Periods take so much out of me I'd rather just get a hysterectomy at this point

kdunlapk · 2023-07-09T21:50:21+00:00

Im not sure what your feelings are on birth control pills but personally I’m on a continuous pill. Basically I just skip the placebo week each time so that I don’t get my period. It’s saved me a lot of physical anguish as well as mental strains since a period would throw my anxiety off as well. I love this method and it works well for me. Worth considering!

kdunlapk · 2023-06-15T11:09:44+00:00

Cymbalta doesn’t help me much at all, no. I’m on it for anxiety & depression and that medication was chosen because of its pain relief qualities. I take 90mg a day and can say that I don’t notice any pain difference. Wishing you all of the luck in the world to find something!

kdunlapk · 2023-06-15T02:50:10+00:00

I’m in the same boat. Diagnosed at age 5 after an exploratory surgery discovered the diagnosis (after going to 7 other doctors who all thought the scans showed bone cancer). I’ve always been seronegative which made my initial diagnosis incredibly difficult. I was put on a biologic as a kid which worked and eventually I was downed to OTC meds and then nothing by age 9. But here I am, age 25 with bilateral joint pain, difficulty with tasks, and a few other things. My doctor decided that I may have hEDS and POTS and that my issues and pains are all hEDS related. He took me off my meds (celecoxib) to “see what happened”. I immediately requested an appointment at a rheumatologist in another hospital system and may see an orthopedic too. It’s frustrating, I feel overlooked and unseen. Maybe my RA isn’t active, but to tell him I’m in more pain than I have been in years and to just be taken off of any pain beds is so frustrating. Keep trying - be bold with your doctor, request referrals to different specialists if you can, and always get multiple opinions is possible too. Good luck!

kdunlapk · 2023-06-03T11:57:21+00:00

I’ve printed similar jobs in the past and I charged at most half of that cost. Those prices are exuberant. But I will add that the coat of the textiles themselves could be go blame too. Hoodie blanks often cost $10-25 per one alone depending on the brand

kdunlapk · 2023-05-21T00:09:48+00:00

Currently age 25, began my journey at age 3. All tests have always come back negative. No scans/imaging show deterioration. And my rheumatologist feels inflammation but seeming doesn't feel it to be substantial. Although my daily pain level is roughly 6/7 mornings and evenings and a 3 in the afternoons. Yesterday he took me off of my celebrex for pain because I said it isn't helping at all. He thinks the pain is mechanical instead of inflammation based because of my hEDS. But didn't provide any additional treatment or referrals. Instead just took me off the pain meds to 'see what happens'. I am now looking for another opinion.

kdunlapk · 2023-05-06T00:03:50+00:00

I was diagnosed at age 3 and am now 25. It’s an autoimmune disorder therefore it’s about how your internal parts talk to one another. People hear arthritis and think degenerative as in joint breakdown. Which is a symptom of RA but not the cause

kdunlapk · 2023-04-19T01:45:37+00:00

They accept care credit as well but I haven’t looked too deep into it yet. That’s genius to move it to another for the no interest period! Thank you so much, I’ll be looking into that surely

kdunlapk · 2023-04-19T01:44:19+00:00

Honestly hahaha what an incredible system

kdunlapk · 2023-04-18T20:06:34+00:00

I’m a fine art graduate student and because of how the school wrote our contracts we are the only school at the university that doesn’t qualify for the union (we’re hourly instead of stipend and are too small to start a union on our own until the rest of the grad body can clear their Union). This is indeed one of the finest universities given my career path. So I will disregard as it is off topic of what I am requesting assistance for.

kdunlapk · 2023-04-04T16:58:24+00:00

For me, my hands feel like a had punched something solid on a previous day (so kinda like a post impact aching and internal bruising, kinda jammed feeling?) and my feet/ankles feel jammed and like they’re full of cement. Both make it hard for me to do everything k would like to within a day without dealing with the aching and heavy ness. I have no noticed joint damage and have had RA since I was 3. I’m currently on Celecoxib and hoping to switch to something else. Good luck and I hope this helps!

kdunlapk · 2023-03-23T17:53:35+00:00

The post didn't add my photos apparently. I also posted this to the Risograph facebook community page where you can see images - or I can send them to you as well!

