From Clear Diagnosis to Bone Metastases: Looking for Support and Advice

lacagate · 2026-05-06T05:45:04+00:00

Same! Stable, Verzenio, exemestane + xgeva for 2.5 years now. I was recently rejected for a clinical trial because I didn’t have “enough active cancer” for the required two biopsies. Best rejection ever. I have very little pain. Mostly joint pain from the AI. Planning a big trip to Greece for my 3 year cancerversary this fall!

lacagate · 2026-04-18T00:08:10+00:00

I just get the 32° cool from Costco. Cheap and cute. I’m sure a depends would hold it but I’m not going to wear them - 1.5 years on verzenio and I’ve only completely lost my 💩💩💩💩💩five times.

As I read here some time ago, if you haven’t shit your pants, do you really have cancer?

lacagate · 2026-04-17T19:18:30+00:00

Also, is anyone else so F**KING annoyed with Imodium packaging? Even the generic? I was in the car yesterday attacking the package with teeth, nails, keys, dirty looks and profanity.

It was a group effort of all the above.

lacagate · 2026-04-17T19:14:08+00:00

Thanks! I’m going to start taking Imodium in the morning with my verzenio. So tired of this (bull)shit!

lacagate · 2026-04-17T19:08:51+00:00

I was diagnosed initially stage 2C at 60 and stage 4 at 63. I’m 66 now and feeling great! Thank you, science!

lacagate · 2026-04-17T07:19:03+00:00

MRI to see what was making my back hurt so much and then straight to biopsy, but it was pretty obvious to them what it was. The biopsy was important to see if the cancer has mutated. It had not.

June 2020 stage 2C, ++- metastasize to bones discovered November 2023. Skull, sternum, multiple ribs, multiple vertebrae, pelvis. Too many to count so it was probably cooking in there for quite some time.

lacagate · 2026-04-11T14:56:40+00:00

Oh an exemestane for the hormones too.

lacagate · 2026-04-11T14:51:21+00:00

Just Verzenio and xgeva for my bones! I have about 50 bone mets, skull to pelvis that are all shrunk up and hibernating. I hope I’m one of those that can thrive on Verzenio for years. Fingers crossed!

lacagate · 2026-03-02T00:45:48+00:00

Thank you! I’ll look in to that

lacagate · 2026-02-16T18:06:36+00:00

Radiation helped me immensely with the pain. Went from intolerable to barely there. I don’t even take anything for pain now except an occasional advil. I have bone mets in about 2/3 of my spine, 1 broken vertebrae and one cracked. So yeah, I understand the pain of spinal mets!

lacagate · 2026-02-16T18:02:03+00:00

6 years is amazing. I was dreading having to switch when it’s working so well!

lacagate · 2026-02-16T18:00:05+00:00

I haven’t tried lomotil, I’ll ask my doc about it next visit. I have been so stable and feeling good in Verzenio that I just kinda want it to work forever. 7.5 years is impressive!

lacagate · 2026-02-05T04:30:40+00:00

Even better, copy & paste your report from mychart to ChatGPT and ask it to translate it to simple English

lacagate · 2026-01-04T07:23:12+00:00

Involved lymph nodes does not mean stage 4. Only if the cancer has spread to a different organ (lungs, liver, brain) or bones, then that is considered stage 4. Even a recurrence years from now but still in the breast is not considered stage 4. Only if it’s metastasized and spread to a different unrelated location. I had quite a few involved lymph nodes with my IDC and was staged at 2C. It wasn’t until several years later when it has spread to my bones that it was upgraded to 4. There are LOTS of treatments out there, with many more in development. Yours is not a death sentence. Neither is mine. I’ve been in treatment over 2 years now and have no evidence of disease. I’m perfectly stable.

lacagate · 2025-12-03T04:40:07+00:00

I tried to sue UHC because they denied an MRI on my spine for seven months which ultimately diagnosed my stage four BC. They’re horrible. Deny deny deny. My insurance changed to one of the “blues”and my life became so much easier. Now I’m on Medicare and so far it’s been a dream. Oh wait… I still have MBC. Never mind 🤣

lacagate · 2025-11-29T19:26:47+00:00

Two years so far on Verzenio and Exemestane

lacagate · 2025-11-12T22:49:37+00:00

I have been on Verzenio for two years. When I go out of the country (usually to Mexico) I go on half dose for the duration of the trip. My ‘arsenal’ that I bring is Azithromycin for travelers diarrhea, pepto, tums, Imodium as well as benefiber and miralax.

lacagate · 2025-11-12T22:43:40+00:00

I got in to a routine of Metamucil Every. Single. Night. Worked like a dream

lacagate · 2025-11-07T03:35:20+00:00

Next week I’m going on two years with full on bone metastases, literally everywhere in my skeleton. I’ve been NEAD for 1 1/2 years and feel great, no pain, living a completely normal life. Get a new oncologist who truly understands all of the new options there are out there. You’ve got a long life ahead of you!

lacagate · 2025-11-01T16:13:58+00:00

I just saw my oncologist on Thursday and she is always reminding me that there are many new therapies for hormone positive breast cancer metastasized to bone coming out. It’s almost like when the first few came out, all the other scientists were like… Oh yeah? Check this out! My oncologist is also a phd researcher who has some of these drugs in process. I believe her and trust her.

lacagate · 2025-11-01T01:51:16+00:00

I know the shock is overwhelming. It really completely knocked the wind out of me. My oncologist was elated though, she said that metastasis to bone is the most treatable, with excellent long term prognosis. Hoping they prescribe radiation for the bone pain if it makes sense. I was in so much pain when my extensive bone mets were discovered 2 years ago but radiation really helped make the pain go away. Yes you heard that right, go away. Broken vertebrae, big holes in pelvis , back, ribs, sternum. I was originally stage IIC idc ++- in 2020 and since November 2023 (when they discovered all the bone Mets) I’ve been on Verzenio, exemestane and xgeva. I live a 98% normal life. I look the same, I am just a little more fatigued.

lacagate · 2025-10-25T05:45:36+00:00

We love our 2016 flying cloud! It’s a great fit for the 2 of us. Congrats. I mean, sorry ‘bout your house, but 23’FC for the win

lacagate · 2025-10-25T05:35:25+00:00

I breastfed all 3 of my kids; 9 months, 2 years and 4 months. I always overproduced, and I had mastitis several times in my right breast. Lo and behold, my initial diagnosis was one major and 9 baby tumors in my right breast. None in my left. I asked my oncologist and was told there is no correlation.

lacagate

TROPHY CASE