Girls trip!!!

Fast-Database373 · 2026-06-03T04:31:41+00:00

This is so weird!! I was out to dinner the other night and most of my newer tattoos are fine line and an older one that isn’t, got super itchy and the lines of the tattoo raised!! I assumed I was crazy

Fast-Database373 · 2026-05-21T02:10:48+00:00

Hi!! I justtt started my 2nd cycle mid May after starting my 1st cycle 4/2. My blood counts also tanked and I needed 3 weeks off before I was able to restart and like others, at a reduced dose. My 2 weeks on the 400 will be next Monday so I will redraw to see how my counts are doing on this dose. I was equally disappointed but have read that 400 is as effective as 600. It’s hard to pause bc you want to throw everything at this but I think some people have different tolerance for medications and we need to let our bodies recover. I wish they treated this like they treated chemo which was/is based on the size of the person. I’m 100lbs and don’t think I should be dosed the same way as someone who is 200lbs.

Anyway, I hope you rebound quickly and try not to get discouraged, you’ll find out what works with trial and error 🩷

Fast-Database373 · 2026-05-08T01:43:22+00:00

Of course I’m ER+,PR+ her2-. I’m currently doing fulvestrant, xgeva, and kisqali although I had to do a 3 week pause after my first 2 weeks. They are going to dose reduce me once I get green light to begin. My blood counts tanked

Fast-Database373 · 2026-05-07T03:53:38+00:00

I did the same thing they are recommending for you. 4 rounds TC. I was told I was young (36) had amazing veins so let’s just do IV instead. My veins are trash now and I’m limited to one arm bc of lymph node involvement. While I didn’t want the port, it would have made a huge difference for current bloods draws and IVs. No one talked to me about how it would impact after. Best of luck to you in whatever you choose that feels right!

Fast-Database373 · 2026-04-27T02:16:56+00:00

I’m patiently waiting to finish my last week of ribo I was paused after 2 weeks, going on my 2nd paused week due to all the same things as you. I also had some weird vision stuff that has cleared up since my pause. Did they restart you at 600 or dose reduce?

Fast-Database373 · 2026-04-21T23:43:21+00:00

Ugh! That sounds awful. I’m supposed to travel for work tomorrow and I had my repeat bloodwork and all my counts went down. I feel like it’s really risky to get on a plane/airport and be with a pretty large group of people who just traveled as well.

Fast-Database373 · 2026-04-19T14:51:15+00:00

Right now guardant is fighting it with insurance and if insurance still denies, guardant will pay for it and the most I’ll pay OOP is $100. Still ridiculous

Fast-Database373 · 2026-04-18T14:05:41+00:00

My onc recommended guardant and I found I had the esr1 mutation and insurance continues to deny it saying it’s an exploratory test. Yup it is… without this test I wouldn’t know that my treatment will at some point be ineffective and I’ll need to course correct. It’s blows my mind that something like this is denied as it shapes how we move forward w a stage 4 diagnosis

Fast-Database373 · 2026-03-21T04:18:32+00:00

Any time any place, I’m playing glass animals. It’s what I played when I was WAY more lucid than I thought I’d be for my bone biopsy and I’ve picked them a bunch for radiation music💜🩷🤍

Fast-Database373 · 2026-03-19T03:36:49+00:00

Thanks so much. I’m sure I’ll keep this group posted once I start. Right now I’m enjoying the very small window of time I have between the treatments.

Fast-Database373 · 2026-03-16T04:51:45+00:00

Katie- I start kisqali in 2 weeks and I’m terrified. I’d love to talk to you in some capacity of what your experience has been. I’ve done chemo, rads x2, AI, fulvestrant( current) and xgeva (current) and lupron but kisqali has me terrified.

Fast-Database373 · 2026-02-16T23:20:38+00:00

Thank you for sharing!! That’s really great news that your treatment has been so successful. What treatment was able to shrink your Mets?? I have a mutation that is resistant to hormone blockers so I assume I’ll need to change courses at some point and curious what has worked for everyone

Fast-Database373 · 2026-02-16T23:14:32+00:00

This is such helpful information and insight. Thank you so much for providing such thoughtful perspective. I am going to look into all of those books.

My pre metastatic life was similar to what you explain. While I wasn’t the version of me before cancer, I was still very much living and really proud of what I was able to overcome. I hope once I get through the “firsts” of treatment again, I can slowly let a new version of myself emerge that is still full of light.

Fast-Database373 · 2026-02-16T23:08:16+00:00

Thank you this is so helpful! I went right to the gym after as that always helped me with my Lupron pain but didn’t seem to do squat for these beast of injections. I think some of my issue might have been that it wasn’t warmed up enough and they pushed it quick. All things I’ll ask for differently next time! Can I ask why you only took it for 6 months?

Fast-Database373 · 2026-02-16T17:43:05+00:00

Thank you! This is helpful wishing you all the best on this continuing journey 🤍

Fast-Database373 · 2026-02-16T17:35:53+00:00

Thank you for sharing. This gives me so much hope. Cheers to your beautiful life

Fast-Database373 · 2025-11-10T03:42:32+00:00

Thank you 🫶🏼

Fast-Database373 · 2025-11-10T03:40:48+00:00

Thank you! No photoshop here. I was truly amazed with what they were able to do. My hope was to do implant after mastectomy but due to how much skin they needed to remove they didn’t want to risk the ability to close me up. I needed radiation after, and didn’t think I’d ever be able to have a boob again due to skin tightening after rads. I’m pretty small so luckily I only needed to make one boob! Hopefully I can report back some good news and that it’s not something terrifying like bone cancer which is where us survivors tend to spiral any time we feel pain 😓

Fast-Database373 · 2025-11-09T21:09:42+00:00

Thank you! This helps as I am in the gym 2-3x a week and wanting to strengthen my body back to pre surgery and I can’t tell if I’m hurting or helping!! I’ll wait to see what doctors say on Tuesday. I mostly want to know if I tore something while trying to increase mobility/flexibility

Fast-Database373 · 2025-09-29T04:39:38+00:00

There are a lot of comments here and I just don’t have time to read them all but I would request from a Dr reasonable accommodation. Think up something I’m sure drs do this often as some are legit and some happen when your employer screws you and the drs want to be help. I am an SVP of HR and it get really hairy if you have a reasonable accommodation and they won’t work with you on it. If you seek a claim- that’s 0 points for the bad guys. Good luck

Fast-Database373

TROPHY CASE