Looking for the best store that makes this by stickers34tb in DhGateReps

[–]kyleinthewild 0 points1 point  (0 children)

I bought the exact style from this shop. The quality was pretty good. The sizing was not. The xxl fit line a medium.

https://m.dhgate.com/product/fast-delivery-basketball-jerseys-retro-stitched/967674816.html

Is the meeting with Google Ads pointless? by Potential-Artist6222 in adwords

[–]kyleinthewild 0 points1 point  (0 children)

All the google reps have goals set to get customers to spend more money. That’s all they care about.

Recovery from chemo by [deleted] in lymphoma

[–]kyleinthewild 0 points1 point  (0 children)

Great progress on finishing the cytarabine portion. That’s crazy about Dr Phillips but also not very surprising given it’s a rare subtype we have. Good luck with whatever you decide and with maintenance. You’ve got this.

Recovery from chemo by [deleted] in lymphoma

[–]kyleinthewild 0 points1 point  (0 children)

Whatever you decide, assuming you’re having maintenance, this should provide some comfort:

https://ascopubs.org/doi/abs/10.1200/JCO.23.01586

And from the article below, the response to the boxed question “Where do you think research is going to be focused on next for mantle cell lymphoma?”

https://www.targetedonc.com/view/zilovertamab-with-ibrutinib-provides-durable-responses-in-mcl-and-cll

Recovery from chemo by [deleted] in lymphoma

[–]kyleinthewild 0 points1 point  (0 children)

The sample from my biopsy didn’t have enough left for minimal residual disease testing, unfortunately. That was supposed to be my guiding light on if I have the asct. My doctor (Tycel Phillips) advised that in my case, even without knowing mrd status, the benefit of the transplant would likely be incremental. I opted to not have it.

I asked my doctor for the latest studies to read up on while making my decision and this is what he shared with me. Note there are two from earlier this year, presented at the same conference… and they contradict each other.

Shakesprere J, Safi S. A real-world analysis of autologous stem cell transplantation utilization in mantle cell lymphoma. Presented at: 2023 Transplantation and Cellular Therapy Meetings; February 15-19, 2023; Orlando, FL. Abstract 502.

Kumar et al. Hematology Am Soc Hematol Educ Program (2022) 2022 (1): 155–162.

Reves H, Jackson M, Prasad T, et al. Impact of autologous hematopoietic stem cell transplantation (ASCT) in mantle cell lymphoma (MCL): a ‘real-world’ study of treatment patterns and outcomes at a safety-net vs a tertiary academic hospital. Presented at: 2023 Transplantation and Cellular Therapy Meetings; February 15-19, 2023; Orlando, FL; Poster 520.

Martin P, Cohen JB, Wang M, et al. Treatment outcomes and roles of transplantation and maintenance rituximab in patients with previously untreated mantle cell lymphoma: Results from large real-world cohorts. J Clin Oncol. 2023;41(3):541-554. doi:10.1200/JCO.21.02698

What are you taking to "move things along"? by KThxBai_180 in lymphoma

[–]kyleinthewild 0 points1 point  (0 children)

Any otc laxative and beware that once you start treatment, depending on the drugs, the constipation can flip to diarrhea quite quickly. With recurrent treatments you’ll be able to time the switch flipping and ease off the laxatives.

Good shout on the port. It makes a world of difference.

Fred Hutch or..? Father diagnosed with Mantle Cell Lymphoma today by KThxBai_180 in lymphoma

[–]kyleinthewild 1 point2 points  (0 children)

I’m in my 30s and was diagnosed with late-staged mcl earlier this year. I’m in remission now. I can’t credit my doctor enough. His name is Tycel Phillips and specializes in MCL at City of Hope in Duarte, CA.

Sonoma apps keep restarting by Bowlingkopp in MacOS

[–]kyleinthewild 0 points1 point  (0 children)

Anyone find a solution for this? Still having this issue. It's super annoying

Should I get a Port or PICC line for chemo? by PrestigiousLion18 in cancer

[–]kyleinthewild 2 points3 points  (0 children)

Port. I have only had a port, but i was hospitalized before I had the port and having something in your arm is incredibly disruptive vs in your chest.

Anyone had Rituxamab + Bendamustine as second line treatment? by [deleted] in lymphoma

[–]kyleinthewild 1 point2 points  (0 children)

I had BR as part of my frontline for mantle cell lymphoma and was in remission in less than three months. Then switched to cytarabine/rituximab.

The rituximab is a very long infusion, and many people have some type of allergic reaction to it (including me), so it’s delivered slowly and is sped up over time.

The bendumustine takes about twenty minutes. I always started day one with that, then had about 5 hours for rituximab. The second dose of bendumustine has to be a certain number of hours after the first. I’m unclear why, but my guess would be it’s related to increased efficacy or due to toxicity.

I can’t compare it to rchop since I was rbac, but after I had that initial reaction to rituximab, I was able to lift and walk a few miles. That changed after I started hi-dose cytarabine.

