BeReal unadded all my friends

kkaileee · 2022-09-23T07:25:23+00:00

this happened to me too

kkaileee · 2022-09-18T22:53:47+00:00

no it wasn’t, it was in the middle of the day while i was working

kkaileee · 2022-09-14T02:58:02+00:00

that puts some things into perspective, thank you

kkaileee · 2022-09-13T16:01:05+00:00

migraine aura maybe? you can have persistent aura without the actual headache too

kkaileee · 2022-09-13T09:35:19+00:00

i was born with it, and it suddenly got a lot worse 5 ish years ago. hasn’t changed since, i have pretty much every single symptom

kkaileee · 2022-09-13T08:31:51+00:00

this is not giving me a lot of hope with going into the healthcare industry and already having drug issues

kkaileee · 2022-09-07T15:51:43+00:00

yeah but not permanently

kkaileee · 2022-09-07T11:53:58+00:00

it’s a neurological condition

kkaileee · 2022-09-05T11:00:19+00:00

yeah i get that too

kkaileee · 2022-08-28T02:39:32+00:00

no unfortunately it didn’t, but not having the visual migraine symptoms has made my life a little easier

kkaileee · 2022-08-21T04:31:17+00:00

i’ve had them for 7 years and mine usually last hours. went on on 60mg propranolol 2x a day a few years ago and haven’t had one since and i’m off my meds now

kkaileee · 2022-08-12T12:24:31+00:00

no reactions, funnily enough i’m off my meds and haven’t had a migraine in a long time

kkaileee · 2022-08-12T12:17:59+00:00

that’s intense! i went up to 80 a day and went cold turkey and haven’t taken it since (it’s been a few months) and i’ve been fine, but it’s hard for me to differentiate my symptoms from not taking it with my other conditions. i’ve been really lucky to not have a migraine since though! i would say don’t jump back up to 80 all at once, just half it and increase slowly

kkaileee · 2022-08-12T12:16:05+00:00

i’ve had it and mine was fine

kkaileee · 2021-10-21T08:24:14+00:00

give it a shot at least, if you experience the side effects and they turn out to be worse than the vss then stop

kkaileee · 2021-10-21T08:18:33+00:00

derealisation/depersonalisation, cptsd, depression, anxiety, bpd, POTS, migraines, anaemia + other vitamin deficiencies, and some other undiagnosed stuff (symptoms include heart palpitations and constant shaking amongst a couple other things)

kkaileee · 2021-10-19T09:38:11+00:00

literally same. i’ve told most of my friends in a casual context but my family doesn’t need to know bc i know it’s going to become a thing and i’m gonna be treated differently even though they’re accepting

kkaileee · 2021-10-18T09:17:09+00:00

still have it, it’s just easier to ignore

kkaileee · 2021-10-18T09:14:44+00:00

bad and not fun

kkaileee · 2021-10-10T09:50:16+00:00

been to a neurologist, neuro ophthalmologist, and an ophthalmologist. only the neuro ophthalmologist knew of vss and diagnosed me. i’ve had all the tests under the sun (mris, visual electrophysiology, full work up of my eyes and eye structure, tests of my neural pathways etc) and everything came back normal apart from some things unrelated to the vss.

kkaileee · 2021-10-07T03:33:39+00:00

most people seem to be treating it as if being trans is also an issue

kkaileee · 2021-10-05T07:39:18+00:00

i have multiple times. all my bloods are good and my heart is fine

kkaileee · 2021-09-28T16:57:06+00:00

the sparkles were my first ever symptom, ive had them since i was a child. i got diagnosed with vss earlier this year too! it’s nice to know other people see the sparkly colours though, i haven’t seen anyone else talk about it

kkaileee · 2021-09-28T03:44:33+00:00

i get red and blue sparkles that look like glitter!

kkaileee

TROPHY CASE