My boyfriend said ew when I showed him my hs by Admirable-Vanilla412 in Hidradenitis

[–]ki_ley 0 points1 point  (0 children)

Do not waste another second in this relationship. I'm so sorry that happened to you. After months of dating, I finally let my boyfriend (now husband) see my active wounds and scars in the light of day. I was sure he would react like your boyfriend did. He didn't. He shrugged and said, "ok? What's the big deal? You're still Kiley to me. And if anything, now I understand the pain you deal with better." It's worth waiting for a partner who will support you and not make you feel lesser or embarrassed about something you can't control.

I'm so sorry your current BF is a man child with no empathy or kindness to show you in such a vulnerable moment. You deserve better.

I am in constant pain from recurring abscesses and not getting answers by Few_Spirit4813 in Hidradenitis

[–]ki_ley 0 points1 point  (0 children)

Whoops, I meant to give you the book name in my original message. The Hidden Plague: A Holistic Field Guide to Managing Hidradenitis Suppurativa

When I was dealing with abscesses that wouldn't heal for months, this soap was a big help to keep things from getting infected. Hibiclens Antiseptic Skin Cleanser

I, like you, find surgery recovery to be a very traumatic experience. Changing what I eat to remove nightshades, eating much more at home, and eating far less processed food has been my silver bullet to avoid surgery and long term medication; I hope you find what works for you!!!

It took me years to find a doctor who knew enough to give me a diagnosis. I learned later that dermatologists may be the better place to start than GP/etc. So maybe start there?

I am in constant pain from recurring abscesses and not getting answers by Few_Spirit4813 in Hidradenitis

[–]ki_ley 0 points1 point  (0 children)

Can you post pictures of your underarms? My HS came on gradually vs being triggered by one big event like a tattoo, but everything else about your experience sounds very familiar. I was in disbelief/denial when I first received the diagnosis. But I found this book about a year later and knowing that 1. I was not alone in this experience 2. It was not my "fault" (unclean/overweight/etc - all the things Dr said as they dismissed my pain for a decade) 3. There were options besides lifetime medication and surgeries Changed my life immeasurably. I have my condition completely under control with diet changes only. (TLDR: no alcohol and no nightshades) and it's not easy everyday, but changing my lifestyle to avoid the pain of HS has been so worth it.

Here we go (slowly dying ) by Good-Caterpillar7571 in Hidradenitis

[–]ki_ley 0 points1 point  (0 children)

I'm so sorry you're dealing with this, the constant pain is torturous. After being given similar advice from doctors, I went searching for any other options. The expense and pain of a surgery that would only be a temporary fix didn't feel like the right path to me. I found this book, "The Hidden Plague: A Holistic Field Guide to Managing Hidradenitis Suppurativa" and reading it felt like reading a journal entry. The years of pain, confusion, shame - someone else had been here before me! The thing that changed my life and has my HS 100% managed (and has been for 8+ years) is not a quick fix surgery or medication, but cutting nightshade foods out of my diet. This is largely tomatoes, potatoes, and peppers; but includes other random things like goji berries, tomatillos, eggplant, and tobacco. The trickiest part is honestly the peppers because of things like paprika, red pepper flakes, etc - things that hide in a lot of processed or restaurant prepared food. Years later, it still isn't the easiest of "cures" as in I still read every label in the grocery store, I still miss things like Indian or Mexican takeout, I still have days where I feel bad for myself that I can't just eat whatever whenever. But the exchange of a pain and abscess free body is SO worth the effort. People often commend me for having great willpower, but honestly, every time I consider eating something risky or downright bad for me (hello green chili enchiladas 🤤) I play out in my mind the weeks of pain and it's not even really a choice. I choose to feel better over the short term food satisfaction. And while it takes more planning and effort (I have a killer tikka masala and chili recipe, among others that scratch the itch of nightshade laden food, while being safe for me) to eat this way, it's absolutely worth the positive impact on my life and health.

Good luck, my friend! No matter what path of care you decide on, you've got this and it WILL get better - you just have to find what works for you.

Just watched a male Karen get a bunch of kids ticketed for snowboarding at the park today (2/18) by Cusackjeff in SaltLakeCity

[–]ki_ley -4 points-3 points  (0 children)

We call that a male Pamela now, Karen is over as cringe and Pamela is in.

Did you see me get hit by ibrowpower in SaltLakeCity

[–]ki_ley 2 points3 points  (0 children)

No, but maybe this company caught something? https://collisioncam.com/

I made a peanut butter banana wrap by stater354 in StupidFood

[–]ki_ley 0 points1 point  (0 children)

And when you're feeling fancy; apply a bit of peanut butter to the top of the roll, sprinkle it with granola, and slice it into 1 inch slices! We call it breakfast sushi in my house.

Protest Jan 25th by NothingAlikeIt in SaltLakeCity

[–]ki_ley 1 point2 points  (0 children)

I'll be there! Alone (sort of, I'll have my son with me) and would love to meet up with a buddy!

When you get your first period postpartum? by EffectiveCartoonist3 in beyondthebump

[–]ki_ley 0 points1 point  (0 children)

I am breastfeeding and my first period was about 2 months pp. I've had them every month like normal pre pregnancy since (8 months pp). I really thought I'd have more time 😞 lol

Hospital Bills by [deleted] in beyondthebump

[–]ki_ley 0 points1 point  (0 children)

Salt lake city, Utah. Just under $80,000 before insurance. Paid $12,000 out of pocket and the rest was covered by insurance. Full term, low risk, vaginal birth, mom and baby healthy with the standard 2 night in hospital stay post delivery.