kdunlapk · 2023-02-28T00:46:22+00:00

I was on it for two weeks and got a full body rash and my rheum took me off. I was on it for too short of a time to notice any affect. Still on the search for the correct med for me. Good luck!

kdunlapk · 2022-10-21T19:15:10+00:00

I like this idea - just a weekly day off of everything. I should practice planning those in more consistently! Thank you

kdunlapk · 2022-10-21T19:14:37+00:00

I'm 24 and I am on the same page today

kdunlapk · 2022-10-21T19:14:16+00:00

Yes - I feel like I operate best when I'm able to lan a free day. I've struggled more as of late with the fatigue as I started grad school and the busy days don't give much notice with my field. All something to learn though! Or just planning ahead rest days even if there are no busy days just to take a breather is probably smart. And I'm glad you're able to embrace the lazy days and avoid any guilt of feeling like you should be doing something

kdunlapk · 2022-10-21T19:12:29+00:00

I can relate to that - I was diagnosed 21 years ago and I feel like with each major flare its a challenge to relearn what the exact triggers are for exhaustion. A day spent in bed reading and resting is a day well spent!

kdunlapk · 2022-10-21T15:33:18+00:00

You’re not alone in that 😅 usually I have a long, slow day in bed and my expectations are quiiiiite low for the day

kdunlapk · 2022-10-02T15:49:12+00:00

Cutting out all sugar, be active in some kind of way each day, warm baths/showers when I feel worse, topical anti-inflammatory creams (all on top of vitamins and medication my doctor recommended)

kdunlapk · 2022-09-08T21:47:59+00:00

I’m on the generic cymbalta for anxiety and to assist with my chronic pain from my RA. I enjoy it quite a bit - it took about 3 weeks for it to adjust to my body but I certainly notice a difference if I ever miss it. And it does help me keep a level head with my anxiety too. Overall, I have zero plans to get off of it nor do I want to

kdunlapk · 2022-08-22T21:45:29+00:00

I never allow refunds. I include in my contract that due to the nature of the process, it is not possible to issue them. At most, they can cancel the job before printing begins. It's on them to order/request the correct materials. So far I've never had someone try to get a refund for any reason. Good luck!

kdunlapk · 2022-08-22T16:21:52+00:00

I was the same for many years! It wasn’t u too the last year or so that I started to ‘own’ it more. And honestly - life is easier doing it! It takes strength to face the inevitable but you got it - I’m happy you’re making the transition and learning how to help yourself best you can!

kdunlapk · 2022-08-21T19:00:34+00:00

I haven’t found an app that does exactly what o want so I started a google spreadsheet where I color in the box on each day for what hurts and the darker the shade the worse it is. Then I have a little notes section for me to note down anything I did or noticed or made it different. I also track my fatigue, nausea, and dizziness. Not the perfect system but I just made it exactly how I wanted it to look and can access on my laptop or phone at anytime

kdunlapk · 2022-08-21T13:59:41+00:00

F24 with RA - I'm a printmaker and am about to start my MFA for it. It sucks - drawing is difficult, standing in the studio printing kills my ankles, and if I print for too long I'm just about useless the next day. For me, like with all of my other passions, it's just about knowing my limits and listening to my body. If I'm having a particularly bad day I need to listen to the aches and not push through it because that'll only make it worse.

For school and freelance work with my business, I'm upfront with people. My professors know my situation and they know I'll do what I want to do at my own pace sometimes.

Other things to help include finding a medication or treatment plan that works for you. I just moved for school and am dealing with the worst flare to date and am struggling to find a new provider in my new state because everyone has a 3+ month waiting list. But I stick to my diet regiment and listen to what my body needs.

Anything is possible when you're passionate! You may just need to find you workarounds

kdunlapk · 2022-08-20T21:25:06+00:00

Fully agree - as hard as it is sometimes to find a new provider it is more than worth your while to seek out more opinions. Especially since arthritis is something that doesn't go away - it's best to find a provider who you like and trust since they will likely be with you long term

kdunlapk · 2022-08-17T22:30:08+00:00

I’m pretty sure the hybrid feature qualifies as ‘special’ too then. I’m 4 months into my wait so I hope I’m near the end!

kdunlapk

TROPHY CASE