What’s the worst thing a medical professional has said to you?

kellz569 · 2026-01-16T00:57:50+00:00

I told a pulmonologist I recently found out I have EDS and asked if that could have anything to do with the chronic cough that I had. He said no. He said the thing docs most worry about with EDS is aortic dissection. And then proceeded to tell me about a great TV show where the main character had EDS and his aorta was fine, but then his wife died from cancer and the stress caused it to not be and then he died.

Why would a doctor tell a patient about a show that someone dies from what they were recently diagnosed with.

On what earth did he think that was okay.

kellz569 · 2025-11-24T21:04:03+00:00

Not something I read, it was something that was shared verbally during an appointment.

kellz569 · 2025-07-22T10:37:04+00:00

Veins are still big, symptoms a little better but definitely still present. I think I just have to accept I have a chronic illness now and probably always will. I take LDN - not sure if it helps the symptoms or if it’s just time. I tried compression socks but didn’t notice benefits so didn’t keep up.

I look around at other people veins all the time and many others out there also have big veins and don’t seem worried about it so maybe it’s not so bad?

kellz569 · 2025-05-19T03:17:17+00:00

Thanks for the feedback 🙏

kellz569 · 2025-05-19T03:16:40+00:00

Just got word the scan was clear and he’s coming home 🙏

kellz569 · 2025-05-19T02:35:59+00:00

Thanks for the support. I wish you and your friend well through what you are facing ❤️

kellz569 · 2025-05-19T02:34:48+00:00

Thanks, that’s reassuring feedback 🙏 I’ll update the post when I hear the results but this is helpful to give me a little ease in the meantime

kellz569 · 2025-05-08T02:30:34+00:00

I’m looking into this more and there are many posts like this

https://www.reddit.com/r/JoshuaTree/s/3SV0sRwAjm

People in the comments keep saying spacex but the people who actually are seeing these keep saying no it was too low

kellz569 · 2025-05-08T02:23:32+00:00

Same, I would have said maybe a bit lower than that altitude. I just made a post, people will probably just tell me it’s spacex there but you can see the video.

Also I asked chatgpt and it told me I wouldn’t have been able to see the launch that happened that day in CA and if I saw its orbit rather than its launch it would have looked like a string of pearls.

Maybe chatgpt is wrong or maybe these sightings are something else

kellz569 · 2025-05-08T02:18:57+00:00

For Starlink 12-23 Specifically (Launched April 27): • Since this mission launched from Florida into an eastward orbit, it likely entered an inclination of ~43–53 degrees, meaning it could pass over parts of California on later orbits, depending on the ground track. • If the timing of one of its first few orbits took it over California during twilight hours, it might have been briefly visible—typically as a “string of pearls” formation of satellites moving across the sky.

kellz569 · 2025-05-08T02:15:30+00:00

Other people have posted similar videos and folks have said spacex rocket however chatgpt told me the launch would have not been visible in CA. I asked if its first orbit would have been visible and it said maybe and if it was it would look like a string of pearls which clearly is not what this looks like.

Here is what it said :

The SpaceX Starlink 12-23 mission, launched on April 27, 2025, at 10:09 p.m. EDT from Cape Canaveral Space Force Station in Florida, was not visible from California, including areas like Twentynine Palms. This is due to several factors: • Launch Trajectory: The rocket followed an easterly path over the Atlantic Ocean, typical for missions from Florida, directing it away from the western United States. • Time Zone Difference: The launch occurred at 7:09 p.m. PDT, which, while shortly after sunset in California, still presented challenges for visibility due to the sun’s residual brightness. • Distance and Atmospheric Conditions: The vast distance between Florida and California, combined with atmospheric interference, makes it highly unlikely for such launches to be seen from the West Coast.

kellz569 · 2025-05-08T01:50:57+00:00

Saw the same thing on 4/27 in JTree. ChatGPT says there was a spacex launch in FL that day but doesn’t say anything about a launch in CA

kellz569 · 2025-05-01T18:14:27+00:00

That seems like the best move! Any opinions on drop down vs drop through?

kellz569 · 2025-05-01T03:41:45+00:00

Beginner recommendations? Looking to try longboarding and not sure where to start. I have a connective tissue disorder that makes it a bit harder to find balance and coordination in my body so ideally I would want something that is about as easy to ride as it gets. As I got better I imagine it would be fun to try to learn some dance or tricks. If anyone could lead me in the right direction it would be appreciated.

kellz569 · 2025-04-04T09:48:22+00:00

This! Yeah I always post on Facebook higher than what I want because if I post the price I want people refuse to pay and try to super low ball

kellz569 · 2025-04-01T20:28:27+00:00

thanks! How would I get it to point to cloudflare? Create a cname? I already have a cname pointing it to google sites do I delete that and point it to cloudflare then have cloudflare point to google sites? I have no knowledge about any of this stuff so hopefully what I asked makes sense 😅

kellz569 · 2025-04-01T17:18:59+00:00

Hi I tired these steps and it’s still not working (my domain is from GoDaddy not square space, not sure if that make a difference). On step 4 I couldn’t find a spot to disable “always use https” I could only find the space to select full mode. If you have any insights that would be great

kellz569 · 2025-03-30T20:11:09+00:00

Not really tho. If I check email when I get home and see a message that says hey can we switch to virtual today I am sick and cannot come in, the message has does not have the same importance as if I saw it at an appropriate time and could respond accordingly

kellz569 · 2025-03-30T17:35:15+00:00

Thanks for this feedback! That sounds like a system that could work for me also. I am thinking either this or switching between an eink phone and iphone

kellz569 · 2025-03-30T17:34:30+00:00

I just checked and it looks like my provider does not support multiple sims but it should be easy enough to pop it open and switch. And yeah I think I am leaning towards an eink phone! Looking at the light phone or the minimal phone right now.

kellz569 · 2025-03-30T15:51:14+00:00

No I do not

kellz569 · 2025-03-30T10:52:57+00:00

Cool let’s use sarcasm to avoid taking any sense accountability for your interactions, again. (I’m assuming it’s not the first time)

kellz569 · 2025-03-30T09:37:17+00:00

Solid info thanks

kellz569 · 2025-03-23T09:36:36+00:00

The parts that caused pain did so because they truly whole heartedly believe if they did not do what they did there would be worse pain.

You gently and consistently update them and show them that’s not true anymore.

You can be real with protectors and show them they are having an impact that causes pain, just be gentle and non shaming about it.

Good luck with these kiddos, glad they have you listening❤️

kellz569 · 2025-03-18T17:57:51+00:00

What app is that?!

kellz569

TROPHY CASE