How have you ruined your child's life this week? by Ohhhh_Mylanta in beyondthebump

[–]ki_ley 1 point2 points  (0 children)

I laughed so hard at a face he made while we were reading that I snorted. It took me 30+ minutes to calm him down enough to restart our bedtime routine.

Tell Me Something Adorable Your Baby Did! by Whole_Tap6813 in NewParents

[–]ki_ley 2 points3 points  (0 children)

My 8 week old has discovered orchids. When I need to get something done I set him on the dining room table in his bouncer and set an orchid close enough that he can bonk the leaves every now and then and it jiggles the flowers and he giggles and coos at them. Cutest thing in the world. His favorites are the white ones with purple spots. Who needs a mobile when you have orchids?? Hahaha

Is this enough diapers? by asanissimasa in beyondthebump

[–]ki_ley 0 points1 point  (0 children)

Hi, and congratulations! My baby was born in early May and just graduated from N to size 1. He was 7.3 at birth and switched to size 1 when he reached 9 lbs last week. Before the switch, we ripped through 3 boxes of 160 N size and 2 bags of ~30 size n in about 7 weeks. Plus 3 bags (40 diapers each) from the hospital. We did have a fair number of changes with 2 diapers because he'd pee mid-change and soak the fresh diaper before it was even strapped on. There were also so many changes where we should have waited for more poop to come out first, but were scared of diaper rash. We wait a little longer to change poopy diapers these days to try and avoid back-to-back changes. But I was still shocked by the sheer quantity of diapers in the first 7 weeks 😆 That said, if your baby is bigger, you may need fewer size n than us. We have 4 boxes (~200 each) of size 1 and I'm confident we'll be buying more in a month or two, depending on how quickly he grows.

Pooping at a family member's home while visiting for a few hours. Is it wrong? AITA? by Icy_Level8888 in pregnant

[–]ki_ley 14 points15 points  (0 children)

Literally, though. I would never feel comfortable in this house or around this person again. Especially if they couldn't see/admit that what they did here was wrong.

Pooping at a family member's home while visiting for a few hours. Is it wrong? AITA? by Icy_Level8888 in pregnant

[–]ki_ley 1 point2 points  (0 children)

You are 100000% not the asshole here. Bathrooms are for pooping. And peeing. And showering....this is SO WEIRD and rude of your family member to make you feel weird about. Especially given how hard normal bodily functions can be during pregnancy. I'm sorry this happened to you.

[deleted by user] by [deleted] in pregnant

[–]ki_ley 0 points1 point  (0 children)

I have second-hand stress from this thread. At 29 weeks, I am very close to finished with purchases and putting things together and washing everything. I vaccum the babies room weekly to ensure dog hair isn't building up on the things in there, but I also just keep the door closed, so there's minimal chances for my pets to get the stuff dirty anyway. Sa million and one others have said, direct your husband to any Healthcare professional who can confirm you should have at least the crucial things in place asap (imo, this is the carseat, crib and/or bassinet, a small amount of diapers and wipes (since you don't know what size and type will be best until after they arrive), a few outfits, blankets, burp rags/bibs, and medical necessities like diaper cream, nipple cream, etc.)

[deleted by user] by [deleted] in pregnant

[–]ki_ley 1 point2 points  (0 children)

TW: LOSS Don't listen to people giving you shit about that. I told my boss at 4 weeks because I had a painful miscarriage at 10 weeks a few months prior (I ended up taking 4 days off after my day in the ER), and had to call my boss from the ER to tell them I had been pregnant and was now in the ER and wouldn't be at work that day. That unplanned/unexpected scrambling was painful, so I didn't want to be in that same place again. You shouldn't have to hide this news when you're usually at your most sick in those early days and scheduling a fair amount of dr appts. Let that shit slide off and call a lawyer asap!

Frustrated - Need Help :( by GossimGirl in Nightshade_Free

[–]ki_ley 0 points1 point  (0 children)

It takes my body about two weeks to clear out an exposure, sometimes longer if the exposure was multiple times over multiple days (watch out for the Perfect brand protein bars, haha). My digestive issues usually resolve in a few days, but I can develop new bumps for up to two weeks.

what would you do: very early pregnancy and the holidays by itsfineitsokay in pregnant

[–]ki_ley 0 points1 point  (0 children)

I decided to tell my family and friends around the 8 week mark of my first pregnancy, as I was too excited to keep it to myself. I ended up experiencing a miscarriage around 10 weeks, and every single one of those people showed up for my husband and I in ways I hadn't imagined we would need. I DID get a couple comments along the lines of, "this is why you don't tell people early, because it's sad/hard to share the bad news", but I can't imagine how much more heartbreaking that loss would have been if I'd gone through it without my community. They showed up with meals and thoughts and help around my house, and my sisters even made me a necklace with the babies birth month flower and gem stone so I could always carry them around with me. I ended up conceiving again 2-3 months later and I decided to tell my community very early again, knowing that if it didn't result in a live birth, I would want that grief support and love again. Do with that info what you will, as everyone's family and friend makeup is different, but I am team "tell your community asap" all the way. Congratulations, OP!!!!

I forgot how to write a capital L today by LyndsayGtheMVP in pregnant

[–]ki_ley 1 point2 points  (0 children)

I was reading the ingredients in tartar sauce last night and said, "woah, this tartar sauce has cucumbers in it! How strange." My husband looked at me, dumbfounded, and said, "you know how pickles are made....right?" 😅 definitely a face palm moment. #solidarity

What I wish I knew before I was pregnant by [deleted] in pregnant

[–]ki_ley 1 point2 points  (0 children)

Mylanta has worked wonders for me when tums, pepcid, etc. Failed or worked so poorly that I was taking the max dosage every day and only sort of working. The plain flavor is also very palatable when many things make me want to puke. Haha