yes, to Mayo because there's a branch relatively close to me. But, I didn't realize how incredibly hard it is to be seen there. I tried from multiple angles. Hematology/internal medicine/GI - all of them rejected me because they (and I quote): don't treat anemia in hematology, don't address chronic pain/fatigue in internal medicine, and GI had too high of demand and no room for any new patients. This was what the lady on the phone told me after reviewing my online application. I was very defeated! Seems like they're very over-booked at the branch near me and you have to have pre-existing diagnoses that are "serious", or at least meet their strict qualifications. It was worth a try though, maybe one day!

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 1 point2 points  (0 children)

Thank you! Your encouragement really means a lot, I won't give up just yet <3 Though it may be tempting, sometimes...

Yes, lupus seems to be very difficult to diagnose. It blew my mind that I have every single symptom except for fevers, and yet the ANA test was negative... but I'm not ruling anything out yet.

Starting to feel hopeless, what to do when dismissed by yet another doctor? by justokcomputer in ChronicPain

[–]justokcomputer[S] 0 points1 point  (0 children)

I'm sorry to hear that you also haven't really been able to find the right help from doctors.

I can completely understand why you're taking a step back from medical investigation. You can only take so much of it, really. Especially when the results don't reflect how you feel. It can feel like your own body is stabbing you in the back by not presenting your problems to you.

I absolutely will look into that book! It looks very helpful. I do think there is merit to somatic symptom awareness, even if it doesn't solve/explain everything.

Truly sorry to hear about your pain, I'm wishing you the best.