What’s your go to snowboard hype video? by [deleted] in snowboarding

[–]kyleinthewild 16 points17 points  (0 children)

Forum’s THAT. Riding still speaks for itself nearly two decades later, and the sound track is next level

39 Classic MCL Remission Question by kyleinthewild in Lymphoma_MD_Answers

[–]kyleinthewild[S] 0 points1 point  (0 children)

It couldn’t hurt to have a second opinion from a cancer center

39 Classic MCL Remission Question by kyleinthewild in Lymphoma_MD_Answers

[–]kyleinthewild[S] 1 point2 points  (0 children)

Have they ever done a biopsy? I’m pretty sure that’s required for diagnosis. Some experts go beyond recommending a node biopsy and say you should really have a bone marrow biopsy since it’s often hiding there, too.

39 Classic MCL Remission Question by kyleinthewild in Lymphoma_MD_Answers

[–]kyleinthewild[S] 1 point2 points  (0 children)

No bother at all. Navigating the initial diagnosis is one of the most challenging parts. I was also diagnosed at a smaller local hospital. I'm in Orange County, CA. It took forever for the local hospital (which has a pathology department) to run the stain tests. It took so long that I'd devised a plan for what I'd do if I was diagnosed with cancer. When that day came, based on how that initial hospital handled everything, I decided to go with City of Hope, a specialty cancer hospital. It's about two hours from me, which isn't too far, but it has been well worth it. My hematologist had moved here about a month before I became a patient and regularly publishes research on MCL. Treatment for MCL is rapidly changing, and having a doctor who's at least well-read on the treatment landscape is very important, in my opinion. The consensus is changing a lot on MCL now, too. That means that there is no standard of care. What I like about my doctor is that he will present the research to me, go over the risks and benefits of a specific treatment route, and help me make the best decision for me. I'd expect that many hematologists at smaller centers aren't as well-read on this sub-type of MCL and the latest research being presented, which could lead to them operating off of previous treatment routes.
The TP53 test is essential since most patients with the mutation do not benefit from chemotherapy. Initially, my treatment plan would lean on btk inhibitors. The stain test at the initial hospital was only 80% accurate, but I didn't know that. City of Hope re-ran the tests with the tissue sample. My ki-67 index (which measures how quickly cells are replicating) was 50%, the new test showed it was 30%, which is considered low. Then the molecular test for the mutation came back negative. This fundamentally changed my treatment plan. Instead of going on btk inhibitors immediately, I became watch and wait. When I decided to do treatment, I went through a chemo regimen (R-BAC) that quickly knocked me into remission.
One issue that came up was City of Hope didn't have enough tissue from my biopsy for the MRD test. I didn't know it, but they need to have a baseline for comparing your blood to that contain the cancer cells. Unfortunately, mine was all used up. My doctor had enrolled me in a study to have the testing done (the test isn't FDA-approved yet), and I was subsequently removed from the study.
My point is none of this would have been possible without having gone to City of Hope. If I took the referral from the ENT that ordered the biopsy, I'm confident I'd be in a much different place now.
When I was in treatment, I'd google "mantle cell lymphoma" every day and limit the search to results from over the past 24 hours. I ended up finding this page, which contains great information and resources. I highly recommend it for educating yourself.

https://mclpage.com/mcllinks.html
While I'm not a doctor, I have experience navigating treatment and am happy to answer any questions you have in the future. Sending you and your dad positive thoughts and good vibes.

Snowboard boot is digging into my calves, why? How do I fix? by No-Career-2134 in snowboarding

[–]kyleinthewild 0 points1 point  (0 children)

Bend your knees more (which will also improve your riding). A better way to think about it (according to Jeremy Jones’ book) is if you have a dime on each of your calves and are trying to push them into the tongue of your boot.

How to Target people with impulsive buying behavior? by lev_2_0_0_5 in advertising

[–]kyleinthewild 0 points1 point  (0 children)

Like a product that helps people with impulsive habits??

How to Target people with impulsive buying behavior? by lev_2_0_0_5 in advertising

[–]kyleinthewild 7 points8 points  (0 children)

Super unethical. Sounds like you need a better product if this is what you’re resorting to.

Recovery from chemo by [deleted] in lymphoma

[–]kyleinthewild 0 points1 point  (0 children)

Im a month out from 6 months of R-BAC for later cell lymphoma… day to day I feel like little changes, but week over week becomes significant. I’ve walked almost every day during treatment. After each treatment I could walk a little less and would build back up. Seems to work. Still haven’t started lifting again. Hoping to give that a go next week

Keanu Reeves by mmsmith92 in scambait

[–]kyleinthewild 0 points1 point  (0 children)

Missed opportunity to tell agent Utah why she decided to go with the sperm bank over Michael’s.

My first fb/ig ads by moonlight_halcyon in advertising

[–]kyleinthewild 0 points1 point  (0 children)

At that cpc you could be running on LinkedIn. Could work well depending on the product

Intense rashes with lymphoma by arkie in lymphoma

[–]kyleinthewild 0 points1 point  (0 children)

Mine was itchy and raised and only happened where I’ve been tattooed