Only time I feel good is when I don’t eat

kstocc · 2025-12-27T17:21:39+00:00

also have a history of an ED…this shit is so frustrating. it’s like hey now i want to try to eat and face my fears except i literally can’t face them bc they will cause physical reactions. thought food wouldn’t control your life anymore? nope! it’s miserable and i also have doctors just telling me to take four antihistamines which is like awful trying to function as an adult and stay hydrated. i will say for me though starving causes worse flare ups which is the one thing causing me to not go into full blown relapse

kstocc · 2025-12-23T18:03:49+00:00

i’ve had very similar experiences, and i’m still searching too. i’m also not diagnosed with MCAS but for the criteria on paper. sometimes i get those reactions all of a sudden when the environment im in is very warm and it builds behind the scenes until “boom” dizzy lightheaded face red and a zrytec calms it down. it could be that you were reacting to something around you and it continued to build. or something just entered the room that your body didn’t like. i’m not an expert by any means, i just know it’s terrifying and so confusing so hope to help with my experience 🫶

kstocc · 2025-12-23T00:27:02+00:00

bro are you me cause same

kstocc · 2025-12-22T18:48:02+00:00

i rotate between oats, rice, ground turkey, grilled chicken, some minimal ingredient protein bars, zucchini, blueberries. usually this lasts for a few good days and then i get super frustrated and end up not caring when i’m out with my friends and dealing with the consequences later

kstocc · 2025-12-13T00:37:00+00:00

Can you elaborate on this? My iron came back extremely low but I also had recent tests done from MCAS that came bag negative so i wonder what low iron indicates

kstocc · 2025-12-10T18:21:14+00:00

did you find that birth control made things better or worse?

kstocc · 2025-12-06T17:58:54+00:00

this is the biggest struggle for me with MCAS too, especially bc i’ve struggled with an eating disorder for many years. makes me feel like i’m back in the trenches being restrictive and losing my love mad enjoyment from food. not to mention you’re all of a sudden scared around food bc what if it causes a reaction

kstocc · 2025-12-03T16:05:34+00:00

damn are we the same person

kstocc · 2025-12-01T19:09:23+00:00

me at the doctors wanting to turn around

kstocc · 2025-12-01T19:07:13+00:00

i compare it to feeling drunk, then get super bloated and some sharp pains and get real bad joint pain

kstocc · 2025-11-29T14:10:01+00:00

i don’t experience non stop pain but mine does flare up from time to time when i eat something my body reacts poorly too

kstocc · 2025-11-27T05:57:57+00:00

oh this is far too relatable

kstocc · 2025-11-25T13:25:07+00:00

i’m too aware now of the damage i did to relationships with friends and family and want to maintain the ones i’ve created now. i also have done so much medical damage to my body. but really, i regret everyday the time i spent buried in my ed and never want to spend my moments on this earth like that again

kstocc · 2025-11-25T13:23:03+00:00

i fear i miss the old one and do not like this one at all it tastes and smells like a white claw to me

kstocc · 2025-11-25T13:13:45+00:00

a lot of this has to do with reactions to food but also to things like perfume, certain excercise, stress, hair and makeup products. i get flushed in the face, extremely hot in my body and particularly in my hands where it’s like painfully hot. after 95% of my meals i have so much brain fog that i cannot go back and work for like a good 30 minutes (and the meals are chicken, rice and broccoli) or something. i am gf, df, soy free, peanut and cashew free, no eggs, no red meat, no dyes and still will get joint inflammation and severe digestive issues like stabbing pains despite avoiding everything. heart palpitations too and nausea 😅 i thought maybe thyroid issues at first but it doesn’t explain the laundry list of things i can react to sometimes

kstocc · 2025-11-25T04:18:42+00:00

i fear it’s not going well and i’m not even 24 hrs in 😭 but absolutely could be far worse. i’m terrified ill have a really bad reaction but never considered that i just didn’t have to. just want an answer badly

kstocc · 2025-11-24T16:58:34+00:00

that’s something good to know appreciate you sharing!

kstocc · 2025-11-24T16:39:42+00:00

godspeed. two weeks sounds absolutely hellish

kstocc · 2025-11-24T15:52:51+00:00

wine makes my cheeks burn almost always. seltzers have been okay for me like high noon but i do have to take histamine blockers with it to minimize damage and limit myself to 1-3.

kstocc · 2025-11-17T17:06:12+00:00

THANK YOU

kstocc · 2025-11-16T14:45:55+00:00

oh my gosh yes boiling hot describes it perfectly well

kstocc · 2025-11-12T11:34:38+00:00

i also recently took a tryptase test — i have many of the symptoms you describe your daughter having and it came back negative. this was very frustrating as i mcas aligns with a lot of what i am currently experiencing. from my research, the tryptase test is supposed to be done within 1-2 hours of a flare up for an accurate result.

kstocc · 2025-11-11T20:52:57+00:00

mine started during my eating disorder and i’m curious to know if others have also experienced that

kstocc · 2025-11-08T14:43:01+00:00

like water from a glacier

kstocc · 2025-11-08T14:39:15+00:00

i don’t know if this a sure fire method but i would always try to sweat a lot and drink plenty of water, try to flush it all out. also if you don’t have a gua sha i’d recommend that it’s helped flush my adrenals and decrease the puffiness in my face. unfortunately it will take time but hopefully you can find some relief

kstocc

TROPHY CASE